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granulomatous mastitis User Group
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
248 members
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Iba823Jan 29
Iba823Jan 29
Iba823Jan 29
Iba823Jan 29
8
By Iba823 Blank
Did anyone discover their disease due to an inverted nipple? I noticed that my nipple was inverted in August 2008. I ...
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1
By KiwiAnge Blank
Hi there - just found this group an I am so amazed! My GM presented nearly 5 months ago. It just came up over night...
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kuulei04Jan 18
2
By Cccruz1 Blank
I am new to reaching out to people about this. I have had this disease for over 2 years and I still feel like a stran...
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kuulei04Jan 18
2
By navamalta76 Blank
After seeming to be MG Free and no pain. My left Breast crease has been hurting and red. I dont know what is causing...
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ljehaneNov 02, 2013
kuulei04Oct 24, 2013
3
By MIMISANZ Blank
HI, I am new in this group, yes , I am diagnostic with GM. I started back in Feb,2013 on my left breast, I still hav...
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navamalta76Jul 03, 2013
kuulei04Jun 25, 2013
3
By navamalta76 Blank
I'm doing well no reoccurrence. Over much thought... I believe that I had a large build up of Toxins in my body from ...
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Veronica36Dec 17, 2013
russiangirlDec 17, 2013
2
By Veronica36 Blank
HI all! For the ones using this drug..is it helping? Thanks
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russiangirlDec 16, 2013
1
By russiangirl Blank
I was very happy to find this forum when diagnosed with IGM 2 months back in Oct 2013 and found a lot of useful info ...
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kat_han77Dec 13, 2013
ruostentatiousDec 12, 2013
Veronica36Dec 04, 2013
kuulei04Dec 03, 2013
Veronica36Dec 03, 2013
5
By kat_han77 Blank
First off I have to say that I am so glad I found this forum! I was just diagnosed with IGM in November and I really ...
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By Nids_wals Blank
Hello, I have had several test before knowing my problem. FNAC and core bioposy both showed no AFB. But after surgery...
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ruostentatiousDec 12, 2013
aubie93Oct 25, 2013
kuulei04Jun 21, 2013
brendy1115Jun 14, 2013
lisasfMay 22, 2013
18
By AllegromousesMom Blank
I have had my diagnosis for quite some time and it has taken me a while to get to a group of doctors who have actuall...
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ruostentatiousDec 10, 2013
1
By Nids_wals Blank
I am 34 year old mom of 4 year old boy. I am sure people who found this group have been fighting granulomas and I und...
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By Clairebear11 Blank
Are there any other women with IGM in Auckland, NZ? I am a 41 year old women that was diagnosed with IGM in March thi...
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Veronica36Dec 03, 2013
aubie93Oct 25, 2013
Fabi8162Feb 08, 2013
SherpaTatFeb 01, 2013
Fabi8162Jan 31, 2013
5
By SherpaTat Blank
I wanted to let all of you know that after having IGM for a year I got a double mastectomy one year ago on Sunday. I...
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Veronica36Dec 03, 2013
1
By dfudgie Blank
I went to see the surgeon on November 8, 2013. I am scheduled to have a simple double mastectomy on December 5, 2013...
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CellroDec 03, 2013
Mac0411Dec 02, 2013
CellroDec 01, 2013
Mac0411Nov 11, 2013
Mac0411Nov 11, 2013
8
By Mac0411 Blank
I've been reading a few of the threads and the stuff you guys know is incredible. I was diagnosed with GM (presumed ...
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Kim81769Nov 06, 2013
Sush560Oct 02, 2013
Kim81769Oct 01, 2013
kuulei04Oct 01, 2013
5
By Kim81769 Blank
Hello everyone, I am new to group today and have been diagnosed with IGM, I am desperately seeking a Dr who has exper...
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ruostentatiousNov 04, 2013
Lrac10Nov 03, 2013
ljehaneNov 02, 2013
ruostentatiousOct 27, 2013
4
By Lrac10 Blank
Just curious how many of you have spoken to your doctors about hormone levels and/or had them tested. It seems there...
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ruostentatiousOct 27, 2013
aubie93Oct 25, 2013
cmbabysApr 12, 2013
VinniSydApr 09, 2013
Veronica36Apr 09, 2013
6
By VinniSyd Blank
On Thursday I'm going to get the pus drainage with fine needle. Last time it was very painful even 2 times local anes...
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Veronica36Oct 23, 2013
Veronica36Oct 23, 2013
Lrac10Oct 22, 2013
Sush560Oct 22, 2013
ruostentatiousOct 20, 2013
11
By Veronica36 Blank
My doctors wants me to find out if GM related to smoking cigarettes. I do smoke. Thanks for your answers.
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