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Neurology (Expert Forum)
ilioinguinal neuropathy
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ilioinguinal neuropathy
by trimonar, Nov 18, 2004 12:00AM
I am 34 years old, had a complete hysterectomy with ovary removal in july of this year, Came out with damage to what the doctors believe to be the ilioinguinal nerve. SEVERE and chronic pain and burning. HOT IRONS TO abdominal area down through legs and breast, in back. On five meds to ameliorate pain, very successful compared to original pain. Going to Physical therapy for bio-feedback. I am now having pain in pudendal area. I refuse to get a nuerectomy.
Questions are: If the cause of the nerve damage is unknown; IE: a cut,nic or complete severed or entrapped.. How do you know how it is going to regenerate/heal? Can an entrapped nerve heal without surgery? Does is matter after a period of time how the nerve is damaged because it centralizes? Does the nerve pain travel and effect other nerves or is the pudendal nerves also an effect of the surgery?
I live in small town in vermont with no real experts cant find much information about this.. nor can I find anyone that maybe is familiar with how this works?
thank you for your time.
lisa
Questions are: If the cause of the nerve damage is unknown; IE: a cut,nic or complete severed or entrapped.. How do you know how it is going to regenerate/heal? Can an entrapped nerve heal without surgery? Does is matter after a period of time how the nerve is damaged because it centralizes? Does the nerve pain travel and effect other nerves or is the pudendal nerves also an effect of the surgery?
I live in small town in vermont with no real experts cant find much information about this.. nor can I find anyone that maybe is familiar with how this works?
thank you for your time.
lisa
Doctor's Answer
by CCF-Neuro-M.D.-CS, Nov 22, 2004 12:00AM
The pain you have described involves the abdomen, legs, breast, and back. This area would not be explained by an injury to the ilioinguinal nerve. Without examining you and reviewing your history I cannot make a clinical diagnosis. It would be reasonable to have a second opinion at an academic center. The University of Vermont may be an option, otherwise a trip to Boston, Dartmouth, or Albany may be reasonable.
Your pain is widespread, and therefore I do not think it is likely to be explained by one nerve injury. However, regarding recovery, partial nerve injuries and nerve compressions have a better outcome. If a nerve is chronically entrapped and part of the nerve dies, then a surgical release may only help prevent further damage. Good luck.
Your pain is widespread, and therefore I do not think it is likely to be explained by one nerve injury. However, regarding recovery, partial nerve injuries and nerve compressions have a better outcome. If a nerve is chronically entrapped and part of the nerve dies, then a surgical release may only help prevent further damage. Good luck.
Lisa