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granulomatous mastitis Group
This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.
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I just went to a rhuematologist last week, who ordered tons of blood work, basically to test for everything they cover that has "granulom...
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Hi - I was just diagnosed 2 weeks ago with IGM via my pathology report. My doctor said that he has never treated this disease in 15 years...
3 answers |
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Hello everyone! I was recently diagnosed with GM in the last two weeks (found lump, had mammogram & ultrasound, biopsy) and beginning to ...
1 answer |
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Can anyone recommend a good dr who has treated GM in Orange County or Los Angeles?
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Hi everyone It has been awhile since I posted on here. October will be my 2 year mark of being recovered from GMI. I suffered for ...
3 answers |
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I've just been diagnosed with GM, after only being symptomatic for 2 weeks (I'm lucky to have great medical care in the Boston area). Th...
2 answers |
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Hi: ok three times lucky..have tried to post this three times, but to no avail, not sure why, I think it may have been because I inclu...
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I have a few questions: 1. Have you healed from GM or do you currently still have a mass and/or abscesses? 2. Are you on birth con...
6 answers |
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Hi! I was diagnosed recently and most days I feel no pain. When I do have pain it is a burning sensation that doesn't quit for a while. I...
2 answers |
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Hi everyone, this is jojo I founded this site, had to go away for awhile, but trying to come back I have contacted the Medhelp ...
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I just got diagnosed with GM last week after 7 months of treat of antibiotics and 3 biopsies in total. All this while the doc wasn't able...
2 answers |
Avatar universal
Has anyone had a mastectomy to resolve IGM? I am considering this option and my doctor suggested a simple mastectomy if this was the rou...
1 answer |
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Just wondering what type (brand?) of turmeric is most effective? After doing some research it seems some are better than others. Thanks!
3 answers |
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Hi ladies, I'm glad I found this group and other ladies that can relate to this rare condition. I am a new mom with a 10 month old baby ...
4 answers |
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Hi everyone: I founded this group in 2010 in much desperation as there was nothing even on the web about our disease. I even establis...
9 answers |
Avatar universal
So glad to find this place! What a crazy awful disease this is! This is my second reoccurrence . I had it last yr but I went away on it's...
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So very happy to find this group. Was diagnosed GM after 10 weeks of unsuccessful treatment. I've been on 6 courses of antibiotics, 2 ...
2 answers |
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How incredible to find this forum. I think I'm learning more from the discussions than from the myriad of specialists I've visited (as w...
19 answers |
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I have read recently that prednisone can hinder wound healing, my question is then, why do they prescribe it when the disease causes absc...
1 answer |
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Hi all! I have had GM since July 2012..I wonder if takes more than 2 years to go away..it is much better now, but not sure if the breas...
2 answers |
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