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von Willebrand Disease Community

WELCOME TO THE COMMUNITY: This Patient-To-Patient Community is for discussions relating to von Willebrand’s Disease (VWD), which is a bleeding disorder. It affects your blood's ability to clot.

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Avatar_universal
My name is Gabby, I'm 17 years old. I was diagnosed with vwd 5 years ago.I've struggled tremendously with this disease. I get infusions twice a week and occasional blood transfusions. I've been on my menstrual period since October of 201...
GabbyGal81 | Last answer
Avatar_universal
Has anyone heard of this dieases? I've been having clotting problems for as long as I can remember. From long lasting regular nose bleeds as a child. Up til having 4-5 month long periods as a preteen - teenager. I wasn't told until last ...
simplyfrustrated | Last answer
Avatar_universal
my 4 year old has VWD 2B and has bloody noses every so often. We give him aminocaproic (amicar) as prescribed but sometimes that doesn't help much. Being 4, we have a hard time getting him to sit still and he doesn't like to have anyon...
meleighmar | Last answer
Avatar_universal
I have vwd and just turned 40. In july 2012 had d and c due to bleeding bleeding returned that nov. Use the nasal spray which helped a bit. Bleeding is back. Take my birth control pill continuously but not working. Looking at ablation. ...
tigger9869 | Last answer
Avatar_universal
Things that you may not know about von willebrand .some food and medication like walnuts and ginger. walfren and some headache tables and heart medication thin your blood out .if you have von willebrand this can affect you.my grandmothe...
booboo1982 | Posted
Avatar_universal
Hi I was diagnosed with Von Williebrand's Disease five years ago due to bleeding during intercourse. After multiple tests (Paps, STD testing, HPV testing, Colposcopy, transvaginal ultra soumd, abdominal untrasound) my gyocologist found t...
jennymd18 | Last answer
Avatar_universal
Hi, I'm trying to decide whether I should see a doctor. Apologies in advance, this is a long post, but I'd really appreciate some advice and opinions. I am 33 years old and have never been diagnosed with a blood disorder and neither have...
Pips80 | Last answer
Avatar_universal
Hi! Im pregnant, my baby's due Feb 28th. I have VWD Type 1. The hematologist explained to me that since Im a type 1 that I shouldnt have any complications, God willing. But has anyone gone through a delivery having VWD??? Share your ...
MandysBump | Last answer
Avatar_universal
I was just diagnosed with what I believe the common name is Von Willebrand 2B disease. It is different from the rest because I actually clot too much. I am 24 weeks pregnant and am worried it will be passed on to my child. There is a ...
countrylib | Last answer
Avatar_universal
Well, when any one gets here - Hi - I have VWD Type 2A. Dont have a question, just thought I'd introduce myself!
Boo25 | Last answer
Avatar_universal
Recently I had an injury on my tibia. While there was obvious swelling (that went away with ice) and extreme pain, there is virtually no bruising on the surface. A few years ago my mother had a similar deep bone bruise, but no surface br...
shaetg | Last answer
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So another topic I have been trying find people in the same predicament (sp) as me. I was diagnosed with von Willibreand disease recently. For those that don't know it is a bleeding disorder. Not long after that I was diagnosed with F...
cambee0513 | Last answer
5142668_tn?1364234345
I am asking a strange question here because anyone who does NOT have VWD would automatically question why I did not bring my daughter to the hospital. So my lovely 3 year old daughter who has Type 1 VWD had an hour long nose bleed yester...
cambee0513 | Last answer
Avatar_universal
Hi, I was recently diagnosed with VWD after many years. I am trying to find support groups who can offer advice on living with this condition. I am so glad to have found this community! I am also a member at https://www.************/V...
stacygiano | Posted
Avatar_universal
First of all, forgive me for posting this in the VMD forum, but there doesn't appear to be a forum for other bleeding disorders. Full discloser: I'm an author, specifically of LGBT romance. I am presently trying to research a book I w...
ACGauthor | Last answer
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Does anyone here have elevated level of Von Willebrand Factor and Von Willebrand Activity?
463897_tn?1448485050
Please join us for discussion and support on our new Stem Cell Research Community Looking forward to seeing you soon! Memory Loss Community: http://www.medhelp.org/forums/hepa-B-phil/show/1423
MH Community Mgr | Posted
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I'm 14 and my period wont stop, it started last month, and it's been going for a good month now, i havent went to the doctor cuz i havent payed very much attention to it. I just thought it wasn't that serious, i mean...doesnt things happ...
xXJessicaXx54 | Last answer
Avatar_universal
Hello all: Scince 6 Years i am seeing a swelled vien in my right leg calf having lenght of 5 centimeter without discoloring and i didn't fell any pain and it impact visible on two vien in my foot. the swelled vien appearing all the t...
mirwais | Last answer
Avatar_universal
Hi
How did any of you with VWD conceive? I've been trying to conceive for over a year and half but it's very hard. I bleed for months at a time.... I have VWD Type 1... Sometimes I'm treated with Stimate... I want to conceive so badly......
hulahutgirl | Last answer
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