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Neurology (Expert Forum)
Mollarets Meningitis
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Mollarets Meningitis
by CGTMHI, Dec 15, 2000 12:00AM
, Dec 15, 2000 12:00AM
I have been diagnosed with mollarets menengitis. I have had viral menengitis 19 times over a period of 10 years.
I would like to find others like myself, or a cure if there is one out there. Please help me. I feel like such a freak.
Thank you for your help
Patty
Seattle Washington
I would like to find others like myself, or a cure if there is one out there. Please help me. I feel like such a freak.
Thank you for your help
Patty
Seattle Washington
Doctor's Answer
by CCF Neuro[P] MD, RPS, Dec 15, 2000 12:00AM
Dear Patti:
I am sorry to hear about your recurrent symptoms. Mollaret meningitis is usually diagnosed by exclusion of recurrent bacterial meningitis, recurrent viral meningits (e.g. Herpes), sarcoidosis, hydatid cyst, fungal meningitis, intracranial tumors, Behcet syndrome, and Vogt-Koyanagi-Harada syndrome. Unfortunately, there is no therapy for shortening the attack or preventing fresh attacks. One usually has remission after 3-5 years, so having the symptoms for 10 years might indicate that you might have another problem (e.g. Herpes). But, I can't tell over the internet. Again, I am sorry that your having these symptoms.
Sincerely,
CCF Neuro MD
I am sorry to hear about your recurrent symptoms. Mollaret meningitis is usually diagnosed by exclusion of recurrent bacterial meningitis, recurrent viral meningits (e.g. Herpes), sarcoidosis, hydatid cyst, fungal meningitis, intracranial tumors, Behcet syndrome, and Vogt-Koyanagi-Harada syndrome. Unfortunately, there is no therapy for shortening the attack or preventing fresh attacks. One usually has remission after 3-5 years, so having the symptoms for 10 years might indicate that you might have another problem (e.g. Herpes). But, I can't tell over the internet. Again, I am sorry that your having these symptoms.
Sincerely,
CCF Neuro MD
Your illness sounds horrible! I wished I had some positive feedback/encouraging feedback to give you. Unfortunately, I do not have any, but my heart goes out to you for having to struggle with what sounds like such a tragic illness. Are you in a position to go for another opinion at some leading research center (i.e. Cleveland Clinic, Johns Hopkins, Mayo)? It seems to me that maybe your illness could be better defined and possibly treated. I cannot imagine what you have had to endure over the last 10 years. My thoughts and prayers are with you.