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Questions posted in the
Neurology and Neurosurgery Forum have been answered by doctors from The Cleveland Clinic Foundation.
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Subject: Re: NF and cerebral vascular abnormalities?? Our daughter has NF-1 and is being evaluated for very frequent headaches. Her brain MRI is normal. We have read that there can be cerebral vascular abnormalities associated with NF-1. We are trying to get some more info on this. She will be seeing the doc again soon. Most of her doctors here are quite unfamiliar with NF-1 and we have had to "provide" a lot of info in the past in our experience with her health care concerning her NF. Any info you have on this would be appreciated-- ie- tests ect?? would a MR angiogram to look at the cerebral arteries be a good test to have done ? Thanks so much for your time!!
Dear Ruth, first of all you should bring your daughter to a neurologist/ped neurologist who is familiar with NF1. As you know NF 1 affects the brain in 15-20% of patients. THe vascular abnormalities that are associated with NF 1 include (involvement of the cerebral vessels are rare though) 1. Progressive cerebral artery occlbusion which may lead to stroke. Good luck to you and your daughter. |
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