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Questions posted in the
The Urology Forum have been answered by urologists from Henry Ford Health System and by Dr. Kevin Pho.
Question Title: u.t.i. big trouble...Forum: The Urology Forum
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Hello, Would you please help me to post this to any sights you think might be helpful and share this any doctors you think might be helpful. I'm into alot of trouble and are looking anywhere for help. Thanks, Brian -------------------------- I am a 44 yr. old man ...19 yrs. C5 quadriplegic ,living in Tucson. I used external condom cath for years with a progressive history of symptomatic UTI... these were treated with antibiotics and averaged four to five times a year.My drainage was switched to indwelling superpupic two and a half yrs. ago. This was to reduce high pressure and hopefully bring improvement in life quality. The past year has been a downward spiral chronically symptomatic UTI’s (spasms, sweating, mounting abdominal pain and diminishing appetite) and no sustained relief. I have gone from Cipro to Macrobid to Geocillin to Cipro... I enjoyed an active life in a power recline chair.... working and driving a modified van daily. I also have a trained companion dog and we were going around town daily....to work... to market....to park etc.(some compromising for my cycling health issues). The past year’s continual high level of UTI challenge has digressed me through stages of not every day driving, to fewer hours up, to more days in bed, to always in bed for two months now. I have put alot of effort into health awareness and management. Over the years I have found periods of success with various approaches. Herbals (Uva Ursi,Buchu,Echinecia, Golden Seal, Marshmallow root, Cornsilk, and others). I’ve also tried Chinese herbals prescribed by acupuncturists (to raise Chi and suppress damp heat). I drink bottled water, unsweetened cranberry juice often supplemented with 1g. powdered vitamin C(3g/day). I’m drinking soy milk and eating mostly organic. My daily diet is nutritionally excellent. Oatmeal with fruit and yogurt for breakfast....fish, vegies,rice for lunch...afternoon snacks... and typical full dinner using beef, chicken, or tofu for protein and potatoes, yams, pasta for starch and salad or fresh vegies, often followed by a late night snack. Despite all of my awareness and diligence I find no stable ground. My symptoms have moved through periods of muscle and joint pain (degeneration) to a weakened state with sensory numbness (arms, neck and head, ringing ears, inflamed roof of mouth and skin changes). I think on top of the UTI history recent increases in challenge may be due to changing from condom to superpupic and or acquiring new viral or fungal pathogens(EBV,Candida....) . I have been tested negative for HIV. I have just started irrigating with .25% acetic saline 2x daily. Some have suggested using antibiotic irrigation and one doctor even suggested dilute betatine flushing though I have not tried these. Does anyone have any experience and suggestions which might help with this seemingly quite serious and frustrating condition? Thanks for any assistance. Brian McNelis brimac@azstarnet.com My current situation: HFHS M.D.-SAL
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