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granulomatous mastitis User Group
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
242 members
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4628530_tn?1369112686
Veronica36Oct 14, 2013
kuulei04Jun 29, 2013
3
By pregnantandfrustrated Blank
So after dealing with this for 8 months with absolutely no treatment, I finally saw a rheumatologist today! Good news...
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ruostentatiousOct 03, 2013
kuulei04Oct 02, 2013
ApukOct 02, 2013
3
By kailooa Blank
Hello! What do you use as a bandage or dressing for draining abscesses? I have several draining areas on my breast ...
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kuulei04Oct 01, 2013
kavi_nskSep 16, 2013
coffeeknitterMay 01, 2013
3
By kuulei04 Blank
A doctor just put me on a 12 day steroid burst, tapering every 3 days. Wondering if anyone else ever tried this and ...
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cmh12777Oct 01, 2013
cmh12777Oct 01, 2013
Kim81769Sep 30, 2013
dfudgieSep 30, 2013
kailooaSep 09, 2013
17
By coffeeknitter Blank
Some time ago I suggestes a survey. Below are some questions I thought of. If you copy/paste the questions, and then ...
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ruostentatiousSep 23, 2013
OnemoreVancouverSep 22, 2013
aubie93Sep 18, 2013
ruostentatiousSep 15, 2013
kuulei04Sep 11, 2013
7
By aubie93 Blank
I'm afraid I'm about to have my first abscess rupture and I am terrified. My doctor told me to just call the office ...
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Sush560Sep 14, 2013
Veronica36Sep 04, 2013
2
By Apuk Blank
Hi Everybody even though I joined today,ive been following all from past year,thats when ive been diagonised with GM...
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kuulei04Sep 09, 2013
Veronica36Sep 05, 2013
2
By kuulei04 Blank
So shortly after getting GM I started to lose hair but in the past month I noticed I lose soooooooooooo much more hai...
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kailooaSep 09, 2013
Veronica36Sep 04, 2013
ruostentatiousSep 04, 2013
3
By kuulei04 Blank
I decided to go with healing naturally and started that journey in mid-April. Since around that time I have not had ...
1822062_tn?1317283366
ruostentatiousSep 03, 2013
Iba823Nov 04, 2012
JoJo45Mar 15, 2012
MrsDownieFeb 11, 2012
AiniZayanaFeb 08, 2012
8
By AiniZayana Blank
last week a breast specialist suggested i undergo mantoux test to rule out 'breast tuberculosis' (if i heard it corre...
4628530_tn?1369112686
ruostentatiousSep 03, 2013
fradgeJan 13, 2013
fradgeJan 11, 2013
fradgeJan 11, 2013
5
By pregnantandfrustrated Blank
I am 21 weeks pregnant. Over a month ago, this started with inflammation, inverted nipple. Progressively got worse. T...
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ruostentatiousSep 02, 2013
kuulei04Aug 31, 2013
2
By aubie93 Blank
I'm starting my prednisone today and I'm really scared - could anyone who has taken this medication for this conditio...
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Sush560Aug 30, 2013
1
By Kangalou Blank
Ladies, I've spent a significant amount of time reading the various posts, and, as I think many have found, not mana...
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Sush560Aug 30, 2013
1
By lisasf Blank
A friend of mine who is a practitioner of Traditional Chinese Medicine recommended that I try a product called Resolv...
5860291_tn?1379195535
Sush560Aug 30, 2013
brendy1115Aug 13, 2013
2
By Sush560 Blank
Dear All, I am copy pasting an email sent today morning to an office colleague: "It's a miracle. Homeopathy wo...
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Veronica36Aug 26, 2013
OnemoreVancouverAug 25, 2013
OnemoreVancouverAug 25, 2013
kuulei04Jul 17, 2013
HelpmyBFFJul 15, 2013
9
By barbados95 Blank
Hi ladies I wondered if anyone could answer this for me - I have had 2 bouts of IGM in 4 years and am currently in r...
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OnemoreVancouverAug 25, 2013
kuulei04Aug 13, 2013
Sush560Aug 10, 2013
Sush560Aug 04, 2013
Amy669Aug 03, 2013
19
By brendy1115 Blank
I was diagnosed with granuloma mastitis after three months of two ultrasounds, a needle aspiration and two biopsies. ...
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Ctran978Aug 18, 2013
jwinkeyJan 01, 2012
JoJo45Dec 30, 2011
allegromouse71Dec 12, 2011
Red11483Oct 10, 2011
17
By MargaretAnn1977 Blank
I'm not sure if this question can be answered in a public forum, but I'd like to start gathering the names of special...
1822062_tn?1317283366
By AiniZayana Blank
Hello everyone, Its been so long since i visited this group. I have had a baby :-) and he is 11 months now. Befo...
5860291_tn?1379195535
By Sush560 Blank
Like everyone else here, i am so grateful for this forum. At least now i understand that my fatigue and breathlessnes...
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Amy669Aug 03, 2013
Veronica36Apr 15, 2013
kuulei04Apr 15, 2013
3
By Veronica36 Blank
Hi all! again! I woke up with loads of questions today! My left breast is the one with active GM..in my last MRI (a ...
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