New Jersey
Group Clearinghouse
TOLL-FREE SPECIALTY NUMBERS
The
following toll-free numbers may be a helpful, cost-free resource for persons
seeking additional information on a particular subject. These non-profit
agencies provide information and referrals, literature and other services.
Adoption / Foster Care
Foster
and Adoptive Family Services (
National Adoption Center 1‑800‑862‑3678
Provides information on adoption agencies and support groups. Offers network
for matching parents and children with special needs. Fax: 215‑735‑9410.
Website: http://www.adopt.org E-mail:
nac@adopt.org
Aging / Senior Citizens
Eldercare Locator 1‑800‑677‑1116
(Mon.‑Fri., 9am‑8pm EST). Provides information for families and
friends of the elderly (60+). Makes referrals to area agencies on aging for
information on insurance, Medicaid, taxes, respite care, etc. Information for
disabled also provided on these subjects. Website:
http://www.eldercare.gov
Freedom
Eldercare (
National Council on the Aging 1‑800‑424‑9046;
Fax: 202‑479‑0735. Information to the aged, families and
professionals. Website: http://http://www.ncoa.org
National Institute on Aging 1‑800‑222‑2225
(voice/TDD); TDD/TTY: 1‑800‑222‑4225 Provides publications on
topics of interest to older adults, doctors, nurses, social activities
directors, health educators and the public. Sponsored by federal government. Website: http://www.nia.nih.gov
E-mail: niaic@jbs1.com
NJ
EASE (
Senior
Citizen Information and Referral (
AIDS
AIDS Information (Bilingual)
1‑800‑448‑0440; TDD/TTY: 1‑888‑480‑3739
Resource information on clinical trials for AIDS and HIV+ patients. Information
about current treatments and prevention techniques. Provides live online
assistance. Website: http://aidsinfo.nih.gov E-mail: contactus@aidsinfo.nih.gov
American Social Health Association (BILINGUAL) 1-800-227-8922 OR 919-361-8488
(Mon.-Fri., 9am-6pm EST) Provides information, materials and referrals
concerning all types of sexually transmitted infections. Specialists will
answer questions via phone or e-mail on transmission, risk reduction,
prevention, testing and treatment. Website:
http://www.ashastd.org or http://www.iwannaknow.org (for teens)
CDC National Prevention Information Network (Bilingual)
1‑800‑458‑5231 (Mon.‑Fri., 9am‑8pm); TTY:
1-800-243-7012 or 919-361-4892 Provides information on resources and support
groups, educational materials and business and labor responses to AIDS,
sexually transmitted diseases and tuberculosis, via touch tone phone. Many
different services and publications offered. Website: http://www.cdcnpin.org
E-mail: info@cdcnpin.org
CDC National STD/AIDS Hotline (BILINGUAL) 1‑800‑232-4636
(24 hr.); TTY: 1-800-232-6342 (24 hr.) Education and research about AIDS, HIV
and sexually transmitted diseases. Website: http://www.cdc.gov E-mail:
cdcinfo@cdc.gov
Gay Men's Health Crisis (Bilingual)
1‑800‑243‑7692 (Mon.-Fri., 10am-9pm; Sat., noon-3pm EST)
Provides information and referrals for persons affected by AIDS (including gay
men, lesbian women, bisexuals, transgendered, straight and immigrants). Website: http://www.gmhc.org
E-mail: lynns@gmhc.org
Project Inform (Bilingual)
1‑800‑822‑7422 (Mon.‑Fri., 10am‑4pm PST).
Provides information about experimental drugs, treatment of AIDS, volunteer
training programs. Quarterly newsletter, journal. Website: http://www.projectinform.org
E-mail: info@projectinform.org
Alcohol
Addictions Hotline of NJ 1-800-238-2333
(voice/TDD) (24 hr.) Crisis counseling, information and referrals for all kinds
of drug and alcohol related issues (both prescription and illegal drugs).
