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Neurology  (Expert Forum)
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a bunch of MS-like symptoms
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury

a bunch of MS-like symptoms

by patsmad, Mar 07, 2006 12:00AM
Last May, I experienced a raw sensation in my arms and trunk that developed into

a burning feeling (felt almost exactly like a sunburn) in the back of my neck, trunk, and back. This lasted continuously for 2 ˝ weeks. Then, a few weeks later, I started experiencing a “buzzing” sensation in my lower back/groin area when I bent my neck down (I know, “L’Hermitte’s sign”). At the same time, I started to experience some numbness in my toes, my hands, and a feeling of wobbliness – like my legs wouldn’t support me. This is STILL going on today (8 months later), but it is even worse.

I also experience tremors occasionally in my arms (depending on position), a mixture of numbness/rawness/sensitivity in my legs (esp. the tops of legs and knees) and my feet have numbness all over, and they feel like their inflamed and swollen a lot of the time (especially when I wear shoes, and in the morning) – and sometimes it feels as if the areas around my toes are stuffed with cotton when I curl my toes. I’ve had tingling in my nose and face, I have pretty bad clonus in my legs/ankles  and for a long while there my legs buzzed if I tapped them. I feel like I’m jittery and “torqued” all over – when I stretch in the morning, my arms and neck shake. My legs feel tight and shaky, yet I feel like they will collapse when I walk (worse after I exercise or do a real short set of squats,

by CCF-Neuro-M.D.-PW, Mar 13, 2006 12:00AM
I cannot give you a clinical diagnosis over the internet,so this advice is purely educational in nature



The symptoms could localize to the spinal cord (cervical if you r arms are involved). There are many causes of spinal cord symptoms only one of which is MS. MS is characterized by recurrent and discrete attacks of neurological symptoms, which you do not seem to have. Once a structural lesion liek a tumor is ruled out by MRI, one of the most common causes is inflammation of hte spinal cord, termed 'Transverse Myelitis', and common causes include viral or post-viral  

Diagnosis of the cause of the inflammation comes from the clinical history and suspicion and spinal fluid analysis. MRI may show the changes in the spinal cord.



Symptoms may persist despite the fact that no further damage may be occurring, as there may be long term damage to nerve fiber tracts. The nerves to the legs regenerate the slowest so there is a greatre chance the legs will not fully recover.



Good luck
Member Comments (33)

by sally456, Mar 07, 2006 12:00AM
To: patsmad
if you really want to know if it is ms or not..then i suggest going to an ms specialist or a university hospital.  That way you know for sure because you are goign to the best, getting the best test and you wont have to quesiton it later on if they tell you you dont have it...

And ask questions if its not that..what else could it be..maybe this small fiber neuropathy....



also, ive never had a rash or fever either, and antibiotics dont always work for lyme disease.



Let us know!

by Citizen T, Mar 07, 2006 12:00AM
The Elisa test is reliable to check for Lyme disease after a month of infection.  Seeking a so called "lyme literate" doctor is quite unnecessary.   People with true Lyme usually have severe joint pain, keep this in mind.

by erinbaba, Mar 07, 2006 12:00AM
For several months last year, I had a variety of stroke like symptoms, numbness/tingling, memory loss, migraines, etc.  I went to 3 Neurologists including 2 MS specialists and the only concrete diagnosis was "Complicated Migraine."  I started Topamax 50 mg./2x daily in October 2005.  The Lyme tests were negative and none of my doctors felt that a rash which I had since May 2005 meant any significance, until I went to a dermatologist in November 2005.  He looked at the 2 inch red circle on my back and immediately told me it was a deer tick bite (nb: i live in NH) and asked about Lyme disease testing.  I had been testing a few months prior at the results were negative.  He sent me home with meds and by the 4th day, the cloud lifted and I started to feel significantly better.  I was quickly switched to IV antibiotics for 4 weeks due to the "Advanced" stage of lyme disease, aka Neurologic Lyme.  I have nearly fully recovered except that when I tried to stop the Topamax last week, I suffered another serious Complicated Migraine and have significant short term memory loss from the past 2-3 months.    In short, do not stop looking for answers.  The Lyme testing is not accurate except for one lab in the country - where your blood should be sent.  On a related note, once Lyme reaches the advanced stage, it can recur after initial treatment and sometimes requires multiple treatments.  Good luck!

by erinbaba, Mar 07, 2006 12:00AM
FYI, the recommended lab for Lyme testing is Igenex.  Good luck!  erin

by patsmad, Mar 07, 2006 12:00AM
Is Lyme Disease even a concern in states such as Colorado or Wyoming (where I live)? Someone told me it's not a problem out here - just Rocky Mtn. Spotted Fever.

by patsy10, Mar 07, 2006 12:00AM
The Elisa test for lyme is the most inaccurate and worthless test of all.  Unfortunately, most general doctors do not know this and when it comes back negative they say no lyme.  If it comes back positive then a western blot is ordered. The western blot is far more reliable but still has it's flaws.  The chance of finding lyme in spinal fluid is about 20% even if someone has neuro lyme.  There's lots of information at lymenet.org if anyone is interested in researching it further.  Lyme has been found in every state but Montana.

by patsy10, Mar 07, 2006 12:00AM
I agree with erinbaba.  I also had 3 bullseye rashes in 1992.  I've never really been right since.  I developed a full-blown neuro syndrome about 6 months after the rash.  The antibiotics helped but I only took them for 4 months.  I think I went into remission.  It took years.  I've always had weird rashes and fatigue etc.  I developed another neuro syndrome again after having surgery in 2005.  I'm waiting for results from Igenex.