Pain in upper left back and left arm and hand parasthesias
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I am admittedly a layperson, but am somewhat educated in matters of the brachial plexus due to my own experience. I developed brachial neuritis following a delayed hypersensitivity reaction to the Td vaccine, a severe reaction over two years ago. I think you are right to question this dx -when the pain first hits, it is horrific, 9+ on a scale of 1-10, followed by weakness and muscle wasting of the shoulder girdle. The pain is NOT positional, the strongest meds don't touch it, this severe pain resolves after a few days to a few weeks though mild to moderate pain may persist for months. The muscle wasting is pronounced and affects muscles from more than a single nerve root, but only some muscles of any one nerve root - this "patchy" presentation is classic for brachial neuritis, and should be observeable on an EMG wihtin 3-4 weeks after onset.
Due to the brachial neuritis, my rt shoulder dropped almost 2 inches; this, the inflammation/swelling and some congenital abnormalities which made me predisposed, led to my developing Thoracic Outlet Syndrome. The nerves were compressed at the scalenes, between the clavicle and first rib (due to the drooping shoulder, the clavicle is also lower) and later it was discovered the medial cord was also compressed at the pec minor. I had EMG abnormalities and have pretty severe atrophy in the rt hand, esp. the interosseous muscle between the thumb and index finger.
Although TOS is controversial, if there are EMG abnormalities then something is affecting the nerves obviously. I belong to a TOS web-based forum, and many members are nurses, they seem to have TOS due to the strain on the brachial plexus from all the heavy lifting of patients - either a stretch injury, or trauma to the scalenes, causing inflammation and scar tissue. Continuing to work through the pain until they could no longer function likely added to the original trauma, inflammation and scar matter.
Your problem may be related to your c-spine issues, however you don't mention neck pain? TOS IS positional, and worse at night, often sleeping on your back is the only way to get relief. Your mention of sx being relieved by forward flexion of the head and arching the back particularly interested me, as with TOS, this forward posture is what we instinctively seek to relieve strain on the brachial plexus, the pecs are also very tight and tender due to the inflammation.
There are very reputable Drs who do believe in TOS of all types, Dr Allan Belzberg at John Hopkins is one. If you are on the East Coast, Dr Allen Togut in Wilkes-Barre PA specializes in dx and managment of TOS patients, he spends 2 1/2-3 hours on each new patient exam and is incredibly knowledgeable. He does not perform or advocate surgery, and is a great asset for w/c cases if you do have TOS.
I sincerely hope you do not have TOS, but wd hate for you to have c-spine surgery only to find the pain continues. If you want more info or have questions, visit http://brain.hastypastry.net/forums and look for the Thoracic Outlet Syndrome Forum - there's a wealth of articles, a Dr's list and many members with similar symptoms, including several nurses.
Best wishes,
beth
My second MRI came back essentially normal, except for a mild thoracic scoliosis convex to the left. No illnesses, no injuries, vaccinations, or infections. I have no muscle wasting, no change in muscle strength. I do not think it is brachial neuritis nor TOS. What is disturbing is I cannot get in to the neurosurgeon for several weeks, in the mean time I am in pain (sometimes a 10 on the 0-10 scale) and cannot work, and I have constant numbness in my index finger along with the positional numbness I experience in my hand, forearm, and front and back of upper chest. I am going to seek a second opinion from someone in a Boston hospital. I cannot be out of work for months.