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Questions posted in the
Neurology and Neurosurgery Forum have been answered by doctors from The Cleveland Clinic Foundation.
Question Title: Second opinion on MGForum: Neurology Forum
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I have been dx with MG for 2 1/2 years. I had a thymectomy 2 years ago and have been on Mestinon and prednisone at varying doses. Recently, I have gotten worse, particularly with breathing problems. My neurologist does not have much experience with MG (I was her first MG patient.) I would like to talk with a neurologist experienced in treating MG. I don't want to change neurologists, necessarily, but would like another, more tested opinion. My questions are these: If I am willing to come to the Cleveland Clinic, is it feasible for me to speak at length with a MG specialist, and is it possible for that specialist to communicate with my neurologist? Also, will insurances generally cover such a consultation? (I do not have an HMO.) Additionally, is it possible to speak with an MG specialist in Florida, versus, Cleveland? Thank you.
Sorry to hear about your MG. Sometimes, it can be a difficult disease to maintain. There are other medications to try and also the possibility of IVIg and/or plasmaphoresis. It would all depend on your history and what levels of medications you are currently using. I would get a second opinion here at the Cleveland Clinic in Cleveland if the problem were my parents or myself. You can make an appointment with either Dr. Levin, or Dr. Shields. They are both very experienced in this disorder and would be happy to sit down and talk with you, and also communicate with your physician. You can call 1-800-CCF-CARE. Good luck with your MG. Sincerely, CCF Neuro[P] MD
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