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Neurology  (Expert Forum)
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need more advice from doctor about symptoms
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MedHelp Member's Question

need more advice from doctor about symptoms

by sally456, Mar 07, 2006 12:00AM
Dr.:



I posted before about obsession with ms, however i left out important details and need advice.

i told you i had bladder problems where i had a very uncomfortable feeling like had to go all the time, even after i emptied bladder. Sometimes these feeleings of pressure would radiate into top of legs.  Also, more recently, I have had hesitancy..in morning (1st urine only) once or twice and also urgency; needed to get to bathroom fast. (approx. 7 times)   had yrs ago & in past few months-paresthesia (tingling, burning, strange sensations of water dripping )all over body even in head. burning in back of legs (thighs only)usually starts in one spot on back of right thigh, and radiates to back of both thighs-It has been on/off for approx.1 month.  Also feeling some twitches in my back..they are few and but there none the less.  have night sweats for many years and never feel rested when i wake up.  I have numbness on the tip of one toe for several years and just recently numbness in tip of right index finger. (very mild).also knee cap some numbness.

Normal mris done back in 1991 as was spinal tap.I mentioned before my vision problems which ive had for 5 years now. I woke up with distorted vision..sometimes still due when awaking from a deep sleep...my vision in both eyes is streaky when something moves fast across vision field (like waving hand in front of face), vision in the dark is bad,

many floaters for many years, left pupil dilates more than right. Should i have new mris? what else could cause ongoing paresthesias? much anxiety now over marital problems as well.
Doctor's Answer

by CCF-Neuro-M.D.-PW, Mar 14, 2006 12:00AM
As you know I cannot give you a formal medical opinion over the internet



While anxiety and worry can contribute much to symptoms, this can only be confirmed by a face to face consultation with a neurologist.



In general, urinary symptoms caused by MS come from MS lesions in the spinal cord. These areas lie very close to the leg motor nerve fibers, so if you do not have physical signs of a myelopathy in the legs (ie hyperactive reflexes, a babinski upgoing toe response) then the urinary symptoms almost certainly not due to a spinal cord problem and the problem may lie in the urinary apparatus itself ie chronic cystitis/urinary tract infection etc



Good luck
Member Comments (28)

by Citizen T, Mar 07, 2006 12:00AM
Try not to focus so much on MS.  It is a rare disease.  However, since it has been 15 years (right?) since you had an MRI then I would say it's worth while to repeat the brain MRI with contrast.   Keep in mind that people with MS often have optic neuritis as a first sign, and what you described doesn't really suggest that, however a good eye dilation and exam for glaucoma is an order.    As far as the leg pain/numbness, you may want to consider problems with your back such as spondylosis,  also just for the heck of it get a Lyme disease titer (only Elisa is necessary).

by tricia ann, Mar 07, 2006 12:00AM
I am not sure why they put ms I need info on a archnoid cyst.I was told that I had one over a year ago and it is killing me like you can't believe.I have the cyst in the right midline posteria fossa and it is 2.2x3cm and it is just growing and growing and I am not sure what is going on.I feel like someone is pounding my head and I forget alot of times and the mood swings are horrible.I the feeling in my legs and there are many other things going on that are there is anyone that is going through this please tell me more for I do not know very much about this and my doctor says there is nothing he can do but pain management.Is there something that can be done for this?I know that at times I just want to die and my head feels like it is getting heavier by the day and is that normal?I feel like there is no hope is there?

by ozark, Mar 07, 2006 12:00AM
To: sally
have you seen your dr about your urinary issues...it sounds more like a urine infection and possibly kidney...you need to see someone to rule this out first

by sally456, Mar 07, 2006 12:00AM
To: citizen t
About another mri--I guess ill see if the forum dr. recommends it.  would you think if someone like me had ms, by now there would have been more signs???



I am so scared to go to another neurologist..it almost paralyzes me because im too scared to be diagnosed.. I know it would help so id stop torturing myslef, but i just keep thinking that if i do have it, something eventuallyw ill happen where i HAVE To go to a dr. and then ill have no choice but to get another mri.



I know, sounds crazy.



by Citizen T, Mar 07, 2006 12:00AM
I very highly doubt you have MS.   But, again, the MRI is sensitive to detecting MS.   MS is a disease which causes physical changes in the brain.  Even  If (which you probably dont) you had MS all this time, it is aparently the benign form.    Are your symptoms disabling or do they hinder you from living a normal life (other than the constant worry?)?    If not, the best thing to do is enjoy every day and be glad you're able to

by sally456, Mar 07, 2006 12:00AM
To: citizen
thank you...just what i needed to hear..now, can you help me with my marrital problems!

by nobodysp, Mar 07, 2006 12:00AM
To: Sally456
I walk in your shoes on the urinary problems. it is hell. The pain, the urgency, the emabarassment, because who can you ask for advice? I too have had these problems for many years off and on and after having had a real infection and knowing what it felt like, I was in complete shock the first time the test came up negative when my symptoms were extreme. Have you considered Intersitital Cystitis? It took years for me to bring myself back to see a doc and get diagnosed. I am only now going to try for treatment because the pain has become unbearable. Although there is no cure, there are some effective treatments. I would suggest that while you are working on figuring out your neuro problems you seek help from a urologist as well. There is no need to suffer. Anyway, I have no advice on the other problems you are facing, I just thought there is a very good chance you could have this condition. Your description certainly sounds right. you might want to look at www.ic-network.com

by sally456, Mar 07, 2006 12:00AM
To: FORUM DR:
so sorry dr. to keep bothering you, just wanted to tell you again my symptoms started with bladder at age 21, at age 23 had chicken pox where one eye became cloudy and had mris done at age 24, i will be 39 next month.  

Also, wanted to ask, were mri's done accuratly back then? ANd also, it was the ms specialist at columbia presbyterian who told me i didnt have ms.

Could it be a mild case of ms? and could the lessions just not have shown up on my mris?  

How can i get on with my life and stop worrying that i may or may not have ms?

Thank you so much doctor..you dont know how much a reassuring word from  neurologist can help me.

Can other things cause all of my symptoms?