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Neurology (Expert Forum)
Nueropathy ???
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Nueropathy ???
by rusty2000, May 07, 2002 12:00AM
I have been suffering from undiagnosed neurological symptoms for several years now.Symptoms include numbness in upper legs,occasional tingling in face, feet, and tingling can pop up anywhere occasionaly (back,forehead,lips, and toungue just to name a few)These symptoms although aggravating are mild in nature.These symptoms have remained largly unchanged over the last few years untill recently.Now my right foot feels like its FREZZING and wet even though its warm and dry to the touch.This sensation comes and goes and seems to get worse while sitting for long periods of time.Seemsto get better upon walking or on warm days.Does this sound like peripheal neuropathy? I have not taken an HIV tests due to the fact a positive result would possibly jepordize my career, and the fact im scared to death to take one.I am not in a "high" risk group for HIV so my doc thinks HIV is extremly unlikly.Do any of my symptoms sound suspicious for HIV desease? How does HIV related neuropathy usualy begin? Is it possible to have symptoms like numbness and tingling and NOT have anything serious going on.
Doctor's Answer
by CCF-Neuro-M.D.-JT, May 07, 2002 12:00AM
Your case does not sound typical for HIV neuropathy which usually becomes symptomatic later on in the course of the disease. This means that people usually have other manifestations of HIV like infections before they experience neuropathy like symptoms. And the symptoms of neuropathy, (like numbness and tingling) are usually in the lower parts of your legs and arms rather than the upper parts. It sounds like you may have a peripheral neuropathy which can be caused by numerous things such as diabetes, vitamin deficiencies, electrolyte abnormalties etc.., but HIV is certainly NOT at the top or even near the top of the list unless you have risk factors such as multiple sexual partners and needle sharing in IV drug use.Good luck.
I also have very similar symptoms,along with others such as fatigue, visual disturbances, foggy head and others.
What has your doctor given as a possible explanation for your symptoms. Has he done any blood tests, in particular has he checked your vitamin b12 level. I don't know what is causing your symptoms but there is no doubt that a b12 deficiency can cause great damage to the central nervious system if it goes undetected.
Ask if he has checked your b12, and don't accept that it is normal without knowing what the actual result is. I know many doctors do not accept that you can have a problem if it is above the lower normal level (about 200pg/ml in the US).
If it is anywhere in the 200's ask to have your methylmelonic acid and homocystein levels checked, they often can detect a b12 malabsorbtion problem when the serum b12 level still shows within "normal levels" if there is such a thing with b12.
It may be nothing to do with your problem but it is definately worth checking out.
Best of luck
Graham
Hi, I'm 27 years old and last year in October 2001 I started having a stomach pain/disturbance that ended up in acid reflux (U know the gnawing pain in your throath that feels as if a semi-tire spinning slowly) . I took Prevacid and it got fixed. 2 months later my symptoms:
1. Pain in the abdomen area (left and right) and a feeling of nausea. I feel as if I've been poisioned 1.5 months of constant sickness. Went to doctors (same routine depressed, it's in your head etc.) I also started to have hypertension and panic and depressive attacks.
Not because I was unhappy but due to the sickness.
I also had a 38 hours insomnia that accompanied all of this. I knew then that I'm about to step into something very unormal with my body. I work out and I'm in good shape so this is not an issue.
2. Not much later my nausea started to expand and I started to have some unexplained pains inside my head just as electrical pulses and sickening pressure at the base of my skull that felt as if I'm about to faint. The headache seems to be worsened after meals. I also had upper/lower jaw pain that was running through my teeth (randomly) as if I had taken severe bites out of ICE/LEMON. This is very weird since I was never sick in my life. I've been on blood pressure medication and serotonium resoration (paxil) I still believe that all this malfunctions are comming from the middle of my body (abdomen area) I don't know if I have IBS or what in the world I have. It seems that if I allow air into my stomach and expunge it out I get a little relief (that one needs practice :-)) I've been in this condition for about 8 months already and still don't know what's going on. #2 also looks loose and not like it used to be before. I'm also affraid to drink water (paranoia of lead poisoning etc) Diet coke seems ok.
3. February 2002, I started to have muscle spasms and involuntary twiches (small scale). When the nausea was severe; which it was for me for about 1.5 month, all I did is sit around and do absolutely nothing. I looked ok from the outside but something very weird was going on inside. I'm in good shape and nothing is visible from the outside. I did notice when I had severe pains inside my brain that my pupils were contracting and expanding visibly like my heart beat. Very odd.
4. Latest news, March 2002 now I have something new. Pain in my head is 80% less and the new adition is I get dizzy as if someone unplugs me for just a second. I get a sensation of motion sickness that lasts for just a fraction of a second and comes at random times.
My teeth only hurt when I go to sleep (upper rabbit teeth) they feel as if someone is applying current to them and mostly when I lay on my back. What in the world is wrong with me.
5. I started trying pot as some friend suggested. Yes it does help the nausea (more like it blocks it) but I get the "current" like pain inside my skull and the jaw/teeth pain instantly after smoking. This seems to be triggered by the weed. It does help me go through the night but with these side effects.
I don't want to smoke weed, I'm not a drinker nor a smoker. Nausea seems to come and go and sometimes i feel sharp stabs around the liver area and sometimes in the opposed side in the pancreas area. Most of the time when I'm nausiated it comes from those two places.
I did notice that if I interact and do things the pain goes in the background but I think that's about it. I just forget about it. I'm already sick entire of this weird illness. If anyone has any idea what's going on plz e-mail me.
QUICK DESCRIPTION OF MY SYMPTOMS.
A. Pain in the spleen area.
B. Pain in the pancreas area.
C. Pain in the middle upper abdomen.
D. Pain in the liver area.
E.