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Dysautonomia (Autonomic Dysfunction) Community

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.
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Discussions
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1

Welcome To The Dysautonomia Community!

by halbashes, Jun 30, 2008 11:35PM
Welcome to the Dysautonomia Community! Dysautonomia, or Autonomic Dysf...
6

Any help ??

by bnlgirll, Jul 14, 2008 12:49PM
Hey everyone I know I have posted stuff on here before. I am in critica...

how many other things can you get?

by salviagrace, Jul 21, 2008 05:31PM
i am 34 and have had mitral valve dysautonomia for about 5 years. i hav...

I'm not sure if that's the correct topic.

by postie, Jul 20, 2008 08:54PM
This is in regards to a question about my husband. I am already famili...
10

HOW LONG?

by stacey555, Jun 20, 2008 09:48PM
Does this condition ever just go away?

Effexor

by psychologystudent800, Jul 19, 2008 04:22AM
Hello.. I found a very good cardiologist who is willing to treat my dys...

CRAPPY KNEES AND AUTONOMIC DYSFUCTION

by goldengirl4, Jul 18, 2008 10:56PM
NEED TO HAVE KNEE REPLACEMENTS. ORTHO DOCTOR FEELS SURGERY IS NOT AN OP...

all

by stacey555, Jul 18, 2008 10:13PM
I am flying in the morning any suggestions to help with symptoms??
4

Dysautonomia Treatments

by halbashes, May 20, 2008 08:02PM
Since autonomic dysfunction can be so difficult to treat, I was thinkin...
3

Heat Sensitivity

by halbashes, Jun 15, 2008 12:09PM
How is everyone dealing with the summertime heat? Can anyone offer som...
4

Does anyone else have severe tremors, body twitches, and high blood pressure with their POTS?

by rhonda1017, Jul 10, 2008 01:52AM
Hi, I just came back from Cleveland Clinic and I tested positiv...
3

Any suggestions

by buffy2, Jul 09, 2008 11:20PM
I have just been diagnosed at Mayo with POTS.Finally after a year and a...
1

What natural supplements do you take?

by beth28, Jul 11, 2008 01:39PM
SOmeone listed the prescrition meds offered for ncs... wondering what s...
19

What is your treatment? How well controlled are your symptoms?

by molly0, May 20, 2008 11:40PM
My daughter Julie's dysautonomia is being treated with Midodrine, Flori...
3

tilt table

by sue3708, Jul 10, 2008 03:03PM
I go back to the cardiologist tomorrow after not being there for 2 year...
4

Hey, I'm new here.

by paigebefree, Jul 02, 2008 11:21PM
Hey, I just found this community. I've been fainting since I was 14 fr...
4

angry

by psychologystudent800, Jul 07, 2008 01:57PM
Hello, I have been diagnosed with vasovagal syncope and orthostatic ...
2

NCS

by beth28, Jul 07, 2008 01:56PM
does anyone here have ncs? I do since age 20.. or before... what are yo...
3

bleeding gums

by rbird, Jun 30, 2008 12:22PM
my daughter has been having trouble with her gums bleeding. (not sure...
9

Pacemakers for Dysautonomia

by halbashes, Jun 12, 2008 10:44AM
I'm just curious if anyone has had a pacemaker, or has had a doctor sug...
4

Is surgery still safe?

by Katijanae, Jun 27, 2008 01:49AM
I have autonomic dysfunction. I don't know why, and I have yet to have...
1

FLORINIF

by stacey555, Jun 28, 2008 09:05AM
Everyone keeps talking about this as a treatment, what are the side eff...
12

Does anyone else have HyperAdrenergic POTS?

by rhonda1017, Jun 19, 2008 12:19AM
Hi, I apreciate any insight or help with this question. I am a...
8

Starting Florinef... Again...

by halbashes, Jun 13, 2008 03:24PM
I visited the doctor today, and it was decided that I should restart Fl...
3

I hope there is light at the end of tunnel

by bnlgirll, Jun 24, 2008 06:46PM
Hey everyone I'm trying to get into Vanderbilt. Wish me luck...
2

grumpy person

by LISAANNE1983, Jun 24, 2008 03:05PM
i wanted to know if any of you get days where you feel really agitated ...
3

pyridostigmine

by Gloriana26, Jun 21, 2008 06:23PM
Has anyone tried pyridostigmine. My husbands Drs. would like to try but...
3

Harlequin Syndrome/ Heart/ Respiration/ Help

by melipnyc, Jun 19, 2008 06:22PM
Hi, I've been diagnosed with right side Harlequin syndrome. I'm intere...
2

Help!

by kab1950, Jun 25, 2008 04:15PM
I was diagnosed with dysautonomia yesterday. It hit me out of the blue...
13

POTS + Right Chest/Head Pain

by PerChance, Jun 14, 2008 12:51PM
Hi! I'm new to this forum after being diagnosed with POTS only a coupl...
3

Has anyone been to MAYO Clinic or Cleveland Clinic for the Dyasautonomia Research Clinic?

by rhonda1017, Jun 24, 2008 05:28PM
I have an appointment with Cleveland Clinic on July 21st and an appoint...
15

Teen w/ orthostatic hypotension