Community
Recovery (
National Association for Children of
Alcoholics 1‑888‑554‑2627 (8:30am-5pm EST) Advocates
for children and families affected by alcoholism and other drug dependencies.
Helps children hurt by parental alcohol and drug abuse. Newsletter, advocacy,
policy making, literature, videos, educational materials. Website: http://www.nacoa.org
E-mail: nacoa@nacoa.org
National Clearinghouse for Alcohol and
Drug Information (Bilingual) 1‑800‑729‑6686
or 301‑468‑2600; Spanish: 1‑877‑767‑8432;
TDD/TTY: 1‑800‑487‑4889; Fax: 301‑468‑6433.
Information on alcohol, tobacco, drug abuse and prevention. Referrals to
treatment centers, research, groups, drugs in the work place, community
programs, AIDS and addiction. Website: http://www.ncadisamhsa.gov E-mail: ncadi-info@samhsa.hhs.gov
National Council on Alcoholism
and Drug Dependence 1‑800‑622‑2255
(24 hr.). Provides information on counseling and treatment services for alcohol
or drug abuse. Prevention and education programs. Newsletter. Website: http://www.ncadd.org E-mail: mailto:national@mcadd.org
National Organization on Fetal Alcohol
Syndrome 1‑800‑666‑6327. Provides information and referrals
on fetal alcohol syndrome. Offers free packet of information. Website: http://www.nofas.org
ALOPECIA
AREATA
Locks of Love 1-888-896-1588
(recorded information) or 561-963-1677 Provides custom hairpieces to
financially disadvantaged children with long-term medical hair loss. Uses
donated hair. Website: http://www.locksoflove.org E-mail:
info@locksoflove.org
Alzheimer's DISEASE
Alzheimer's Disease Education and Referral Center 1‑800‑438‑4380
or 301‑495‑3311 (Mon.-Fri., 8:30am-5:30pm EST) Provides information
and publications on Alzheimer's disease to health and service professionals,
patients and their families, caregivers and public. Sponsored by National
Institute on Aging. Website: http://www.alzheimers.org
E-mail: adear@alzheimers.org
Alzheimer's
Disease Helpline (
American Health Assistance Foundation 1‑800‑437‑2423
(Mon.‑Fri., 9am‑5pm EST) Provides educational information and funds
research for Alzheimer's disease, glaucoma, heart disease and macular
degeneration. Website: http://www.ahaf.org
Attorney
Legal
Services of
National Organization of Social
Security Claimant's Reps 1‑800‑431‑2804 Provides
referrals to social security lawyers who assist claimants in getting social
security. Website: http://www.nosscr.org
Blind
American Foundation for the Blind 1‑800‑232‑5463
(Mon.‑Fri., 8:30am‑4:30pm); TDD/TTY: 212‑502‑7662
Clearinghouse of information and referrals for the blind. Catalog of
publications available. Website: http://www.afb.org E-mail:
afbinfo@AFB.net
American Health Assistance Foundation 1‑800‑437‑2423
(Mon.‑Fri., 9am‑5pm EST) Provides educational information and funds
research for Alzheimer's disease, glaucoma, heart disease and macular
degeneration. Website: http://www.ahaf.org
Braille Institute 1‑800‑272‑4553
(Mon.‑Fri., 8:30am‑5pm) Provides publications, cassettes and free books
for visually impaired children. Free Braille calendar. Referrals to resources.
