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Neurology  (Expert Forum)
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Very chronic tension-type headache with confusion, dizziness
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Very chronic tension-type headache with confusion, dizziness

by Dbran4024, Nov 11, 2005 12:00AM
Greetings-- 28 yr old male, good health record,  I have been diagnosed with a chronic tension-type headache "with some unusual features" as my neurologist put it.  



Extensive blood tests normal.

CT brain w + w/o contrast...  negative

MRI brain w + w/o contrast... 4 cm lesion suspected fibrous dysplasia adjacent to right orbit with evidence of internal trajeculation (brain compression)

MRI c-spine  w/o contrast only...   mild-moderate upper-mid level spondylosis

MRA brain and neck   w/o contrast only...  negative

EEG... no seizure activity but slowing of Delta waves is noted

No spinal tap done yet



Inderal, Topamax, Lexapro,have been no help.



Headache has been constant, unchanging, for 6 months strait, with tension in forehead, and muscles on top of head extending into the back area.   Constant swolen turbinates with no evidence of sinus inflamation, the swelling goes down during cardio-vascular exercise and shortly thereafter, only to come right back.



THE WORST SYMPTOM "BY FAR" I have is feelings of confusion.  Quite literally feel like I am breathing high doses of nitrous oxide (dental- happy gas).



Also I have random spells of constant, violent dizziness that is normally much worse in the lying-down position.   This dizziness lasts for as long as I am lying down, it does not get better or subside over a matter of minutes or even hours,  but only gets better when I sit or stand back up.



Would it be a good idea to get a formal opinion from the Cleveland Clinic by sending my films and records in? Cant really afford, but if it would help..

by CCF-Neuro-M.D.-PW, Nov 16, 2005 12:00AM
With all your negative scans (the fibrous dysplasia probably is not related to your headache), the chance that a second review will help is low, but I cannot tell you this for sure - I cannot tell whether sending your information in will help or not. An actual physical visit to our headache center (or another specialized headache center) is probably the best way to deal with the problem and to identify medications to avoid and which might help.



Good luck
Member Comments (13)

by Dbran4024, Nov 11, 2005 12:00AM
Yea, I thought it might have been due to the injury too.    The thing that makes me wonder though is that my back or neck don't hurt now, my back straitened out on its on in a weeks time and then this headache and confusion developed;  first the headache, then a month later  i started feeling like i was breathing dental happy gas all of the time,  very scary feeling   and disabling,  people don't understand how this effects me and think i'm crazy

by Dbran4024, Nov 11, 2005 12:00AM
PS-  I also have a peculiar "squishing" sound coming from the base or my head or upper neck when I move my head around that was never there before.    About a week before this all started, i had a very stiff upper back that constantly needed "cracking"   this was caused by a weight-lifting incident where I pulled my back in a strange way while working out.    don't know if this is relavent.

by missmellie, Nov 11, 2005 12:00AM
cetainly sounds like this is due to the injury to your back, go see an orthopedic or neurologist.  Headaches can be caused by cervical injury.  good indication is when you say you lay down and it is worse.  good luck

by missmellie, Nov 14, 2005 12:00AM
To: dbran
HI AGAIN

WHEN I WAS 15 I INJURED MY BACK, DIDN'T GO TO THE DOCTOR, JUST GOT UP AND WENT TO SCHOOL, FELL ON BLACK ICE, HAD TO GET THERE I WAS TAKING MY FINALS AT SCHOOL.  TWO YEARS LATER I WAS AN APPRENTICE HAIRDRESSER, I GOT UP OUT OF BED AND COULDN'T WALK. THE THING IS I DID RECOVER FROM FALLING ON MY BACK, BUT UNKNOWNST TO ME I WAS WALKING AROUND WITH A RAISED HIP. WENT TO DOCTOR, MY MUM HAD TO GET A TAXI AND HELP ME INTO THE DOCTORS, THEY SEND ME UP TO THE HOSPITAL AND TAKE X RAYS.  WHERE THEY DISCOVERED THAT WHEN I FELL I HAD RAISED THE HIP WHICH CAUSED THE LOWER BACK TO CURVE AND A DISC TO HERNIATE.  TWO YEARS I WALKED AROUND FEELING LIKE I WAS WALKING ON WOODEN LEGS, I HAD SCIATICA, JUST DREADFUL PAIN.

