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Neurology (Expert Forum)
Information on Cavernous Hemangioma
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Information on Cavernous Hemangioma
by Phyllis Catherine Madden, Nov 03, 1999 12:00AM
Hello, My Husband Was diagnosed with a Cavernous Hemangioma five Months ago. It presented with severe headaches and visual distortion, an E.E.G. showed an abnormality with frequent discharges of focal 3-5 Hz slowing in the left mid to anterior temporal region. An M.R.I. showed up a calcified mass which had recently bled of 2 cm. in size. It is in a very deep area of the brain and surgery could be very dangerous unless his life was threatened and then it would be tried. His treatment is regular M.R.I. scans and Tegretol to prevent seizures. My question is are there any other treatment or medication for this complaint or is it possible to live a long and reasonable life without intervention.
We live in the Republic of Ireland but would be willing to travel if any type of treatment were available elswhere.
Thank you
Phyllis Catherine
We live in the Republic of Ireland but would be willing to travel if any type of treatment were available elswhere.
Thank you
Phyllis Catherine
Doctor's Answer
by CCF neuro MD MM, Nov 03, 1999 12:00AM
I sounds like the approach being adopted in your husbands case is very reasonable. The regular surveilance with MRI scans keeps the problem under close scrutiny and Tegretol should prevent recurrence eof the seizures.
There is no alternative to this approach apart from surgery which has sensibly been deferred.
It is certainly possible to live a normal life with this problem,
it might never have even been discovered if it were not for the recent bleed.
I would suggest that you seek a further opinion if and when the possibility of surgery is mentioned ( it may never reach that point ). A procedure like gamma knife surgery might be appropriate in his case, in the meantime however it sounds like the plan is appropriate.
There is no alternative to this approach apart from surgery which has sensibly been deferred.
It is certainly possible to live a normal life with this problem,
it might never have even been discovered if it were not for the recent bleed.
I would suggest that you seek a further opinion if and when the possibility of surgery is mentioned ( it may never reach that point ). A procedure like gamma knife surgery might be appropriate in his case, in the meantime however it sounds like the plan is appropriate.
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Mycoplasma are undetectable via standard lab procedures as they die so quickly. Mapping routes and high densities for intervention in real time may save mobility for many patients.
There are some connections to HPV / adapose / connective tissues and bacterial migrations /spread, MRI traces of combined elements or overlapping separate models have promise of high diagnostic accuracy /for treatment protocols.
Are there any research projects of mapping Human bacteria with MRI currently under study?
Thank You for your time and response
Will
Approximately 3 years ago I suffered a stroke which involved a hemorrhage in the brain. After many visits to the hospital and numerous MRI's, the problem eventually was diagnosed by a neurologist as a cavernous malformation. (Initially the bleeding was suspected to have been caused by a tumor in the brain.)
Within a month or so of my original stroke, I began to experience seizures...and tegretol was prescribed as my anti-seizure medicine. The first seizures involved a temporary numbnous in one of the arms, a drooping lip, a drooping eyelid, and a temporary loss of speech. My dosage of tegretol was increased from 1 pill a day, to 2 pills a day, and finally to 3 pills a day. 3 tegretols a day seemed to prevent any further seizures until December 10 of last year.
On December 10, 1999, I passed out in a restaurant. I was unconscious for 5 minutes or so. Paramedics were called and they revived me with oxygen. Because of my stroke history, they insisted on taking me to the emergency clinic. Neither the paramedics nor the doctor in the emergency clinic could find any apparent cause of the passing out. Nor could my regular doctor the next day. In each case, all my vital signs were normal. My regular doctor suspected, however, that the passing out was another form of seizure, different than any previous manifestations of a seizure.
Last week, I took another MRI as part of my annual medical checkup. The neurologist told me that he could see signs of a new bleed in December. Moreover, he suggested to me that the time for a surgical removal of the cavernous malformation had come. But, the final decision should be made by me because I am 74 years old this year. If I do not have the cavernous malformation removed, I am likely to have more frequent and more serious seizures. On the other hand, he cannot tell how many years of a quality life I will have even if the cavernous malformation is removed. (Except for the cavernous malformation problem, I am in excellent health and physical condition.)
The cavernous malformation is in the left temporal area. I would guess that it is located about inch or so below the skullbone.
What would you recommend that I do about surgery vs. just letting the malformation remain in place and hoping that the tetretol will prevent a seizure so bad that it will not result in either death or a major paralysis? I am looking for another neurologist's insight.
Bert