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granulomatous mastitis User Group
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
272 members
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Sush560May 19, 2014
Veronica36May 09, 2014
ruostentatiousOct 20, 2013
kuulei04Oct 12, 2013
19
By OnemoreVancouver Blank
How incredible to find this forum. I think I'm learning more from the discussions than from the myriad of specialist...
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coffeeknitterMay 03, 2014
1
By aubie93 Blank
I have read recently that prednisone can hinder wound healing, my question is then, why do they prescribe it when the...
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Veronica36May 01, 2014
kuulei04Apr 30, 2014
2
By Veronica36 Blank
Hi all! I have had GM since July 2012..I wonder if takes more than 2 years to go away..it is much better now, but n...
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Amy669Apr 29, 2014
katcat88Apr 20, 2014
russiangirlApr 11, 2014
87CareBearApr 06, 2014
russiangirlMar 31, 2014
9
By 87CareBear Blank
Hi I'm a new user who found this community when trying to figure out how to treat my idiopathic granulomatous mastiti...
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katcat88Apr 20, 2014
Mac0411Mar 10, 2014
kuulei04Jan 29, 2014
3
By n8ve_ontario Blank
Hi, I was diagnosed with GM 2 months ago, a month before that I got that painful Erythema Nodosum, which went away..N...
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katcat88Apr 20, 2014
1
By Clairebear11 Blank
I am a 41 year old mum of two living in Auckland, NZ and have had this disease since March 2013. I have been on anti...
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katcat88Apr 20, 2014
1
By Cor1234 Blank
I have always wanted implants one day. And since being diagnosed with this, I was wondering if that is possible. I wa...
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katcat88Apr 20, 2014
1
By ummtalha Blank
I have granulomatous mastitis and I have 23 april operation , the Dr gave me 2 option . One is to make TRAM-Lappe...
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katcat88Apr 20, 2014
JoJo45Apr 18, 2014
PoeJuFeb 24, 2014
kuulei04Feb 22, 2014
7
By PoeJu Blank
Hi everyone! Diagnosed with IGM 8 months ago. Right breast. I just had my second flare up aside from the first whi...
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katcat88Apr 13, 2014
Veronica36Apr 17, 2013
brendy1115Apr 12, 2013
Veronica36Apr 12, 2013
9
By VinniSyd Blank
Hello All, Little about me.. I’m 32 year old with one 4 year old girl. Yesterday I got diagnosed with this scary d...
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Sarnie52Mar 10, 2014
kuulei04Feb 22, 2014
2
By ruostentatious Blank
Anyone ever had bartholin cysts/abscesses??? It's the gland on either side of the vagina opening. I have been getting...
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ruostentatiousMar 08, 2014
Iba823Jan 29, 2014
Iba823Jan 29, 2014
Veronica36Dec 11, 2013
ruostentatiousDec 10, 2013
10
By ruostentatious Blank
I have 2 other "updates" on here, somewhere... Quick background: I discovered a lump in my right breast in 2008 (?...
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VandanayMar 07, 2014
Sush560Mar 06, 2014
kuulei04Mar 04, 2014
Veronica36Mar 04, 2014
4
By Vandanay Blank
Hi Everyone! I was a GM patient for 2 and a half year and from last year April I have tried homeopathic treatment ...
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kuulei04Mar 04, 2014
1
By lina33 Blank
Hi Everyone I'm so glad finding this group! My GM story started in Nov2013 on my right b. I live in Germany and I ...
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Veronica36Mar 04, 2014
kuulei04Mar 03, 2014
2
By Cor1234 Blank
I'm a bit freaked out... I was just diagnosed with GM about 2 weeks ago. Every little change or symptom I have makes ...
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kuulei04Feb 24, 2014
1
By Cor1234 Blank
What is the best way to use this oil? I'm using it topically but only for a few days. I don't have an abscess and I h...
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By kuulei04 Blank
Just curious if anyone had found success with taking methotrexate? It seems like all the doctors want to use methotr...
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Sush560Feb 10, 2014
ruostentatiousFeb 09, 2014
Sush560Feb 08, 2014
ruostentatiousFeb 07, 2014
Sush560Feb 07, 2014
9
By Sush560 Blank
Now when I read people's posts about using all this steroid and doing mastectomy, I think I am so very lucky to have ...
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Sush560Feb 08, 2014
ruostentatiousFeb 07, 2014
Sush560Feb 07, 2014
Sush560Feb 07, 2014
4
By ruostentatious Blank
Hey all, So I apparently have had an untreated Staph infection since November (untreated because my doctor culture...
5860291_tn?1379195535
By Sush560 Blank
Sorry, am copy pasting from my homeopathy post: A least try the diet. Try to eat in a way as if you are detoxifyi...
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