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Neurology  (Expert Forum)
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Diagnosed with Viral Meningitis / Still have symptoms 7 weeks later
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Diagnosed with Viral Meningitis / Still have symptoms 7 weeks later

by John_Madison CT, Aug 22, 2006 12:00AM
OK folks, I need your help.



About 7 weeks ago I had fever, bad headaches, sensitivity to light, nausea, etc etc etc....  Was hospitalized for 4 nights.  



During my stay, I was given IV antibiotics. (starts with a Z) and Doxycyline.  Docs say all Lyme type tests came up negative.  MRI was negative.

Also had a spinal tap, which showed some elevated White blood cell counts.  (I needed a blood patch because I got a Spinal Headache the next day when standing up)



I also saw a Neurologist who seems to think, so far, that I have viral meningitis and it could take 3 months to get better.





Anyway, after getting better from the original symptoms of the fever, profound headache and profound malaise, I got the shakes, weak-knee symptoms, and what seemed to be profound depression and anxiety.



I still get some headaches, ringing in my ears and other malaise of just not feeling well but do not know what component is caused from the depression and anxiety.    I tried Paxil(10mg only) and Buspar for 5 days, but did not feel well after trying them.   I do not know if this was from the Meningitis, or just psycho-symatic from taking meds.





I'm at a loss here really.   I want to know if its normal to feel poorly from viral meningitis so long after the initial strong onset of symptoms, nearly 7 weeks ago.



Is it normal to get into depression and have anxiety from such a dramatic change in life.   I have not been able to get back to "normal" really with work and fun.



I've read some horror stories about things like Paxil which make me very concerned.  Should I be?

by CCF-Neuro-M.D.-SH, Aug 25, 2006 12:00AM
First of all, keep in mind that I am unable to diagnose you because I am unable to examine you, this forum is for educational purposes. I agree that the symptoms and history you describe sound like viral meningitis (viral infection of the covering of the brain).  Viruses can also infect the brain itself (called encephalitis), which generally (but not always) will have lesions on MRI.  The recovery from viral meningitis can be prolonged and some people develop a "post-viral syndrome" that is similar to chronic fatique syndrome.  The mechanism/cause of this association is not well understood.  Depression and anxiety and even cognitive problems are possible after an episode of viral meningitis/encephalitis.

   Given your symptoms I would recommend that you get a repeat MRI with contrast at the 3 month point.  A small focus of scarring or old/chronic encephalitis may be present. Another possibility is that an area of your brain was damaged from your immune system reaction.  I would also recommend an EEG (electroencephalogram or "brain wave test") to ensure that you are not having sub-clinical seizures (often associated with viral meningitis/encephalitis).  If the paxil does not work for you, try another drug with a slightly different mechanism, such as effexor, Wellbutrin or Elavil.  Your recovery is going to take some time, some complications of this disease can be life long (cognitive problems, chronic fatique syndrome), but most people recover fully in 3-6 months.

I hope this has been helpful.
Member Comments (16)

by John_Madison CT, Aug 22, 2006 12:00AM
Sorry.   So in conclusion, GP says probably Viral Meningitis and it could take many months to heal.  Neurologist seems to think the same, with the possibility that I have "partially treated" Lyme because I was on Doxycycline for 4-5 days, but was taken off by GP because he is sure its not Lyme. (again, all tests came back negative.



I guess I just want to know if its normal to still have a general "sick", crummy feeling, with headaches, ear ringing, some shakes after 7 weeks.



OR, are these problems caused by the Depression and Anxiety that have seemed to come on the heels of my initial very poor health which lasted about 3 weeks.

by shippie, Aug 22, 2006 12:00AM
Unbelievable - I was also diagnosed with viral meningtitis 7 weeks ago.  I am also still not feeling well.  The doctor (GP)keeps telling me it is possible to take up to 8 weeks to feel better. I still have headaches, joint and muscle aches and now the sensation to move my arms and legs.  I keep telling the doctor that I still feel sick. This is very frustrating.  I spend most of my day in bed.  Spinal tap on 7/7 confirmed the meningitis- showed 10 times the amount of cells.  Two weeks ago my WBC still elevated at 16,000.  My groin and underarms ache continously. If anyone has any suggestions let me know.  Dr. has not ordered any other tests since spinal tap in July other than CBC.

by John_Madison CT, Aug 22, 2006 12:00AM
To: Shippie
Shippie:    Can you email me?  My email is:  ***@****





Thanks,



John

by Kalio1, Aug 25, 2006 12:00AM
To: john madison/shippie
I had viral meningitis twice in two years( those headaches WOW)both with spinal taps. It just takes forever to recover and slowly, slowly, you do. You have to REST, stay hydrated and don't over do it. Be sure and get some regular exercise even if you are fatigued, try to at least walk every day. By about the 3 month mark you are having a few "good days" in a row hopefully for you it will be quicker. I found if I over did it it would set me back some. Don't drink any alcohol or smoke if yo can help it, don't miss sleep. Eat right. Take vitamins. Rest when you are tired if you can. There is nothing you can do but wait it out. Inactivity itself causes tiredness so push to exercise if you can. The better care you take of yourself and stay rested the sooner you will recover. You might need antidepressants but I found just going through that was depressing! Try to realize how lucky you are that it wasn't worse because it very well could have been. Some ccomplications you guys ( and me) avoided can be life long so just take it easy, realize you had a pretty serious illness and do all the things the doctor above recommends. Hang in there, it is tough but you WILL get back to normal, just not as soon as you want.

by shippie, Aug 27, 2006 12:00AM
I appreciate your post.  It is at least comforting (for lack of better word) to know it can take this long.  After week three  the frustration, anxiety and depression begins to set in and to be "sick" for this long you start wondering if something else is wrong.

by John_Madison CT, Aug 27, 2006 12:00AM
Shippie:   You and I are in EXACTLY the same situation, nearly to the day.



          I find it very hard to face each day, and this means sleepless nights too.



          Facing months on end of this makes it tough, but knowing there is some light at the end of the tunnel helps a tad.



           I'm on day 5 of my Paxil (only 10mg) and I hope this begins to take away some of the depression/anxiety and despair.



John