WHAT CAN BE DONE FOR THOSE WITH IP?

The discovery of the gene that causes IP may not have a practical impact on IP patients or their families for some time. It is important to understand the biology of the NEMO gene product in order to devise potential therapies.

Research into therapies and better ways to treat specific symptoms must proceed while geneticists and biochemists strive to uncover the molecular mysteries of NEMO.

There is reason for hope. It may be possible to manipulate other biochemical pathways to compensate for the loss of function of NEMO.

One major advance that the discovery of NEMO allows is much more assured molecular diagnosis in both newborn and prenatal cases.