Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum.  ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Neurology  (Expert Forum)
 | 
Nerve Damage, Poor Circulation, or What?????
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury

Nerve Damage, Poor Circulation, or What?????

by aimee, Feb 01, 2000 12:00AM
Two years ago I began having strange shaking sensations in my pelvic and sacral areas.  When I would close my eyes to sleep, I would feel like I was swinging back and forth.  I was later told I had had an inflammation caused by sitting in the same position for many many hours and not moving around and that now the skin was "stuck" to the underlying bone and muscle and tugging on the nerves.  I had a series of seven cortisone injections.  All tests were normal, except a slight anemia--eleven.  I could get the shaking to stop if I moved around enough during the day but as soon as I sleep--there it is again.  When I first wake, it feels like a pulse on my tailbone, only very strong.  One hour on an exercise bike or an hour's walk and I feel better, only to have it come with sleep again?  I have a little pain in the area, but the pain feels like it's in the skin--nothing bad, though, and the pain does increase with movement.  Do you have any idea about what this could be?  I, myself don't believe I ever had an inflammation.  I do not feel normal pain and discomfort and did sit in one position for up to twenty hours per day.  It definitely seems to be something to do with circulation and nerves though.  Could it possibly be psychosomatic?  I have been under stress.  Any help or direction you could give would be very appreciated.  Thank you.

by CCF Neuro[P] MD, RPS, Feb 01, 2000 12:00AM
Dear Aimee:



Sorry to hear about your shaking.  I really doubt that it is inflammation.  It might be several things, restless leg syndrome, low B12, etc.  What you need to do is to see a good neurologist and get a good examination, some lab work and see what he/she says about your condition.  I am sorry that it is so difficult to give you more information, but without examining you the internet does not allow a very good medium for diagnosis. There is always the possibility that it is psychosomatic, but rule out the other stuff first.



Sincerely,



CCF Neuro MD
Member Comments (27)

by Decus, Feb 02, 2000 12:00AM
I am a 33y/o male having prolapsed disc at L5/S1 which caused serve pain in my left leg for about a year. I went through disectomy  on 10/Dec,99 . Everythings fine but 20 days later, I started to experience numbness and mild pain in both legs. On 20,Jan,00, I have anther MRI which show imflamed s1 nerve  roots and a lot of imflamed post-surgical tissues. My doc told me that's the casue of my feeling on both legs. By then, My doc told me to do PT and I follow. After a week of PT, 27/Jan, I started to have some feeling of urinary urge. This lead to ejectculation at nite, 2 times. I stopped PT but my doctor told me not to worry and this is a response from PT.





        My question are:



        1. Do S1 nerve roots related to bladder control?

        2. Do you think inflame on S1 nerve can casue that?

        3. if 2 is yes. how long to get it settle down?

any estimation?



        I am now offered NSAID, LODINE 400mg, but it only help my legs but not on my urinary urge feeling.



        Jim

by Decus, Feb 02, 2000 12:00AM
I am a 33y/o male having prolapsed disc at L5/S1 which caused serve pain in my left leg for about a year. I went through disectomy  on 10/Dec,99 . Everythings fine but 20 days later, I started to experience numbness and mild pain in both legs. On 20,Jan,00, I have anther MRI which show imflamed s1 nerve  roots and a lot of imflamed post-surgical tissues. My doc told me that's the casue of my feeling on both legs. By then, My doc told me to do PT and I follow. After a week of PT, 27/Jan, I started to have some feeling of urinary urge. This lead to ejectculation at nite, 2 times. I stopped PT but my doctor told me not to worry and this is a response from PT.





        My question are:



        1. Do S1 nerve roots related to bladder control?

        2. Do you think inflame on S1 nerve can casue that?

        3. if 2 is yes. how long to get it settle down?

         4. how long, any estimation, for the imflamed nerve root to recover?



        I am now offered NSAID, LODINE 400mg, but it only help my legs but not on my urinary urge feeling.



     decus

by aimee, Feb 02, 2000 12:00AM
I really appreciate the fact that you're having a problem, but you need to get your own thread.  I know it's hard to post on this forum--I had to wait about one year, but this is MY thread.  Please don't use it for your own questions and change the subject.  Thank you and I hope you feel better.

by Aimee to CCF Neuro, Feb 02, 2000 12:00AM
To CCF Neuro



I am sure it's not restless leg syndrome.  I exercise about three or four hours per day and feel fine.  When I lay down to sleep, I don't feel the urge to move my legs or walk around.  In fact, I feel pretty good until I sleep.  If I fall asleep for just five or ten minutes the shaking, popping, etc. is back and it will not leave until I exercise for at least one hour again.  I forgot to mention in my original post that one year ago my former doctor told me to use ice on the area--as much as needed.  I used ice all day for two months before I found out this could be harmful.  Could this have anything to do with the problem?  Could the ice have harmed the tiny sensory nerves or the tiny capillaries in the skin so they can't dilate properly?  Unfortunately, I live in Europe and cannot see a neurologist or any other specialist without a referral from my GP.

by steve, Feb 02, 2000 12:00AM


Hi Aimee,



Sure sounds like a circulation problem to me and did you know that poor circulation can cause the nerves to shake--they are undernourished!



Since you can feel the shaking, my guess would be that the circulation problem is only in the superficial capillaries and not the deeper veins and, although it is very annoying, it would not be dangerous.  



Exercise might initially make you feel rotten (i.e., more shaking) but it is the only thing that will bring more blood and nourish those nerves!  And as the Neurologist says, B12 is good.  It's water-soluble, by the way.



If it were me, I'd exercise like crazy.  Hope I've helped and good luck!



Steve

by CCF Neuro[P] MD, RPS, Feb 04, 2000 12:00AM
Dear Aimee:



Restless leg usually only occurs as you sleep.  Since your so sure it is not restless leg we will leave that thought.  I am not sure what you have.  The ice will usually not cause long term damage.  I would not think that your symptoms can be blamed on ice.



Sincerely,



CCF Neuro MD

by Aimee to CCF Neuro, Feb 04, 2000 12:00AM
Now that I know restless leg only occurs during sleep, I think that could be it.  At least I'm not sure it's not anymore.  I was mistaken in thinking it occurred at bedtime when the patient was awake.  But can restless leg occur in the buttocks and on the coccyx?  That's where my shaking is.  I always wake with this shaking and exercise helps.  It can be like a pulse or just shaking.  I don't feel the need to move, but moving helps.  Sometimes it feels like corn popping under my skin and I can actually feel it with my hand.  Thanks for letting me know about the ice--I won't think about that anymore.  Could it be circulation though?  I may have forgotten to say that whatever I feel in my pelvic