Question Title: Foot spasm lasting three weeks

Forum: Neurology Forum
Topic: Fibromyalgia

Posted by CCF Neurosurgery MD on December 19, 1997 at 09:52:14:

In Reply to: Foot spasm lasting three weeks posted by Maureen on December 05, 1997 at 13:44:58:

: Fifteen year old daughter, diagnosed with fibromyalgia last March. Mono the year before, chronic throat infection the next year and tonsilectomy last January. Zoloft and physical therapy helpful, almost back to normal until seizures in Sept. EEG (24 hour) was done. We were told 99% sure not epiliepsy. Blamed on anxiety. Seeing Neurpsychiatrist. This is going nowhere. Original manifestation of the fibromyalgia included loss of sight temporarily, neck spasm, whole body tremor, migraine, temporary paralysis, weakness, fatigue, swollen glands, and a host of other ailments. Three weeks ago, spasm of right foot with toes curling under. This would last 18 hours a day beginning at night and ending in late afternoon the next day. This past weekend it lasted for three days straight. Neurologist put her on Valium until EMG can be done 12/10. Valium isn't working. Rheumatologist may retest for Lupus. Hard lymph nodes in face, ankle, and groin (fibromyalgia?). No fever. Today she cannot walk at all now that her left hip is painful enough to make her throw up. Her paternal grandmother and great-aunts (2) have been diagnosed with spinocerebellar degeneration. The docs are aware of this, but we just seem to be getting nowhere and passed back and forth. MRI was done last spring which ruled out SCD. After months of being told her recent symtoms may be stress related, they now suspect what I tried to tell them 10 months ago. We truly believe the FMS is secondary to something else. Frustrating! We have been urged by several people to seek out the services at CCF. (One of them even told us God lives there!) One year ago this was a child who was athletic, active, and thoroughly enjoying life. If you feel CCF would probably concur with her diagnosis so far, we will try to be patient with our specialists here at Childrens's Hospital. If you feel you might be able to do more for her, please let as know as soon as possible as we would like to make an appointment during her Christmas break. Thank you in advanced for your time.
Sincerely,

Joan Fisher

You daughter's situation is complicated. Issues such as these are difficult
to even begin to address over the internet. In such situations a good suggestion
may be to get a second opinion to be sure of the diagnosis and seek further
answers. If for nothing else, you will be reassured that your daughter is
getting appropriate medical attention.

An appointment can be made in the Department of Neurology at the Cleveland
Clinic by calling 216-444-5559. They will be happy to be of service.

Good luck.

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