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Neurology (Expert Forum)
Lymes?
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Lymes?
by jan, Jan 10, 2000 12:00AM
I just found out a rash I had 2 summers ago very neatly fit the description of the rash assoc. with Lyme's. I was tested, but it was neg. (dr. never saw the rash). I have been doctoring for over 1 1/2 yrs. with a neurologist for dizziness, fatigue; hearing,but not understanding; feeling like I have a brain fog, while having that fog feeling I can't concentrate, hold a conversation, talk or spell well. I lose my balance once in awhile and I get a wave feeling in my head that feels like it is going to knock me over. I had a sleep study,blood work, EEG, EMG, 24 hr. holter, echo, and finally a tilt table. They have found I have Inappropriate Sinus Tachycardia and neurocardiogenic syncope. I, also,have mild MVP with mild MR and TR. Since starting treatment for these I feel much better, but I still have my days of fatigue, although they aren't as frequent or 1/2 as bad. I, also, have some joint pain from time to time. I've always contributed that to Raynaud's. Could this possibly be from Lyme's, most people seem to suffer with more symptoms? Have you ever heard someone describe a wave going from back to front on top of their head? Sorry so long. Thank you.
Doctor's Answer
by CCF Neuro[P] MD, RPS, Jan 10, 2000 12:00AM
Dear Jan:
The typical rash seen with Lyme can also be seen in other skin related diseases or entities. The first question is whether you live in an area associated with Lyme disease. It would be rare for someone who lived in southern california to come down with lyme. Second, what is your lyme titer? Lyme seems like it can mimic alot of different disease entities. If you think that you might have lyme, by all means go get tested. We have seen patients with many different types of disorders comment on the feeling of a wave (usually of pain) over their head. Many of these patients have migraine or a migraine variant. Some of these patients have an autoimmune disorder (Raynaud's would qualify). So, I would talk to your rheumatologist or neurologist and see what they think, given your disease entity. The heart problems can also cause many of the symptoms you describe.
Sincerely,
CCF Neuro MD
The typical rash seen with Lyme can also be seen in other skin related diseases or entities. The first question is whether you live in an area associated with Lyme disease. It would be rare for someone who lived in southern california to come down with lyme. Second, what is your lyme titer? Lyme seems like it can mimic alot of different disease entities. If you think that you might have lyme, by all means go get tested. We have seen patients with many different types of disorders comment on the feeling of a wave (usually of pain) over their head. Many of these patients have migraine or a migraine variant. Some of these patients have an autoimmune disorder (Raynaud's would qualify). So, I would talk to your rheumatologist or neurologist and see what they think, given your disease entity. The heart problems can also cause many of the symptoms you describe.
Sincerely,
CCF Neuro MD
Was your lyme titer negative or equivocal (neither positive nor negative)?
Second to the Neuro,
I have some similar symptoms, but I also get burning througout me body, twitches, tingling sensations, ear and throat problems and feelings like one side or the other of my whole head and face are going to go numb. I saw 3 neuros who all agree this cant be neurological. My lyme titer was done 3 differnet times. The first 2 times it came back neither positive nor negative (something called equivocal?) The third time it did come back negative. What could these test results mean?
Raynauds is a manifestation of a collagen vascular disorder. It results from spasm of the vessels in an extremity. The spasm causes the flow of blood to stop for a very short time and as the blood returns to the area, color changes of pale to blue to red occur. Along with the color change, pain or numbness can arise. The spasms are associated with changes in weather or temperature. Yes, there is a genetic component but it is not a simple one gene disease.
Sincerely,
CCF Nerro MD
CCF Neuro MD