Questions posted in the Neurology and Neurosurgery Forum have been answered by doctors from The Cleveland Clinic Foundation.

Question Title: Cerebral Cavernous Angioma

Forum: Neurology Forum
Topic: Neurology - General



ISO support/info organizations for cerebral cavernous angioma or cerebral
vascular diseases? If not, I am interested in starting one, but where
to begin? Thanks
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Dear Krista,

Sounds like a good idea to me. I don't know of any support group for patients
with cavernous angioms. Your best resource for other patients with cavernomas
would be your surgeon. He cannot give out names of people with cavernomas,
but you may be able to convince him to distribute flyers about such a group
and may give you names of other surgeons who could do the same.

Good luck.

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