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Neurology (Expert Forum)
lyme ms or something else
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury
lyme ms or something else
by buschclub, Jun 06, 2006 12:00AM
hello i am a 26 year old male from maryland i have been feeling ill for about 2 years now it all started with acold that nver went away i had low grade fever for atleast 6 months then they admitted me for fever of unknown orgin they did extensive work up blood test alll good did have apthous ulcers in second portion of duendoem then i lost my gallbladder to chrocic acalcalous and then lymp nodes and neck muscles swell they remove a node and its just reactive hyperplasia any way now they want to treat me for lyme i have a sudden curve in my spine and am taller on one side than the other i have slight wry neck swollen right shoulder wasting right pec inflammed left pec hyperactive reflexes and livedo reticularis severe memory problems slurred speach very weak in both legs with swelling of both knee caps i have not seen a neuro doc yet and they want to start iv for lyme and treat me for 10 weeks now i think i should wait to see why my neuro doc says i have an appt in a couple of weeks i am disabled from whatever this is an these later symptoms all dumped on me at one time out of the blue also my fingers get stuck sometimes severe headache all day every day prev very healthy thanks for your help...
Doctor's Answer
by CCF-Neuro-M.D.-PW, Jun 14, 2006 12:00AM
I cannot give you a clinical diagnosis over the internet unfortunately as this site is purely educational
It is true that Lyme is difficult to diagnose and lab tests are unreliable. The best way to diagnose it is through a clinical diagnosis based on your history and symptoms, which I do not have to the fullest extent.
I am not even sure that you have a primary neurological problem - hyperactive reflexes without clonus or an upgoing toe (babinski sign) are quite common in normal young people, and your only other neurological symptom is memory loss.
You probably need to see a good general diagnositician (?internal medicine, infectious disease) to make an overall diagnosis - sometimes going to multiple 'specialists' can be counterproductive unless you have aclear idea which body system is the cause. If you are in Maryland, a senior physcician at Johns Hopkins Hospital may be your best bet at a diagnosis.
Good luck
It is true that Lyme is difficult to diagnose and lab tests are unreliable. The best way to diagnose it is through a clinical diagnosis based on your history and symptoms, which I do not have to the fullest extent.
I am not even sure that you have a primary neurological problem - hyperactive reflexes without clonus or an upgoing toe (babinski sign) are quite common in normal young people, and your only other neurological symptom is memory loss.
You probably need to see a good general diagnositician (?internal medicine, infectious disease) to make an overall diagnosis - sometimes going to multiple 'specialists' can be counterproductive unless you have aclear idea which body system is the cause. If you are in Maryland, a senior physcician at Johns Hopkins Hospital may be your best bet at a diagnosis.
Good luck
Dr. Burrascano (the Lyme King) has published info on this.