This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.
FURTHER READING ON DYSAUTONOMIA
Grubb POTS description including brief history and diagram--concise and low on jargon, thus handy for explaining the disorder to friends and family or as a starting point for those newly diagnosed
Grubb Overview on Syncope (Fainting) from Mechanisms to Treatments--again, a good starting point
National Dysautonomia Research Foundation Handbook (free pdf)--much longer than the preceeding articles but conveniently divided into chapters and full of useful information; addresses the many forms of dysautonomia
Dr. Grubb's book on Amazon.com --Dr. Grubb has published in many books on syncope, but the vast majority of these are written for cardiologists and might be too technical for laymen; this book, however, is written for professionals and laymen alike. (It's also significantly less expensive than medical school texts.)
New York Medical College Center for Hypotension--too much to fully describe here; explore the links to find a wealth of research findings pertaining to various topics.
Dysautonomia: A Family of Misunderstood Disorders --A brief history behind Dysautonomia, and related disorders.
Introduction to Orthostatic Intolerance ***Includes Description of "Poor Man's Tilt"*** --David S. Bell, MD discusses OI in the context of Chronic Fatigue Syndrome, but this is equally relevant in any case of orthostatic intolerance. As stated in the article, "Defined simply, OI is the presence of symptoms due to inadequate cerebral perfusion on assuming the upright posture. The usual symptoms include fatigue, nausea, lightheadedness, heart palpitations, sweating, and sometimes passing out." OI is a common feature of dysautonomia. This article is extremely popular because it contains a description of how to do a "poor man's tilt"--essentially a tilt table test without the tilt table, just with a blood pressure cuff. BE SAFE; talk to your doctor and do this with medical supervision and a "spotter" in case you faint/collapse. It is possible to have heart rhythm abnormalities (even in rare cases, asystole) during tilt table testing so medical supervision is key!
Dr. Grubb's 2008 POTS Article --Much is repeated from former articles; some updated information on treatments. Worth reading for those well-versed in POTS research, trying to stay abreast of the latest developments.
Orthostatic Hypotension and Autonomic Failure: --Diagnosis and Management. A little difficult to understand in some areas, specifically in the beginning, but offers helpful treatment options near the end, as well as some things to avoid. Written by Blair P. Grubb, Yousuf Kanjwal, Beverly Karabin and Nasar Imran.
Neually Mediated/Neurocardiogenic Syncope: --Short summary on NMS/NCS by Dr. Blair P. Grubb located on the NDRF website.
Hereditary Sensory and Autonomic Neuropathies: --Discusses types II, III (also known as Familial Dysautonomia), and IV. Genetics, diagnosis, and management.
Preventing Autonomic Crisis in Familial Dysautonomia: --Some Autonomic Crisis in FD may be preventable through a Tyramine avoidance diet.
Autoimmune Autonomic Neuropathies: --An article about the Autoantibodies to Ganglionic Acetylcholine Receptors in Autoimmune Autonomic Neuropathies written in the New England Journal of Medicine.
Mitochondrial Disease and Dysautonomia: --This DINET issue discusses the relationship between Mitochondrial Disease and symptoms of Dysautonomia.
Temperature Intolerance: --Discusses the temperature dysregulation frequently experienced in patients with Mitochondrial Diseases, and Autonomic Dysfunction.
Plunge in Blood Pressure Tied to Chronic Fatigue: --An article in John Hopkins Magazine from 1995 relating the debilitating fatigue symptoms associated with Chronic Fatigue Syndrome to the Orthostatic Intolerance experienced in Non-Familial Dysautonomias like Neurally Mediated Hypotention (NMH), and Postural Orthostatic Tachycardia Syndrome (POTS).
Orthostatic Intolerance in Chronic Fatigue Syndrome: --An article from the CFIDS Association of America website on diagnosing certain forms of Dysautonomia, (NMH & POTS), common to CFS patients.
Immune Mediated Autonomic Neuropathies: --Includes a list of antibodies associated with autonomic neuropathies.
Hyperadrenergic Postural Orthostatic Tachycardia Syndrome: --H-POTS in relation to Mast Cell Activation Disorders.
Baroreflex Failure: --An article from the New England Journal of Medicine on the diagnosis and treatment of Baroreflex Failure.
Pharmacology of the Autonomic Nervous System: --An ovewview of the effect Neurotransmitters have on the Autonomic Nervous System. This document seems to be intended for classroom use, but I still found it informative. Not exactly an "easy read" though.
Orthostatic Intolerance associated with NET Deficiency: --An article written in the New England Journal of Medicine on the occurance of Orthostatic Intolerance and Tachycardia associated wtih Norepinephrine-Transporter Deficiency.
Another Book on the Autonomic Nervous System: --Primer on the Autonomic Nervous System, Second Edition. Thorough, but expensive. Also not an "easy read", but good for research.
Neurovascular Findings in Chronic Orthostatic Intolerance: --An article written by Julian Stewart contrasting the differences between the Orthostatic Intolerance found in NCS, and POTS.
Orthostatic Intolerance: An Overview: --A simple overview of Orthostatic Intolerance including possible causes, and management.
Blood Volume and Blood Flow in POTS: --An article written by Julian Stewart discussing some of the differences in regional blood volume, and peripheral blood flow in high-flow, normal-flow, and low-flow POTS.