Tapes on vision loss available to companies and organizations. Website: http://www.brailleinstitute.org E-mail: info@brailleinstitute.org
DB‑Link (National Information
Clearinghouse on Children Who Are Deaf/Blind) 1‑800‑438‑9376;
TTY: 1‑800‑854‑7013 Information and referral on education,
health, employment, technology, communication and recreation for children who
are deaf/blind. Newsletter. Website: http://www.nationaldb.org E-mail:
info@nationaldb.org
Glaucoma Research Foundation 1‑800‑826‑6693
or 415‑986‑3162 (Mon.‑Fri., 8:30am‑5pm PST) Phone
support network for persons with glaucoma. Free literature. Funds research. Website: http://www.glaucoma.org E-mail: info@glaucoma.org
Guide Dog Foundation 1‑800‑548‑4337
Provides seeing eye dogs to the blind free of charge. Website: http://www.guidedog.org
E-mail: info@guidedog.org
Guiding Eyes for the Blind 1‑800‑942‑0149
or 914‑245‑4024 (Mon.-Fri., 9am-pm EST) Dedicated to enriching the
lives of blind and visually impaired men and women by providing them with guide
dogs free of charge. Website: http://www.guiding‑eyes.org E-mail: info@guidingeyes.org or student@guidingeyes.org (for students
interested in guide dog trainings)
Hadley School for the Blind 1‑800‑323‑4238
or 847‑441‑8111; TTY: 847‑446‑4111 Provides free
distance education to blind and visually impaired persons using Braille
materials, large print or audio‑cassettes. Website: http://www.hadley.edu E-mail: info@hadley.edu
Library of Congress National Library
Blind and Physically Handicapped 1‑800‑424‑8567;
TDD: 202‑707‑0744 Refers callers to libraries that have information
on books on tapes and in Braille available for qualified blind or handicapped
persons who can't read standard print. Website:
http://www.loc.gov/nls E-mail: nls@loc.gov
NJ
Commission for the Blind and Visually Impaired (
Prevent Blindness
Recording
For The Blind and Dyslexic 1‑866‑732‑3585 (Mon.‑Fri., 8:30am‑4:30pm) Information
on free cassettes, recorded textbooks and consumer publications to eligible
handicapped persons. (Information on volunteer programs for recording tapes.)
Membership dues $100/1st year; $35 subsequent years. Worldwide services. Website: http://www.rfbd.org E-mail: custserv@rfbd.org
Research to Prevent Blindness 1‑800‑621‑0026
or 212‑752‑4333 (Mon.-Fri., 9am-5pm EST) Provides publications and information
on various eye diseases including macular degeneration, cataracts, glaucoma,
diabetic retinopathy, corneal disease, retinitis pigmentosa,
amblyopia/strabismus, uveitis,
as well as general information. Funds research. Website: http://www.rpbusa.org
Retinitis Pigmentosa
International 1‑800‑344‑4877 (8am-7pm PST) Provides
support and information for persons affected by retinitis pigmentosa
and their families. Supports research. Website:
http://www.rpinternational.org E-mail: RPInt@pacbell.net
Brain Tumor
Pediatric Brain Tumor Foundation 1‑800‑253‑6530
or 828‑665‑6891 Mission is to find the cause and cure of pediatric
brain tumors through the support of research; to aid in the early detection of
children’s brain tumors; to improve the quality of life of children
through better and less invasive treatment and to provide hope, emotional
support and information to children and their families. Website: http://www.pbtfus.org or http://www.ride4kids.org E-mail: pbtfus@pbtfus.org
BUSINESS
SCORE (Service Corps Of Retired Executives) 1‑800‑634‑0245
(Mon.-Fri., 8:30am-5pm EST) Provides counseling for starting or maintaining
businesses. Website: http://www.score.org
U.S. Small Business Administration 1‑800‑827‑5722;
TTY: 704-344-6640 (Mon.-Fri., 9am-5pm EST) Provides information, training and
literature on starting and financing small businesses. Website: http://www.answerdesk@sba.gov
Cancer
AMC Cancer Information and Counseling
Line 1‑800‑525‑3777 (Mon.‑Fri., 8:30‑5pm MST)
Provides current medical information and counseling for cancer issues. Website: http://www.amc.org
American
Cancer Society (MULTILINGUAL) 1‑800‑227‑2345
(24 hr.) Provides
information on issues related to cancer (services, transportation,
encouragement and support). Spanish and English speaking. Website:
http://www.cancer.org
BLOCH Cancer Hotline 1-800-433-0464
Networks persons with cancer and home volunteers with same type of cancer. Free
