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Subject: TRANSVERSE MYELITIS
Forum: The Neurology and Neurosurgery Forum
Topic Area:
Posted by Karen Deckard on June 17, 1997 at 18:50:19:
I was diagnosed in May 1996 with acute Transverse Myelitis. I have a
brother and sister diagnosed with it also. All 3 within a 2 1/2 year
period. We have had MRI's, spinal taps, etc. to rule out MS. We all have
residual numbness and pain of varying degrees. Two of us have pain in
chest wall, axilla, and back. The other has pain in legs. Do you see
cases that appear to be familial? Do you know of any case studies of
etiology being done? I suspect a genetic autoimmune cause for us.
What pain control methods work best? Among us we use a TENS, Tylenol #4,
and Duragesic patches. My sister ia allergic to codeine, Demerol,
and Duragesic. We have all been treated by Dr. Robert Taylor of OSU
Medical Center in Columbus, OH who sees us at Licking Memorial Hospital
in Newark, OH. We are very confident of his care, but wonder if there
is anything new to learn. I am an R.N. so you don't necessarily have to
use lay terms.
Thank you very much for this opportunity. Karen Deckard
gregdeckard@alink.com
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