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Neurology  (Expert Forum)
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Neurological Symptoms w/Fibromyalgia
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Neurological Symptoms w/Fibromyalgia

by amanning, Nov 21, 2005 12:00AM
I have numerous symptoms and I was wondering if they all stem from being diagnosed 13 years ago with Fibromyalgia?  One of my chief complaints is I get what I could describe as electrical shocks that start in my head and kind-of shoot through my body.  They are very painful and seem to disappear with continued use of Lexapro (my dr. prescribed this for my fibro).  However, I have other problems as well.  I have severe allergies, in which my dr. has prescribed Zyrtec and Flonase.  Do my symptoms relate?  What kind of dr should I see?  My GP just keeps prescribing stuff to mask symptoms which don't always work.  I sick of feeling like ****!  He has done a CBC in which my thyroid was normal, and only showed elevated cholesterol.  

My symptoms include: electrical type shocks, constant nausea (despite use of phenegran), dizziness, regurgitation, mid-chest constant burning of stomach, excessive appetite, weight gain of 60 lbs in 6 months, sinus pressure (my sinus x-rays are clear), muscle soreness/stiffness (especially in my shoulders), burning sensation in muscles, constant dull overall headache (this is feeling good to me), fatigue, flatulence, rectal bleeding, feeling "off".   I have had these symptoms for over a year, which keep seeming to get progressively worse.  I don't know what to do, my GP says I'm fine, and my chiropractor says that my symptoms are caused from misalignment of my back but manipulation doesn't seem to help either.  I am desperate....sometimes I feel so horrible I feel like I'm dying.  Can someone please help me??

Angela

by CCF-Neuro-M.D.-PW, Nov 25, 2005 12:00AM
AN electrical sensation that descends from the neck after neck flexion and extension can be an indicator of a problem in the spinal cord, and should prompt some neuroimaging. Otherwise it may be a mnaifestation of central pain, that can be modulated by a serotonin acting medication like Lexapro, as may be the case in yours. I do not know the nature of you allergy symptoms so cannot realte them to the above.

It is difficult to attribute all your symptoms to one neurological disorder, although some disorders that could be evaluated for would be obstructuve sleep apnea (causes fatigue, more common after rapid weight gain), diabetes, celiac disease (blood tests available, gluten diet sensitivity), polymyalgia rheumatica (WSR blood test check for this) and even weight gain/being overweight. IF no diagnosis canbe found at this point, try losing weight, exercise, sleeping and eating well, and avoiding the use of over the counter medication other than judicious use of tylenol for a few weeks and see if you feel better. It is important though to keep following with your doctor as your symptoms develop.



Good luck
Member Comments (9)

by amanning, Nov 21, 2005 12:00AM
I forgot to mention that I have been treated for migraines as well with Maxalt....It helps a little, but the constant dullness NEVER goes away.  Don't know if this relates either, but I have had really unbearable PMS symptoms and extremely heavy periods the past two months.  I almost can't stand being around myself!  I have been EXTREMELY moody.  I had not been sleeping well, in which my doctor has prescribed Lunesta.  I am resting better and feel like I have gotten enough sleep, but none of the other symptoms have changed.

by raven33, Nov 21, 2005 12:00AM
To: amanning
Hi,Just read your post,I am not a doctor.But from what I read in your post,it sounds like symptoms of cushings syndrome.The excessive hunger really stood out.You need to look in to seeing a good endocrinologist,maybe one who specializes in neuroendocrinology.Check with your GP for a referral.Good luck To You Raven33.

by AmyVan, Nov 23, 2005 12:00AM
To: AManning
Get off of the Lexapro and you will see the nausea disappear.  If you are able to get off of all prescribed medication and not freak out, do it.  These medications are highly toxic and not good for you at all.  Like you said, all they do is mask the problem.  Start looking into all natural remedies and self healing.

by mick_mouse, Dec 03, 2005 12:00AM
To the ladies post above...PLEASE get to a neurologist and request a MRI/Brain scan and or e-val for Multiple Sclerosis!!! I was diagnosed with and treated erroneously for 5 years with Fibromyalgia. Despite recurring problems over the years I was able to manage my symptoms but the many meds they had me on did not help. Last year in August I ended up with a systemic GI tract infection with rectal bleeding because I could not defecate for 5 days at a time. No cause ever found despite a whole GI work up. I started getting severe fatigue, numbness in fingers, and tingling and weakness in legs when bending my neck! After YELLING at the Neurologist who said "you have fibromyalgia" she asked me if I had ever had a brain scan. I had had MANY blood work packages, spinal MRI's etc...but no, never a brain scan. I was scheduled in Feb of this year. When I finally received the results (and a new neurologist) this March I was immediately diagnosed with MS. I had 14 brain lesions and one of significent size in my cervical spinal cord. I did progress to the point of having a hard time walking by mid april but thank God for Avonex and the help of my PCP and new Neuro I am back to work. You may not have MS but your symptoms are very similar to what I suffered with for a LONG time, while the damage continued to be done. I GP that tells you you are fine with all the symptoms you have needs to be replaced. Weather, somatic, physical or neurological your symptoms need to be addressed. Some counseling support may be helpful too and frankly, when all my results kept coming up negative over the years I thought I was a hypochondriac or nuts. This and feeeling bad affected my work, relationships, and self worth. GOOD Luck to you. By the way, the next flexing thing is called the L'hermittes syndrome and is usually related to spinal cord compression or a hallmark sign of MS.

by jbsgoodolebear, Dec 27, 2005 12:00AM
Hi Angela,



As a fellow Fibromyalgiac, I have to say that some of what you listed as symptoms just baffled me.  I've been living with it for almost 10 years now...and for the record, I can't stand it when someone says "you're fine" but insists on turning you into a walking pharmacy.  But while they are not "Fibro" symptoms, it doesn't mean that everything is fine.  Many times if there are medications involved, especially more than one, an alteration lifestyle and diet help tremendously.  Also, while I'm not a doctor, I was a nurse for 11 years until I couldn't do the clinical care anymore due to the Fibro.  I'll say this much though; its not the Fibro that you are describing.



You listed:



"regurgitation, mid-chest constant burning of stomach" -- have you been evaluated for Acid Reflux Disease or GERD?



"sinus pressure (my sinus x-rays are clear), muscle soreness/stiffness (especially in my shoulders), burning sensation in muscles, constant dull overall headache (this is feeling good to me), fatigue,  dizziness, feeling "off" " -- those are typical symptoms of Fibromyalgia.  



"constant