books about cancer. Website: http://www.blochcancer.org E-mail: hotline@hrblock.com
Cancer
Care, Inc. 1‑800‑813‑4673 Free counseling for cancer patients and their
families. Financial assistance, information and referrals, community and
professional education. Teleconference programs. On‑going telephone and
in‑person support groups. Website: http://www.cancercare.org E-mail: info@cancercare.org
Cancer Hope Network 1‑877‑467‑3638
(9am-5:30pm EST) One‑on‑one support offered to cancer patients and
their families undergoing cancer treatment from trained volunteers who have
survived cancer themselves. Website: http://www.cancerhopenetwork.org E-mail: info@cancerhopenetwork.org
Cancer Information Service (BILINGUAL) 1‑800‑422‑6237
Provides information about cancer and cancer‑related resources to
patients, the public and health professionals. Offers one‑on‑one
smoking cessation counseling and literature. Free publications. Sponsored by
National Cancer Institute. Website: http://www.cancer.gov
Cancer Research Institute 1‑800‑992-2623
or 212‑688‑7515 (Mon.-Fri., 9am-5pm EST) Provides general cancer
resource information. Supports leading‑edge research aimed at developing immunologic
methods of preventing, treating and curing cancer. Website: http://www.cancerreseaarch.org
E-mail: info@cancerresearch.org
CureSearch 1-800-458-6223 Active in the search to
cure childhood cancer. Involved with research, care, public awareness,
fundraising, information and newsletter. Website:
http://www.curesearch.org E-mail: info@curesearch.org
Dana Farber Cancer Institute Family
Studies Cancer Risk Line 1‑800‑828‑6622. Information on
familial cancers. Website: http://www.partners.org
Gilda Radner
Familial Ovarian Cancer Registry 1‑800‑682‑7426
(Mon.‑Fri., 9am‑5:30pm EST) Information on the warning signs of
cancer, diagnostic tests and family history. Sponsored by Roswell Park Cancer
Inst. Website: http://www.ovariancancer.com
Gynecologic Cancer Foundation 1‑800‑444‑4441
Makes referrals to physicians who specialize in the treatment of gynecological
cancer. Brochures, literature and online resources. Website: http://www.wcn.org E-mail: gcs@sba.com
Hereditary Cancer Institute 1‑800‑648‑8133
(Mon.‑Fri., 8am‑4:30pm CST) Studies family‑linked cancer.
Provides counseling, information on clinical trials, cancer and hereditary
factors. Website: http://www.medicine.creighton.edu/HCI E-mail: tinley@creighton.edu
International Myeloma Foundation 1‑800‑452‑2873
(8am-5pm PST) Provides information, seminars, grants and newsletter on myeloma.
Website: http://www.myeloma.org E-mail:
info@myeloma.org
Locks of Love 1‑888‑896‑1588
(recorded information) or 561-963-1677 (office)
Provides custom hairpieces to financially disadvantaged children with
long‑term medical hair loss. Uses donated hair. Website: http://www.locksoflove.org E-mail:
info@locksoflove.org
Look Good, Feel Better 1‑800‑227‑2345
Helps cancer patients improve their appearance during treatment. Free workshops
across the country. Website: http://www.cancer.org
Lung Cancer
Ovarian Cancer Research Fund 1‑800‑873‑9569
Dedicated to advancing and supporting laboratory and clinical research that
promotes the development of new therapies and techniques for early detection,
screening and treatment of ovarian cancer. Educational outreach, public
awareness projects, including videos and resource materials available. Website: http://www.ocrf.org
Patient Advocate Foundation 1‑800‑532‑5274
(8am-8pm EST) Provides education and legal counseling to cancer patients
(relative to a diagnosis) concerning managed care, discrimination, insurance
and financial issues. Website: http://www.patientadvocate.org E-mail: help@patientadvocate.org
Skin Cancer Foundation 1‑800‑754‑6490
(Mon.‑Fri., 9am‑5pm EST) Provides free packets of information on
skin cancer and treatment. Website: http://www.skincancer.org E-mail: info@skincancer.org
Susan G. Koman
Breast Cancer Foundation 1‑800‑462‑9273 (Mon.‑Fri.,
9am‑5:30pm CST) Information on breast cancer and breast health. Website: http://www.komen.org
Careers
Careers
Hotline (
National Job Corps Information Line (Bilingual)
1‑800‑733‑5627 (24 hr.) Referrals to job corps training for
persons 16‑24. Helps persons to earn high school equivalency diplomas.
