Question Title: Adhesive Cystic Arachnoiditis Ossificans

I am curious as to the progression of Arachnoiditis. I understand that there are 4 (four) stages. I have been told I am at the 4th stage (diagnosed with Cystic Arachnoiditis Ossificans by pathology during my surgery). I had a cyst that flattened my spinal cord (3 1/2" by 1") following a MVA (1995). I have sinced progressed to "Severe Adhesive" also (diagnosed by 2 different neuroradiologists, a neurosurgeon and a pain doctor. My cyst was attached to the Cauda Equina, so I have the symptoms that go with that. My cord was compressed from L1 to L4. I have of course, constant back and leg pain, as well as the "feet in the ice bucket syndrome". My pain doctor has placed my on Neurontin, which has eased the leg and foot discomfort.
Does being in the advanced stages of Arachnoiditis mean I will continue to deteriorate?? IT seems my legs go numb much faster than they use to when I stand stationary or squat or bend. I also am gradually becoming unable to stay up as long as I once did. Thank you for your response. I appreciate your taking the time to share your information.

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Thanks for your question. The worsening of your symptoms are suggestive of
progression of "entrapment" of your nerve root (either intra-canal or at
the foraminal exits) by the adhesive process from the arachnoiditis.
I would recommend a re-evaluation by your neurologist or neurosurgeon if
the symptoms continue to worsen, since another surgical intervention might
be necessary.

I hope this information is helpful. Best of luck.

This information is provided for general medical education purposes only.
Please consult your doctor regarding diagnostic and treatment options.

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