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granulomatous mastitis Group

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

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Avatar_universal
Can anyone recommend a good dr who has treated GM in Orange County or Los Angeles?
Lopine808 | Posted
Avatar_universal
Hi everyone It has been awhile since I posted on here. October will be my 2 year mark of being recovered from GMI. I suffered for 14 months. I have been free of lumps and bumps and pain ever since. I changed my diet to an anti...
coffeeknitter | Last answer
Avatar_universal
I've just been diagnosed with GM, after only being symptomatic for 2 weeks (I'm lucky to have great medical care in the Boston area). The root cause of my GM is still unknown, though I am starting with an infectious disease specialist t...
BostonAliGM | Last answer
Avatar_universal
Hi: ok three times lucky..have tried to post this three times, but to no avail, not sure why, I think it may have been because I included the actual link? a wonderful woman has created a blog with loads of current research links, h...
JoJo45 | Posted
Avatar_universal
I have a few questions: 1. Have you healed from GM or do you currently still have a mass and/or abscesses? 2. Are you on birth control? If yes, what type? (Pills, shot, IUD)? I stopped taking my birth control pills about 2 mon...
kuulei04 | Last answer
Avatar_universal
Hi! I was diagnosed recently and most days I feel no pain. When I do have pain it is a burning sensation that doesn't quit for a while. I am fighting taking steroids or methotrexate as, from what I have read, symptoms come back once you ...
dlsa1 | Last answer
Avatar_universal
Hi everyone, this is jojo I founded this site, had to go away for awhile, but trying to come back I have contacted the Medhelp customer service team to try to see what we can do to get you better access to the archived messages...
JoJo45 | Posted
Avatar_universal
I just got diagnosed with GM last week after 7 months of treat of antibiotics and 3 biopsies in total. All this while the doc wasn't able to diagnose what it was and thought it was fungal or bacterial and sent my to infectious disease do...
pagpri | Last answer
Avatar_universal
Has anyone had a mastectomy to resolve IGM? I am considering this option and my doctor suggested a simple mastectomy if this was the route I was going to go.
dlsa1 | Last answer
Avatar_universal
Just wondering what type (brand?) of turmeric is most effective? After doing some research it seems some are better than others. Thanks!
Kekoa10 | Last answer
Avatar_universal
Hi ladies, I'm glad I found this group and other ladies that can relate to this rare condition. I am a new mom with a 10 month old baby and I'm currently breastfeeding. My GM story began in January when I noticed a lump on my right bre...
LilFlo211 | Last answer
Avatar_universal
Hi everyone: I founded this group in 2010 in much desperation as there was nothing even on the web about our disease. I even established the definition of GM on Wikipedia...although the docs keep editing my work lol. I went throug...
JoJo45 | Last answer
Avatar_universal
So glad to find this place! What a crazy awful disease this is! This is my second reoccurrence . I had it last yr but I went away on it's own and everyone thought it was just some random thing without explanation. After 3 antibiotics, in...
Lumpymcgree | Posted
Avatar_universal
So very happy to find this group. Was diagnosed GM after 10 weeks of unsuccessful treatment. I've been on 6 courses of antibiotics, 2 FNAs, and an I&D. I have three abscess that were hard, but after a week have become mushy. The skin...
Lopine808 | Last answer
Avatar_universal
How incredible to find this forum. I think I'm learning more from the discussions than from the myriad of specialists I've visited (as wonderful as they have been). Mostly it's a revelation to hear other people with similar experiences...
OnemoreVancouver | Last answer
Avatar_universal
I have read recently that prednisone can hinder wound healing, my question is then, why do they prescribe it when the disease causes abscesses and open wounds? I have had an abscess rupture this week and it it very deep and ugly but I a...
aubie93 | Last answer
Avatar_universal
Hi all! I have had GM since July 2012..I wonder if takes more than 2 years to go away..it is much better now, but not sure if the breast feels normal again when GM is gone or not. My ultrasounds show only "deep" lumps, meaning that th...
Veronica36 | Last answer
Avatar_universal
Hi I'm a new user who found this community when trying to figure out how to treat my idiopathic granulomatous mastitis. Fortunately, my breast surgeon knew enough about IGM to know it didn't need surgery or steroids. It's been 2 plus y...
87CareBear | Last answer
7442433_tn?1390854429
Hi, I was diagnosed with GM 2 months ago, a month before that I got that painful Erythema Nodosum, which went away..Now I still have the lump, pain comes and goes, no meds, no leakage....I was just wondering if there were any other harsh...
n8ve_ontario | Last answer
Avatar_universal
I am a 41 year old mum of two living in Auckland, NZ and have had this disease since March 2013. I have been on antibiotics for that time and have had three debriding surgeries. Whilst the condition is improving and I have almost no pai...
Clairebear11 | Last answer
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