CHARITY /
SERVICE ORGANIZATIONS
AmVets
1-800-244-6350 Makes referrals to used clothing collection agencies and
provides pick-up information.
Goodwill Industries
1-800-741-0186 Provides employment and
training services for people with disabilities and other disadvantaging
conditions (welfare dependency, illiteracy, criminal history, homeless). Website: http://www.goodwill.org
Volunteers of America
1-800-899-0089 (Mon.-Fri., 8am-6pm) Provides local human services programs and
opportunities for individual and community involvement in volunteer programs
that deal with social problems. Also has Retiree Volunteer Coalition.
Volunteers of American of Delaware
Valley 1-800-281-4354 or 856-854-7466 Provides local human service programs
and opportunities for individual and community involvement in volunteer
programs that deal with social problems. Also has Retiree Volunteer Coalition.
Child Abuse
American Humane Association 1‑800‑227‑4645
Child
Abuse Hotline (New
Child Help Inc. (Bilingual) 1‑800‑422‑4453
(24 hr.) or 480‑922‑8212 General information on child abuse and
related issues. Referrals to local agencies for child abuse reporting. Crisis
counseling. Website: http://www.childhelp.org
Child Welfare Information Gateway (BILINGUAL) 1-800-394-3366 (Mon.-Fri.,
8:30am-5pm EST) Provides information on all aspects of child maltreatment. Website: http://www.childwelfare.gov E-mail: info@childwelfare.gov
Prevent Child Abuse New Jersey 1‑800‑244‑5373
Provides information workshops, literature and child abuse prevention
information. Aim is to prevent child abuse (not for reports of active abuse
situations). Website: http://www.preventchildabuse.org
Project
Child Find (
U.S. Customs Service 1‑800‑232‑5378
Will take reports on child pornography on the internet. Aim is to stop this
form of child sexual abuse.
Child Care
Childcare
Hotline (
National Association for Family Child
Care (Bilingual) 1‑800‑359‑3817 (Mon.‑Fri.
8am‑5pm MST) Provides information and training for in‑home care
providers. Newsletter.
Child Support
CHOLESTEROL
UAB Eat Right 1‑800‑231‑3438
(Mon.‑Fri., 8am‑4pm EST) Provides information on nutrition and related topics (weight loss and cholesterol). Sponsored by Nutrition Info. Svcs.
ComplaintS
Directors Action Line (
Long
Term Care Systems (
Consumer
FDA Consumer Affairs 1‑888‑463‑6332
(Mon.‑Fri., 10am‑4pm) Information on any FDA‑regulated product
(food and drugs). Has information on rare illnesses, starting businesses,
freedom of information act, health and medical issues. Free literature.
Referrals to toll‑free numbers. Assists in emergency situations. Website: http://www.fda.gov
National Do Not Call Registry 1‑888‑382‑1222
An opportunity to limit the telemarketing calls that are received. The registry
was created to offer consumers a choice regarding telemarketing calls. Website: http://www.donotcall.gov
Opt Out 1‑888‑567‑8688
Organization that removes your name and address from all mailing lists offered
by the main consumer credit reporting agencies (Trans Union, Experian, Equifax
and Innovis) which advertise and send out new charge
card offers. When writing include your first, middle and last name (including
Jr., Sr., etc), current address, previous address (if you've moved in the last
six months), social security number, date of birth and signature.
