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Neurology (Expert Forum)
Trauma related CIDP
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Trauma related CIDP
by bazza, Jul 12, 2003 12:00AM
Hi my name is Bazza, Is there anyone out there who can help me? I had an industrial accident in 1999. I fell into a inspection pit approx 2mtrs deep. I suffered multiple injuries including a suspected wedge fracture to my spine. A week or so later I started to experience pins and needles and numbness in my hands and feet, over the next few months my condition worsened to the point where I started to collapse. Following hospitalisation and numerous tests I was then diagnosed with CIDP. As there is insufficient information and lack of research into trauma related CIDP I would be interested to hear from anyone who has suffered a trauma especially an injury to their back and ended up with this condition.
Doctor's Answer
by CCF-Neuro-M.D.-CS, Jul 15, 2003 12:00AM
I am not aware of any link between trauma and chronic inflammatory demyelinating polyneuropathy. It is not uncommon for these symptoms to begin slowly , and for patients not to notice them immediately. Then following an injury, one is more attentive and notices the symptoms. The other possibility is that you had the acute form of inflammatory demyelinating polyneuropathy which became chronic. There are also pure sensory forms of this disorder. I hope this helps
For me, the turnaround was dramatic. Fifteen minutes after putting a tablet under my tongue my whole conciousness changed. One hour later, the nonstop abnormal severe fatigue of 15 years was gone. The depression of a lifetime was gone. The muscle pain was mostly gone in a week. I just got back from a 3.5 mile walk in 45 minutes. Siz weeks ago I could walk 1 mile in 15 minutes. I am building muscle again after 25 years of deterioration. In some ways I feel the best I ever have in 55 years. Of the 30 or 40 other symtoms of various neuropathies, most are changing. I'm tasting flavors in food I've never tasted before in everything from carrots to coffee. I'm smelling with more detail and distinctions. Touch is becoming more pleasant as I feel aspects of it I never felt before.
Good luck. I had my first B12 crisis at 20 months induced by riding my tricycle down the basement stairs and breaking my collarbone. Maybe you won't have a lifetime of suffering knowing qabout this vitamin.
However, I strongly suspect I do have this, if not this, something pretty dang close to it.
Basics: Head Injury @work on 03.31.02. Old nail meeting the frontal part of my skull. Punctured. Carrie on Prom Night. There is a brief period of which I have no recollection, right before finding my face to the ground.
About 20 minutes before that, my Dad called to tell me my Aunt had died from cervical cancer, so the wound was kinda secondary. Wanted the colleges and co-workers branishing semi-clean towels to stop fussing so I could just leave and make travel plans. Funeral was hard. Had a beloved, best-friend Grandmother wailing in my arms for about 5 days after that, so the only time I really thought about it was when the bandage felt droopy.
Approx one week later, it began. Pins&Needs, tingling, numbness, and limb heaviness whenever I bent over. Like an anvil was on my chest Also -- my breathing was getting shallow, and there was a slight 'heartbeat in my ears' feeling, as well. (Was later told by Zombie-Dr#2 that I had asthma, after breathing into a tube. [!] The Inhaler sales rep was there putting in his face time, so...)
Offtrack again. As the next few weeks passed, I only had to bend at a lesser level to get the same pain sensations. Then the sensations became more intense. Then, I didn't have to bend at all to get the same feeling. Of course, now is the era where it gets worse without much provacation. Increased electricity, spreading upwards thru the feet, hands and sides.
Ok -- getting ouchie. Hope this helps in some way.
Bazza