return to table of contentsThe NATIONAL INCONTINENTIA PIGMENTI FOUNDATION, INC. (IPIF) is a nonprofit organization whose main mission is education, family support, and encouraging and supporting research.
Incontinentia Pigmenti is categorized as an orphan disease. The definition is less than 200,000 cases have been identified in the United States. Why support a relatively unknown, rare disorder? There are more than 5,000 orphan diseases affecting some 20 million Americans, and many more worldwide. One out of every 12 people suffers from a rare disorder. Seeking the cure for one frequently provides vital information that applies to others. The only way to make progress is painstakingly to research each disease, one at a time. IPIF strives to take the leadership role in the search for the IP gene. The amount of money needed to fund research is more than IPIF is presently able to raise. By becoming a member and supporting IPIF, you will be helping in this effort. We rely upon contributions from individuals and private and corporate foundations. All funds go directly to research projects, support programs, and office maintenance. It will require much hard and inspired work and a great deal of financial support to realize our goals. We cannot accomplish this without turning to you for help. Please join us by making a contribution, mailing our brochure to your friends with a personal appeal enclosed, or requesting a matching grant from your employer.
Membership privileges include:
o Newslettero Reports on fundraising events.
o Articles written by IPIF members, SAC physicians, genetic counselors, and all other relevant IP news.
o Reprints of articles about IP from medical journals.
o Telephone and e-mail access to IPIF personnel.
I am interested in Incontinentia Pigmenti as:
______Individual with IP______Parent
______Relative
______Friend
______Physician
______Research
______Genetic Counselor
______Other
______Please send me additional information.
______I would like to be in touch with other families.
Yes, I wish to make a tax deductible contribution and become a member:
__$25 ___$50 ___$100 ___$250 ___ $500 ___Other
Please make checks payable to: IPIF
mail this form to:
Incontinentia Pigmenti International Foundation 30 East 72nd Street 16th Floor New York, NY 10021 U.S.A.
NAME_____________________________________________________________________________________All contributions are tax deductible. IPIF is a 501(c)3 organization, duly organized as a not-for-profit Type B Charitable Organization under the laws of the State of New York.STREET____________________________________________________________________________________
CITY_______________________________________________________________________________________
STATE________ZIP/Mail code______________________________COUNTRY___________________________
TEL:(day)______________________(evening)____________________FAX______________________________
EMAIL_____________________________________________________________________________________