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Neurology (Expert Forum)
symptoms worsing
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury
symptoms worsing
by lizbeth219, Dec 19, 2001 12:00AM
I had a normal neuro exam and a normal emg two months after starting twitching. The neurologist said I WAS SUFFERING FROM EXTREME ANXIETY and my own GP told me I was obessive and compulsive about having ALS .Since then two and half months has passed and the twitching has trebled, MY LEGS NEVER STOP MOVING , TWITCHING , TIGTHING, my face never stops twitching and feels like a spiders web is stuck on it, tickly and itchy , my head my scalp is tighting and feels my hair is standing on end AND THEN JUST MOVING BY ITS SELF also it feels like my muscles are tigtening and then undoing all the time, some times the muscles hold for a second, sometimes hours, it does not hurt, the skin feels sore, IT CAN BE ANY PART OF MY BODY, I CAN SEE THE TWITCHES BUT I also get the sensation that the muscles are moving all over the place but when I LOOK AT MY LEGS i can see no movement-its like the muscles are dancing . other time the muscles feel tickly i GET CRAMP IN MY FEET BUT LESS THAN I used to but I ALSO GET SHARP PINCHING SENSATIONS.now my right leg feels shaky at the knee and I FEEL IT IS GOING TO LET ME DOWN. i walk a few miles every day , can hop on one leg , stand on one leg and rise from a squating position, it even feels shaky and week when i am sitting down Can you give any words of advice. My anxiety level are sky high even though I am on anti anxiety medication
THANKS IN ANTICIPATION
reza
reza
THANKS IN ANTICIPATION
reza
reza
Doctor's Answer
by CCF-Neuro-M.D.-JT, Dec 21, 2001 12:00AM
In theory, a normal EMG and neuro exam are reassuring that this is not ALS. Weakness and muscle wasting in a certain distribution of your body is more indicative of ALS then isolated twitching in the setting of a normal workup. As your anxiety is quite palpable in your letter, it may be helpful for you to see your neuro and GP docs again and let them know what you are going through. The neuro doc could always examine you again just to make sure that nothing has changed. And if everything checks out again, consider seeing a professional to help you deal with the anxiety. A medication called klonopin may help both your feelings of anxiety and the twitching.Good luck.
I am 29, and in very good health (or so I thought).
It started with my left shoulder muscle that turned a dull weak/numb, and within a few days my left arm and hand became dull weak/numb...very strange dull weakness/numbness, though all sensation is still there. I started noticing it on the left side of my face afew days later, which kinda feels like Elmer's glue was rubbed onto the skin. Within a week it spread to my right calf, and slowly began to move up my leg to my hamstring and some of my quad. Its more of a muscle numbness (or slight weakness), as all sensation is there. Within a few weeks I started getting incredible muscle twitches all over my body, including my face, back, shoulders, hands, forehead, temples, everywhere. Some so bad they keep me up at night. Mainly in the calves and feet, but it looks horrible. And I do notice slight weakness in the affected muscles.
I've been tested for everything (Lyme, Syphillis, Hepatitis, HIV, etc), and all blood work came back normal except for very slight liver and thyroid abnormalities...so slight the docs stated it was insignificant at this time. My neurologist is throroughly convinced its not ALS, since my EMG came back normal. He's also ruled out other diseases like MS (normal MRI and CT Scan), MG, etc.
I did notice that the symptoms are twice as bad when my anxiety level is sky high. At this time, they still do not know what is going on...but I've since calmed down and accepted that it may, or may not be a life threatening disease...who knows at this point. However, the symptoms have subsided somewhat, but the muscle twitches still plague me, and on some days are horrible!
Keeping my anxiety level down (which I know is not totally under my control) really helps.
Jeff
REZA