Questions posted in the Neurology and Neurosurgery Forum have been answered by doctors from The Cleveland Clinic Foundation.

Subject: Slit Ventricle Syndrome
Forum: The Neurology and Neurosurgery Forum
Topic Area: Hydrocephalus
Posted by Mom of 12 y.o. w/spina bifida, hydrocephalus,etc. on May 14, 1998 at 00:30:56:


My 12 year old son with spina bifida, hydrocephalus, Arnold Chiari II
Syndrome, Tourette's Syndrome, ADD and Major Depression has very small
ventricles since he has had shunted hydrocephalus since 11 days old.
He will have very severe and long-lasting headaches (24 hrs is typical)
that appear to be slit ventricle syndrome. He has an old shunt site
(4th shunt now in place is 10 years old) which acts like a "pressure
gauge" and it is sunken in during the occurence of these headaches.
No nausea, vomiting, etc. Since his current shunt is 10 yrs. old and still appears to be working
(too well, it seems) should I investigate newer shunting options that
would allow drainage but inhibit "over drainage"? Are there newer
shunts that can do this? Since he didn't have much luck with his first
three shunts (tissue blockage), I am quite happy that this one is 10.
However, I really can't stand how he suffers with the slit ventricle
syndrome. What's new on this issue? Who's doing what? Good results?
Thank you.
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