I ALSO HURT MY NECK WHEN I WAS 15, ALL AROUND I WAS A RIGHT plo**KER,  20 YEARS DOWN THE ROAD, I AM GOING TO THE DOCTORS BECASUE THEY THINK THAT I MIGHT HAVE MS.  THE THING IS THOUGH I DON'T KNOW BECAUSE I HAD THAT INJURY SOMETIMES I HOPE THAT ITS THE INJURIES.

I HAVE NUMBESS IN MY FACE, HEAD, ARMS HANDS, LEGS AND FEET, ALL ACCOMPANIED BY BURNING AND A COLD SENSATION THAT GOES ACROSS MY FOREHEAD.  I AHVE PAIN IN MY LEGS. I HAVE MEMORY FOG.  VOCAL CORD DYSFUNCTION, FOOD GOES DOWN MY WIND PIPE INSTEAD OF GOING TO MY STOMACH.



ONE THING THAT YOU SAID ABOUT FEELING AS YOU HAVE BREATHED IN DENTAL GAS STRIKES A NOTE WITH ME, YOU COULD BE HYPERVENTILATING WHICH CAN BE QUITE NORMAL WHEN YOU ARE ANXIOUS, HOW IS YOUR BLOOD PRESSURE, IF HTIS IS LOW YOU CAN GET THOSE FEELINGS. IF SO INCREASE YOUR WATER INTAKE, AND MODERATE SALT INTAKE IS GOOD IF IT IS LOW.

I CERTAINLY WOULD GO AND SEE A DOCTOR, DO YOU AHVE A FAMILY MEMBER WHO COULD GO WITH YOU IF YOU ARE HAVING A BAD DAY OR WRITE DOWN YOUR SYMPOMS TO GIVE TO THE DOCTOR AS SOMETIMES MENTAL FOG OR JUST PLAIN STRESS CAN MAKE YOU FORGET EVERYTHING ONCE YOU STEP INTO THE DOCTORS OFFICE, IN ENGALND WE CALL IT WHITE COAT SYNDROME. WELL ANYWAYS GOOD LUCK AGAIN GO SEE SOMEONE,WHEN IT EFFECTS YOUR EVERYDAY LIFE IT AIN'T FUN

by Dbran4024, Nov 14, 2005 12:00AM
To: Everyone and doc
I too have been short on breath.   Not when I walk up stairs or whatever, but just sitting or laying around it feels like I can't get a refreshing breath of air.  Sometimes I wake up when Im about to fall asleep thinking i'm drowning or something.   Sort of feels like I have "dead lungs"  like there's no air to blow out, and the lung capacity isn't what it used to be.   I don't smoke anymore and exercise frequently.   However lately i have gained about 25 pounds since i started feeling ill I haven't been quite as active.   But i dont know if that's it or not.  I hope so.   next thing I'll be pushing for a lung MRI.  Doc allready thinks I'm obsessive about my health but its only because I truley feel very ill.

by Mother Margaret, Nov 14, 2005 12:00AM
What has been going on differently these past 6 months?  Are the red blood cells small sized?  Is there blood in urine?  There is a common cleaning/degreaser product, also in paints, etc that can cause headaches & fatigue  like CFIDS



I was looking for which gland causes rise in blood sugar ... & checked this thread http://www.medhelp.org/forums/neuro/messages/30314a.html



I suspect the harm they were talking about in this thread could be from a chemical which causes CFS, CFIDS, FM ... www.valdezlink.com/pages/foryourdoctor.htm#for would be signs of direct exposure



Notice info on this link ... that glyconutrients are helpful ...



Check these things for 2-butoxyethanol harm http://www.valdezlink.com/pages/questionnaire.htm



It can cause severe headaches ... I think the nutritional guidelines of researcher Roger J. Williams in which trials for many autoimmune issues are now ongoing ... would be hope for help:  glyconutrients.  Check the nutrition topic, this forum

by lmroswell, Nov 14, 2005 12:00AM