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Posted by Randy J. on May 08, 1999 at 18:48:05 I was born with extrophy of the bladder (it was outside my body). I've had many problems throughout my life do to this. The latest is now I'm having severe burning whenever I'm able to ejaculate. (Its quite a lot of work for me.) I've also been having a very chalky like urine flow around noon but not noticed any other times. On occasion, I've also been passing chunks in the urine flow. I just had the test of the dye pushed into the urethra from a cathiter and x-rayed for blockage. From those results the doctor now wants to do some type of test involving a tiny camera to see whats happening to my urethra. I am just a little concerned how this test works and what effects it may have to me. Has anyone else had this proceedure? Please post any responses to see if this is really what i want to do. Thank you, Randy J.
Posted by HFHS M.D.-SAL on May 10, 1999 at 13:42:21
Dear Randy,
Thanks for your question. After all that you have undergone to deal with your extrophy I can understand your reluctance to undergo something additional.
The x-ray of the inside of your urethra (urethrogram) may ;have demonstrated a urethral abnormality, but the cause of this is not apparent from just an x-ray. Scarring (stricture), tumor or diverticulum would be the most probable causes. By viewing the area directly (urethroscopy) your urologist can get a better idea as to the extent of any narrowing (size, length), denseness and if a tumor, a biopsy can often be performed. This procedure can be done in the office or hospital and has little in the way of complications. Your bladder can also be inspected for tumors at the same time (I would hope that this is being done on a regular basis already...cystoscopy). Also, the ;next step in dealing with the problem can be best planned following a direct visual evaluation of the problem.
This information is provided for general medical information purposes only. Please consult your physician for diagnostic and treatment options pertaining to your specific medical condition. The Henry Ford Hospital Department of Urology has experience in the evaluation and treatment of problems such as you describe. We would be most interested in helping you. You can reach us through our toll-free number 1-800-653-6568. We can also arrange local accommodations through this number if this is your need. Please bring any x-rays and pathology slides (not just the reports) as well as any physicians’ notes and lab test results that you may be able to obtain. These will help us greatly.
Good luck!
Sincerely yours,
HFHS M.D.-SAL
*keyword: urethrogram, extrophy
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