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Neurology (Expert Forum)
cure for whatever is wrong permitting horible feet pain
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury
cure for whatever is wrong permitting horible feet pain
by FRANCIS R, Dec 23, 2004 12:00AM
DOCS,PLEASE RELOOK AT MY QUESTION OF YESTERDAY AND FOLLOWUPS. WITH MODERN MEDICINES AND ALL THE NEUROLIGISTS IN AMERICA WE SHOULD BE ABLE TO FIND.PLEASE DON'T GIVE ME THE"WITHOUT SEEING YOUR SON AND REDOING THE TESTS STUFF" WE HAVE BEEN SUFFERING TOO LONG, I PRAY THAT YOUR SONS NEVER HAVE THIS. OLDDAD
Doctor's Answer
by CCF-Neuro-M.D.-CS, Dec 23, 2004 12:00AM
Unfortunately in many patients with peripheral neuropathy a cause cannot be identified. I wish I could be of more help and I understand your frustration. Maintaining normal blood sugars is important to help prevent further damage. If you have not been evaluated at a large academic center it would be reasonable. Based on his history, examination, and test results other possibilities may be discovered, and based on the medications he has tried (including maximum dose and duration of treatment) other medications can be recommended. Good luck
where are you at, geographically, that you are out of neurologists?
I suggest seeing a pain specialist for your son. After 5 neurologists, a more clear diagnosis should have been done: peripheral neuropathy is a very general term.
If a needle EMG test was performed (was it?), an MRI done (granted, his does not look like a normal MRI) and Neurontin tried -- your son's pain should've been explained. Ultimately, however, peripheral neuropathy is difficult to treat. If needed, however, there are plenty of other medications out there that can be tried. Psychological help is also quite effective especially for a child his age.
How long has your son been suffering with this?
I have to say that there was one item in the MRI that looked somewhat concerning. I suggest that a pediatrician should take a look at your son and the MRI, paying specific attention to the fact that there was some "loss of signal in the bones" . There are certain disorders that can mimic peripheral neuropathy but until you address them, the pain will not subside.
Good luck!