Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum.  ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Neurology  (Expert Forum)
 | 
altered skin sensations
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury

altered skin sensations

by spenjo, Aug 26, 2005 12:00AM
I posted a while ago about altered sensations in calves.  Thought it was strain but some changes since then.  I now have mild burning and altered skin sensations in my shins and outer calf area bilaterally.  This feeling has spread to my outer lower thighs above knees.  I have also felt it in my arms bilaterally - bicep/tricep area and lower outer forearm.  Feel mild tingling occasionally in upper back (this could be stress) and occasional change in sensation near jawline.  My skin also feels hyersensitive with mild burning, lingering feeling when touched.  Worse on right but present bilaterally. I notice this more when I sit.  No other symptoms. No weakness, fatigue, loss of reflexes or loss of sensation (temp, light touch, pricks), no numbness, no heat sensitivity.  I remain very active with no impairment. No problems sleeping, walking, running, etc. Just this odd mild burning skin sensation.  It does not seem to be worsening, just spreading. This does not seem to coincide with conditions I've researched.  Any suggestions?  Could this be MS?  Could this be b12 deficiency or hypothyroidism? I can't believe anxiety could do this because I do not feel overly anxious at this time.  Had blood work in Dec 04.  TSH .51, potassium 3.0, MCV 96 and glucose 81.  Everything else normal too.  No other tests.  I started taking b12 a few days ago. Just neuro exam by PCP. Should I schedule appointment with neurologist?  What should I have checked or be concerned about?



Any suggestions would be appreciated.  Thank you for the input.

by CCF-Neuro-M.D.-PW, Aug 31, 2005 12:00AM
With purely sensory symptoms that have spread over time as you describe it is inlikely to be MS



You should seek a neurologist opinion about a cause for a sensory neuropathy. Some test that can be done are a careful look for diabetes or pre-diabetes, a paraneoplastic syndrome, amyloid, or HIV (if you have risk factors). Your potassium is a bit low so this may need to be looked into. A cannot be more specific so you should follow up with a neurologist
Member Comments (24)

by spenjo, Aug 26, 2005 12:00AM
By the way, my hands and feet have not been affected by this.

by spenjo, Aug 26, 2005 12:00AM
I am a 42 year old otherwise healthy female.

by evansmom, Aug 26, 2005 12:00AM
I am also concerned about altered skin sensations mainly in my face, bilaterally. It is like a burning with underlying sinus pressure.  I am scheduled to see an ENT soon as I have suffered from sinus problems on and off my entire life.  I have been treated for stress-related anxiety on and off for the last seven years.  I will have long periods where I am anxiety free with no meds but stressful situations will bring it out.  Recently, my mother fell and broke her hip and once again I began experiencing anxiety.  I also have rheumatoid arthritis (20 yrs), hypothyroidism (8 or 9) and vitiligo (39) - all autoimmune diseases.  My B12 was checked and is normal.  I too worry about MS - but have no weakness or fatigue or other symptoms by the way I am forty-two and fairly active.  The heat, which has been wicked this summer in Upstate New York has not bothered me at all. And my face feels better when I am in the shower or if I put warm water on a washcloth.  Occasionally I will feel a tightness in both of my shins exactly at the same time in the same place and I will feel a body twitch when I am at rest but with no other signs of weakness or muscle wasting. A recent eye exam showed no evidence fo ON but I also have chronically dry eyes.  A CT scan ordered by a doctor filling in for my PCP was negative.  My PCP, however was not sure why it was ordered but felt I was not exhibiting enought symptoms to be seen by a neurologist.  Truthfully, with all the info on the net I have been reading, only served to scare me to death and raise my anxiety level.  When I am not paying attention, these symptoms seem to disappear.  One final note my doctor and rheumatologist also feel that I exhibit symptoms of chronic hyperventilation.



I have tried unsuccessfully to post a question to the doctor, any advice?

by SherryDenice, Aug 26, 2005 12:00AM
To: EvansMom
Let us know what the ENT says.  I have never mentioned it to my ENT and have been wondering if I should because I also suffer from sinus problems.



But, my arms and legs burn too.  I HATE THIS!  It's hard to focus!



I was able to post on this board about a year ago JUST BY LUCK!  You just have to pop in at the right time.



Good luck and let us know what the ENT says.



When are you scheduled to see him/her?



Sherry

by honky, Aug 26, 2005 12:00AM
To: evansmom
Hi - read you post with interest.  I am having similar symptoms but mainly in legs and arms - a little in face.  I also have terrible joint pains and aches and feel generally unwell.  I notice you have also been diagnosed with RA.  My only diagnosis so far is peripheral neuropathy and its hellishly painful but I feel there is still some underlying cause that has yet to be found.  Did your burning sensations begin with the RA?  I have read that autoimmune system diseases can sometimes overlap one another and you get a bit of everything!  Any comments would be appreciated.  I live in London and although we are not a third world country I have thought of coming to the States to see if you are a little more advanced in treating PN.  Love Pauline

by evansmom, Aug 26, 2005 12:00AM
Thanks for the responses!  I have an appointment with the ENT on 9/7 can't wait it took forever to get an appointment.  I originally complained of a dull pain in my right cheekbone and some facial sensations.  A doctor filling in for my PCP checked me out for 10 minutes including basic neurological tests in office and sent me for a CT scan to r/o a brain tumor or stroke.  I was a little surprised.  When I returned two days later for facial tingling a different doctor said they had no idea what it was and although she doubted it, she wanted me to have an MRI to r/o MS - now I was totally freaked out.  Two of my very good friends are doctors and they were both surprised as well.  I made the mistake of randomly searching the internet which made me feel worse.  They did their best to reassure me.  



The RA did not present with burning and I have not experienced burning of my extremities.  My disease has been moderate at times with a few flares when I was in my 20's.  It was in remission for a while when I was pregnant seven years ago.  I am currently in between meds and I am trying to find something without horrifying side effects.  My doctor is well known in the field and I have a lot of faith in his advice. I have all the hallmarks of RA.  Around the same time I began experiencing these facial sensations, my thyroid started acting up.  The dosage of my meds was changed twice in three months.  I am also being treated for anxiety and I am feeling better.  The hyperventilation thing is very interesting and I definitely think it is part of the equation.  Every MS message I read about that includes these sensory symptoms also have complaints about balance, vision, fatigue - etc.  

by joeybubbles, Aug 26, 2005 12:00AM
Hi all,

How interesting to read your posts, since i have similar symptoms.  I am a 44 y/o female with an unremarkable medical history.  I have low cholesterol and low bloodpressure.  I've been getting cold sores on my lips since my 20's and have taken acyclovir since then as needed.  This past year they have increased in intensity and frequency. In November I woke up and had a high pitched ringing in both ears.  It is constant and has not gone away for even one minute.  In February I had an episode of vertigo that lasted for about 12 hours.  I frequently get kind of a motion sickness feeling at times since then.  I've had one other episode of vertigo but it only lasted about 1/2 hour.  Since June I've been having a burning sensation on the skin of my arms, upper legs and face.  It's been pretty constant but some days it hurts worse than others.  If I rub it, it really hurts, like a sunburn, and the air conditioning blowing on it hurts. For years I've had this same burning sensation in my left hip area that would last a few days and then go away.  Before the burning started I went to an ENT and neurologist at the clevelland cinic.  My thyroid studies or normal, basic bloodwork and glucose normal, MRI of the brain normal, neuro exam normal, hearing normal.  My vitamin b12 level was 311. (lower end of normal) and an immune panel was normal.  I was put on valtrex daily to see if that would help, which it hasn't made any difference except I haven't had any cold