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Neurology  (Expert Forum)
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Tremor, Fasciculations, and Tingling
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury

Tremor, Fasciculations, and Tingling

by Dasobel, Jun 27, 2006 12:00AM
Two months ago, during a stressful period, I began having transient pain in my hands, arms, and jaw.After a few days, I noticed fasciculations in feet and calves, myoclonic jerks, and misc. twitches--all in the span of maybe 5 days. I went online, read about "twitches and ALS", and convinced myself I had ALS. I was terrified, and experienced an extreme traumatic reaction--strong anxiety, shaking all over, greatly exaggerated startle, etc.Twice,I felt burning paraethesia's for about 30 seconds (arm).I completely freaked myself out.I guess what they used to call a "nervous breakdown."



Visits to two neuros and two clean EMGs convinced me I didn't have ALS,I calmed down, and my symptoms began to subside over a period of a week or two--with a few exceptions.



1)Tremor--I have had a fine postural and action tremor (simple, not intentional) ever since, mainly in hands and arms, but also head buzzes upon waking, and when I lift weights I can feel head and leg tremors during certain motions.

2)Fasciculations-- never fully went away, though much less. In feet/calves mostly, two twitchy hot spots on lips.

3) Tingling-- Mostly in feet, but also hands, arm.

4) Mildly exagerated startle-- nothing like it was, but not normal.



Nothing else. No visuals, weakness, fatigue, gait, coordination, etc.



I have thought maybe I have PTSD due to my traumatic episode, or maybe the onset of essential tremor--my tremor does fit ET well, and I've read BFS and tingling can be comorbid with ET.



But what about MS? Onset was sudden. Does MS usually present w/ tremor/fasc., w/some tingles?

by CCF-Neuro-M.D.-PW, Jun 28, 2006 12:00AM
I cannot give you a formal clinical opinoin over the internet as this site is purely educational.



In general, MS presents with discrete episodes of neurologicval dysfunction - most commonly loss of vision in one eye, weakness or clumsiness of a limb on one side of the body, double vision, or spasticity in the legs with inability to walk. This does not sound like your symptoms you describe in your post. In MS these symtppms last for a few weeks then subside but may recur later at or another location in the nervous system. There is almost always signs on the MRI scan.



Tremor is relatively common in MS, but in the advanced stages, and is more coarse rather than the fine tremor of essential or physiological tremor, and is called a 'rubral tremor'.



Discuss your anxieties over your symptoms with your doctor - he willbe able to either reassure you or investiage where appropriate



Good luck
Member Comments (14)

by Tom41, Jun 28, 2006 12:00AM
I am new to this forum, and I would like to tell my story. I am a 33 year old male, on May 8th I started to have twitching of my lower left eyelid that went on for two weeks. Note that the previous eight-nine months were by far the most stressful experience of my life, with worries about unemployment, though  Following that I started to have twitches everywhere, though curiously enough the eyelids have now stopped. The left handside of the body is slightly more affected, though there are twitches everywhere except the hands and feet. No problems swallowing/talking at all, though I have twitches on the temple and the jaw sometimes. A doctor here adn a doctor in my home country which I recently visited tend to dismiss everything as stress-related, which could make sense, except I have never reacted to stress in this way. I saw a neurosurgeon who tested my reflexes/coordination on June 10th and tested my strength etc., he said I am absolutely normal, and an EMG on June 14th (three weeks into the generalized twitching) signalled no problem. Also, lots of blood work done, everything in order. I am now seeing another neurologist here in the USA to get a second opinion, as the symptoms continue. They tell me twitches usually are one of the last symptoms, so they should have already shown on ALS unless you have bulbar start, but as I said I have no problems talking/swallowing. I am terrified I might have ALS, despite the fact that the neurosurgeon (who also has a neurology qualification) dismissed the idea.

by Dasobel, Jun 28, 2006 12:00AM
Tom, don't let your twitches freak you out. Believe me, I've been there, and so have many other posters on this site. My question above is about MS; I'm trying to figure out what's happened to me. I may never know, a lot of time these twitches and tremors are ideopathic, meaning there's no identified cause, just symptoms that scare you less and less as time goes by.



I am not a doctor--  but based on my own consultations with neuros, and on heavens knows how much I've read about it, you DO NOT have ALS. Believe your doctor. The muscle jerks you describe are called myoclonics, and they have NO place in ALS presentation. Other twitches, like more "regular" and fine ones you may see in your calves and feet especially (or your eye twitch), are fasciculations, and in the absence of other serious symptoms (like clinical weakness or muscle atrophy) are benign. There is an entire syndrome known as Benign Fasciculation Syndrome (BFS) presenting with exactly your symptoms, and strongly linked to stress, and FAR more common than ALS



ALS fasciculations occur in a withered, atrophied muscle group, and at the END STAGE; and don't occur all over your body or in unaffected muscle groups. An example would be someone where ALS began in one hand (it begins unilaterally, usually just in one limb on one side)--  after a long period of weakness and dwindling ability to use the hand for basic activities, the diminished, visibly diminished muscles would twitch (in one spot) continuously until they "died out."



On top of all that, your clean EMG should reassure you even more.



I know it's scary, but you've got to trust your doc and stop surfing ALS sites; you ain't got it. Hang in there, you'll be ok!

by Tom41, Jun 28, 2006 12:00AM
Thank you so much for your reassuring word and for taking the time to respond. I will try to believe you and stop making my wife's life impossible.

by Aub, Jun 29, 2006 12:00AM
How do you post a question on this forum?  There is always a message saying they have reached the limit of questions for the day. I see the forum MD has answered so it would appear I would be free to ask my own question.

by Aub, Jun 29, 2006 12:00AM
To: FORUM ADMINISTRATOR
I HAVE BEEN TRYING TO POST A QUESTION FOR A LONG TIME.  YOUR SYSTEM KEEPS SAYING IT HAS REACHED IT'S LIMIT.  THAT IS TRUE EVEN IF THE FORUM MD HAS ANSWERED THE LAST QUESTION.  PLEASE TELL ME HOW TO POST.

by who_is_this, Jun 30, 2006 12:00AM
Try between 8a-11am EST.  That's when people seem to have the best luck. You might have to try multiple times though, and sometimes it takes days/weeks to get in.   I did notice that there haven't been any new questions for a couple of days.  



Also, if you wish to address something to the forum admin, use the CONTACT button at the top of the page.  They don't routinely look in the forums at the questions/comments themselves.

by Aub, Jul 03, 2006 12:00AM
To: Administrator
I tried using the contact button to relate the fact I can't get in.  Nobody has responded to my complaint.

by longisland, Jul 04, 2006 12:00AM
i am a 45 y/o nurse who suffered for the past 5 months with upper gastrointestinal nausea, gas, burning in stomach, insomnia, burning in upper arms, back, neck, knees,lips. rashes on my back, and numbness that would come and go for brief seconds in feet, arms, hands, i lost 13 pounds in three weeks and

suffered through these symptoms and continuous doctor appts to all kinds of specialist that had me take various blood tests and

MRIS ultrasounds, endoscopy etc etc etc. need i go on. i became so discusted that i knew i had to be my own physician and through prayer and research on my own believed that i had candida in the lining of my gut and was causing all these weird symptoms. i realized this after taking a questionaire test i found on the candida free website. as there is not actual diagnostic test for candida, as we all have normal candida in our stomach, but an overgrowth can cause serious problems.

I was initially diagnosed by my GI doctor with irritable bowel syndrome which is ridiculous as irritable bowel is lower bowel