About This Community:

This patient support community is for discussions relating to epilepsy, safety, school issues, and transportation issues.

Font Size:
A
A
A
Background:
Blank
Blank
Blank

Questions for a Chiari NS~~

Hi here is a list to help with a Chiarians visit to a NS with the assumption this is a true chiari specialist.(if you are not sure, do ask how many patients the Dr has seen with this and related conditions)

 

- once you get a dx and the drs suggestions it will be easier to ask questions, so this can be a difficult task to be ready for.


- with that in mind, have someone along to jot down notes as to the drs suggestions as we can become like a deer in headlights.( ask if you can record this meeting too)


-Ask for a way to contact the Dr with questions you think of , after the appointment.


-If surgery is suggested, asked which type they do, and why.....ie- endoscopy, bony decompression, or PFD w/duraplasty and what kind of patch is used.



-after surgery, how often will you be seen by the dr for follow up visits, MRI's ect..


-is everyone in the OR covered by your insurance, ask for their names and contact( check this with your insurance comp)


-if you traveled to your NS, how long after you are released from the hospital, does he need you to stay in the area.



-when scheduling surgery, ask about local "houses" that you and your family can stay at lower rates.

ie- WI- Kathy's House- see our links page for more info.

TCI in NY has Variety House- see links page for more info


-will the Dr check you for related conditions like tethered cord, syringomyelia(syrinx) or EHlers-Danlos (rejection issues)


-what % of benefits does the Dr feel you should get from having surgery


-if you are not a surgical candidate at this time, ask what treatment options are available, Pain Management, meds, ect...and how often you will be monitored, via a visit or MRI.


-ask if the NS can refer you to a good Neurologist in your area that understands chiari.

MedHelp Health Answers
Recent Activity
1780921_tn?1384615710
Blank
flipper336 "Doubt everything. Finf you... Comment
11 hrs ago
6443793_tn?1391648899
Blank
Best ALS info updated
Sep 28 by LiliaMH
1780921_tn?1384615710
Blank
flipper336 commented on photo
Sep 24
Top Neurology Answerers
1780921_tn?1384615710
Blank
flipper336
Chandler, AZ
5466288_tn?1410488785
Blank
cramp_n_mystyle
Greensburg, IN
Go
Report
Rating
Category
Start Date
Jul 30, 2010
by selmaS
Last Revision
Jul 30, 2010
by selmaS