Re: IC PROGRESSION
Re: IC PROGRESSION
Posted by HFHS M.D.-MS on February 20, 1998 at 18:28:16:
In Reply to: IC PROGRESSION posted by WENDY on February 16, 1998 at 10:27:47:
: I was diagnosed with IC 5+ years ago after a bladder distension. I have always been atypical. My symptoms are a low right pelvic/abdominal pain and some burning after cheating on the IC diet. I have not had symptoms of urgency or frequency or nocturia. My symptoms got better with my first pregnancy and while breastfeeding and
they got worse after a postpartum bladder infection with my second pregnancy. Recently I was treated with Biaxin for a sinus infection and my pelvic pain got worse...then 2 weeks later my urine was cultured and luecocytes, blood and enteroccoci was found. I was put on 1/2 doses of Norfloxin and developed intense urethral pains on the sixth day. I was then switched to Ampicillin for 10 days. Now I'm done with the antibiotics but I can't stop the pyridium because the pain is still there. Could the antibiotic or the infectin have caused the change in my symptoms?
? I always thought that IC stabalized after a few years? I've tried sticking to the IC diet, I've tried some herbs and accupuncture. The accpuncture sent me to emergency...the Dr. said the needle hit a nerve...I read that accupuncture is 90% effective... I don't know what to try next. The wait to see a urologist in Canada is 6+ weeks....any suggestions till then?
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Dear Wendy
Thank you for your questions.
IC (interstitial cystitis ) as you know is a diagnosis of exclusion. I assume you have had cystoscopy which showed glomerulations (fractured blood vessels) after hydrodistention , the hydrodistention helped your symptoms and bladder biopsies showed inflammation and mast cells in the bladder wall. A positive potassium test maybe considered pathopneumonic for IC by some urologist.
A medline search over the last four years combining antibiotics and Interstitial Cystitis as textwords fail to produce any articles showing a cause and effect relationship.
Late deterioration in symptoms is unusual for IC. 50% of patients report a spontaneous remission independent of treatment. An average of 80 months duration of IC before remission is reported. For more information please see the answers to Jen and Amir dated 2/10/98 and Beth on 2/6/98.
You report your IC symptoms have been atypical:
On first of reading your history, I wondered if you have been worked up for endometriosis of the bladder. Endometriosis temporally gets better with pregnancy. Another clue to your history is if your pain at the same time of your menstrual cycle?
If yes, I would seek a gynecologist for a second opinion to your IC diagnosis.
If you do have IC; have you tried Elmiron, DMSO, silver nitrate or a repeat hydrodistention? In your case, these treatments are definitely worth a try. They probably will not result in a trip to the emergency room.
This information is provided for general medical information purposes only. Please consult your physician for diagnostic and treatment options pertaining to your specific medical condition. Dr. Kirkemo and Dr. Burks at our institution have great experience in interstitial cystitis. If you would like to make an appointment, please call us at (1-800-653-6568). We can also arrange local accommodations through this number if this is your need. Please bring any x-rays , pathology slides] (not just the reports) as well as any physicians’notes and lab test results that you may be able to obtain. These will help us greatly.
Hope this info helped and Good Luck
Sincerely;
HFHS-M.D. MS
* Keyword: Interstitial Cystitis
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