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Neurology  (Expert Forum)
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Could this be MS?
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Could this be MS?

by Tone37, Jul 12, 2005 12:00AM
Hello,



I was just looking for ANY feedback regarding my current situation that may help!!!  I'm a 37yr old female originally from the UK and now living in Ont/Canada.  I've had MS like symptoms for approx 5 yrs now.  I've had 2 normal brain MRI's and normal bloodwork (nothing out of the ordinary according the DR).  I'm scheduled for a spinal MRI end of August and EVP testing also.  I've been up and down this possible MS rollercoaster for 5 yrs now and I'm feeling extremely frustrated - just looking for some kind of answer.



My symptoms are tingling in right cheek (face), hand and foot, optic neuritis (one episode) in right eye, EXTREME fatigue where after 1 hr of normal activity my body feels like lead, right arm goes through periods where I can't lift it along with aching pain that I can't pinpoint, my right leg feels like it's going to buckle climbing the stairs and often weak after walking for a while.  I'm currently off work with depression so they say due to my tiredness.  Neuro found a positive babinski's reflex in my right foot which I was told inidicates a spinal problem?  My questions are as follows:  How likely is it that I have MS?  Given the fact that I have normal brain MRI, what are the odds of anything showing up on my spine?  What exactly does this babinski's reflex indicate - a lesion of my spine?



Any info on this would be sooooo helpful!

Signed,

Not a very patient patient.....

by CCF-Neuro-M.D.-PW, Jul 13, 2005 12:00AM
Many conditions can mimic MS, and treatment for MS has risks involved so it is important to have a firm diagnosis of MS before treating/labelling it



There are fairly thorough criteria for diagnosing MS (the McDonald criteria), which essentially requires documentation of more than one MS attack in more than one place in the central nervous system (by MRI, evoked potentials, spinal fluid analysis etc), with exclusion of other causes such as tumors, masses etc



MRI is a pretty sensitive test at picking up MS lesions especially over time, and is being used more and more in the diagnosis. So a normal MRI over time in the presence of attacks suggest that it is not MS. MS lesions also commonly occur in the cervical spinal cord so this needs to be included in the above.



Alternative diagnosis include Strokes, vasculitis, Lyme, sarcoid, B12 deficiency, migraine



The babinski reflex is present, indicates that there is a problem in the motor neurons anywhere above the lower motor neuron area in the spine - so it could be spinal cord, brainstem or brain - further localization must be done with the clinical examinations and MRI.
Member Comments (22)

by lchelsemom, Jul 13, 2005 12:00AM
Make sure Dr. has done B12 testing. Low

B12 can cause some of these symptoms.  I was diagnosed with MS and years later they discovered low B12 and they decided that was cause of MS-like symptoms.  You might want to research B12 deficiency and see if your symptoms match.



Good Luck!

by Tone37, Jul 13, 2005 12:00AM
Thanks Linda - B12 was tested for and normal.  I've been put on B vitamins from my family DR to see if it helps and nothing....  Thanks for the info though!

by cranky, Jul 13, 2005 12:00AM
I too am going through alot of what you are except that symptoms are being confused with damage caused by a central disc prolapse with subsequent fusion.  After surgery my weakness has not gotten better and with my cauda equina syndrome symptoms are mucking everything up.  Right and left sided weakness, positive Babinski, clonus, hypereflexia, negative mri brain, DDD, spondylosis, central canal stenosis.  My spinal surgeon keeps blaming it on a neurological disorder and my neurologist keeps saying it is coming from my spinal injury. Help!!!!

by Dneener, Jul 13, 2005 12:00AM
Wow! You're going through everything I'm going through only mine is on the left side.  I’m almost 40 and I've been having the same attacks over the past 10 years and nobody can help me.  They use to come every 3 years then one came after two and then just yesterday I had another.  It had only been 10 months since the last one.  I'm getting really scared now.  Nobody can tell me what's going on.  What's scary is that I went to the hospital yesterday with my left arm curled under my armpit, my left leg had turned to one side, and I was in terrible pain.  My co-workers said my speech had slurred, and I wasn't making any sense.  The left side of my face was tingling, and I was twitching.  When I have these attacks I lose myself.  I become very angry and say things I would normally never say.  My skin is extremely sensitive to the touch on my left side.  Even the stethoscope hurt me. Once I got to the hospital they did nothing but take my blood pressure. Then they let me lay there for 2 ½ hours until the doctor came.  By then I felt better.  I would have sworn I had a stroke, but everyone keeps saying MS.  I'm not sure if these are even symptoms of MS, but I've been tested for it three times.  They've only done brain MRI's.  I keep telling them when my episodes occur I feel like it starts in my spine.  No one ever checks my spine.  Can MS show up in the spine before it affects the brain?  I'm so at a loss here.  If these last two attacks hadn't been in front of people, I would swear I'm going crazy.  I'm seeing an MS specialist now.  He has no clue what’s wrong with me.  HELP I’m so scared I'm a time bomb waiting to go off.  I just want to find out what's wrong before something so serious happens it can't be reversed.  Any suggestions would be welcome.  Good luck to you 37 too.  I can definitely feel your pain!

by Tone37, Jul 13, 2005 12:00AM
Thanks for the info DR!  Hopefully it is something else...



Believe it or not, just talking about my symptoms and finding out that others are going through similar situations is helpful and reassures me that I'm not alone!  Once I have my spinal MRI, I will know for sure.  



Deneener, I would ask for a spinal MRI just to rule out MS.  My neuro did say that there are MS sufferers who don't have lesions in the brain but do in the spine so this is why she is going to check mine.  And like the neuro above said, I guess this Babinski reflex that I have indicates something wrong in the spine so we wait and see! I posted the same question on the mssociety.org.uk website and I've had a couple of people respond saying that they only have lesions in their spine - brain MRI's were all normal!  Obviously it could be something else also....  Like all of us in "could it be MS" limbo land I just want an answer.  I'm not a wimp and consider myself to be a VERY strong individual, but these ongoing symptoms and not knowing is just breaking me down.  Good luck to you all and keep pushing for an answer!  I know I will........

by Dneener, Jul 14, 2005 12:00AM
Thanks for your reply 37.  This time I'm not giving up without an answer.  My neuro is doing a CAT scan on my spine.  I'm not really sure what the difference between that and an MRI is, but I guess it's a start.  What I find puzzling is that after reading some of these post, it doesn't look like it's unusual to just have attacks on one side.  My doctor seems to think it's strange that I only have attacks on one side.  I'm thinking now I should be looking for a new doctor! Good luck to you too.  I know if you're anything like me you don't want anything, but you know somethings wrong, and you just want an answer.  I do hope you find it. I hope we all do. Ü

by 1331, Jul 17, 2005 12:00AM
I am 37 years old. i have been going through ms like symptoms since after my partial histerectomy in 2000. all mri's and cat scans