Susanne Bross Emmerich, Executive Director 30 East 72nd St, New York, N.Y. 10021 U.S.A.
Tel: 212 452-1231 Fax: 212 452-1406 E-Mail:
ipif@ipif.org Web Site: http://imgen.bcm.tmc.edu/IPIF


Foundation Links

Incontinentia Pigmenti Links

Genetics and IP

Gene Discovery Links

Letter from the Founder and Executive Director

Description of Incontinentia Pigmenti

What is a gene?

What is important about the discovery of the gene called NEMO?

About the Foundation

Description of how to examine the eyes of a baby born with IP

Why is it difficult to find a gene?

Download the Nature article describing gene discovery

Current Newsletter

NEMO - the gene that causes IP

How are genetics involved in IP?

Press Release regarding discovery

Past Newsletters

What goes wrong in IP?

International IP Research Consortium

Support and Membership form

Does everyone have the same mutation?

After all the mutations have been uncovered what is the next step?

Scientific Advisory Council

Testing

What can be done for those with IP?

Bibliography of articles in medical journals written about IP

How is testing done and who should be tested?

Support Groups

Participate in the
IP Natural History Survey Project

Where to be tested

Translate: Francais, Deutsch, Italiano, Português, Español.

DISCLAIMER: Information provided by IPIF is, in no way, intended to be medical advice or replace the role of your own physician.