Long before WebMD or Yahoo!, MedHelp pioneered the field of consumer
health information on the Internet. The motivating force behind the
creation of MedHelp was deeply personal to its founders. Cindy and
Phil met in December 1993 in CompuServe's Med-Sig Forum, while
conducting research on illnesses afflicting their family members.
Phil's Story
Phil's daughter, Jennifer, was diagnosed
with a malignant brain tumor at the age of two. Phil and his wife
were faced with having to make nearly instantaneous life-and-death
decisions regarding her treatment, with little or no information to
support them. To further complicate their situation, several of the
neurologists involved disagreed about the diagnosis and possible
treatment options. Phil spent countless hours pouring through medical
journals, searching for what little information was available in
simple, non-medical terminology. His goal was to educate himself so
that he would be better able to make the decisions necessary to save
his daughter's life. Today, Jennifer is a healthy 21-year-old enjoying
life and attending university.
Cindy's Story
Cindy's mother became ill in 1981 with an
"unknown" illness that was slowly sapping the life out of her. It
wasn't until a trip to the Cleveland Clinic seven years later that
Cindy's mother was finally diagnosed with a rare disorder known as
Systemic Mastocytosis. After receiving the diagnosis, her mother
returned to her home, where she began seeing a Hematologist/Oncologist.
Sadly, her mother's condition continued to worsen and additional
problems, including urticaria pigmentosa and myelodysplasia, were
discovered. Her mother's weight had dropped from 135 to 70 pounds due
to all the complications.
In 1990, while researching her mother's illness, Cindy was referred to
a physician at the National Institutes of Health (NIH) who had just
begun to conduct research into Systemic Mastocytosis. Cindy called him
and described her mother's situation. The NIH physician contacted the
her mother's oncologist and recommended an increase in her Prednisone
dosage. Within two days, her mother began to gain weight again.
Unfortunately, she had deteriorated too far to make the long climb back
and passed away in 1991.
The Beginning of MedHelp
Having spent more than 16
years working with physicians and scientists within the pharmaceutical
and biotechnology industries, Cindy vowed that if she was ever in a
position to create a reliable resource for patients, which would give
them access to the highest quality medical information and support, she
would! And when she met Phil in the CompuServe Med-Sig Forum, it was an
opportunity to fulfill that dream. Phil had more than 15 years' experience
in advanced software development. Out of the combination of Phil's
technical expertise and Cindy's vast network of medical contacts, MedHelp
was born. In February of 1994, never having personally met, MedHelp was
launched.