Toy Safety Hotline 1‑877‑486‑9723
(8:30am-rpm EST) Provides information on toy safety. Brochures. Information on
best selling age‑appropriate toys. Website:
http://www.toyassociation.org
Credit Counseling
Consumer Credit Counseling Services 1‑800‑388‑2227
With touch‑tone phone, callers can find out about credit counseling
services in their local areas. Sponsored by the Nat'l Foundation for Consumer
Credit.
Crime Victims
GAINS Center 1‑800‑311‑4246
option 2 (Mon.-Fri., 8:30am-5pm EST) Provides information on services for
people with co‑occurring mental health and substance abuse disorders who
come in contact with the justice system. Provides technical assistance, needs
assessment and literature to communities. Website:
http://www.gainsctr.com E-mail: gains@prainc.com
Juvenile Justice Clearinghouse 1‑800‑851‑3420
(Mon.‑Fri., 10am‑6pm) Information and referrals regarding juvenile
justice programs and department of justice.
National Center for Victims of Crime 1‑800‑394‑2255
Provides information, referrals and advocacy to crime victims nationwide. An
affiliate to the National Crime Victim Bar Association which provides referrals
to file civil suit against perpetrators and other responsible individuals. Also
operates
National Criminal Justice Referral
Service 1‑800‑851‑3420 (Mon.‑Fri., 10am‑6pm EST)
Provides information on all aspects of the criminal justice system and support
for victims. Website: http://www.ncjrs.org
National
Stalking
(
Trafficking in Persons and Worker
Exploitation Helpline (MULTILINGUAL) 1-888-428-7581 (voice/TTY Mon.-Fri., 9am-5pm
EST) Provides opportunity to report trafficking crimes or get help.
“human trafficking” is a form of slavery and involuntary servitude
– examples include sexual exploitation, sweatshop workers, exploitation
of agricultural workers and individuals working as domestic servants.
Victims
of Crime Compensation Board (
We Tip Hotlines (Bilingual) 1‑800‑782‑7463
(general); 1‑800‑873‑7283 (felony) Takes reports on crimes or
felonies.
CYSTIC
FIBROSIS
Children's Organ Transplant
Association 1‑800‑366‑2682 (Mon.‑Fri., 8am‑5pm
EST) Provides public education on organ transplants. Assists families in fund‑raising
for transplant and transplant‑related expenses. Assistance for all
children and adults with cystic fibrosis who are
Cystic Fibrosis Foundation 1‑800‑344‑4823
(Mon.‑Fri., 8:30am‑5:30pm); Pharmacy: 1‑800‑541‑4959
Provides information, brochures, insurance information, pharmaceutical services
and updates on research. Website: http://www.cff.org E-mail: info@cff.org
Deaf
ASHA Hearing and Speech Helpline (Bilingual)
1‑800‑638‑8255 (Voice/TDD) (Mon.‑Fri., 8:30am‑5pm
EST) Information on speech, hearing and language disabilities. Referrals to
ASHA certified clinics. Database of information on listening devices. Sponsored
by American Speech Language and Hearing Assn. Website: http://www.asha.org E-mail: actioncenter@asha.org
Better Hearing Institute 1‑800‑327‑9355
or 703‑684‑3391 (Mon.‑Fri., 9am‑5pm EST) Information
and literature on any hearing‑related
issue. Website: http://www.betterhearing.org E-mail: mail@betterhearing.org
DB‑Link (National Information
Clearinghouse for Children Who Are Deaf/Blind) 1‑800‑438‑9376
(voice); TDD/TTY: 1‑800‑854‑7013 Information and referral on education, health, employment,
technology, communication and recreation for children who are deaf‑blind.
Newsletter. All services are free of charge. Website: http://www.tr.wou.edu/dblink
E-mail: dblink@tr.wou.edu
Described and Captioned Media Program
(DCMP) (BILINGUAL) 1-800-237-6213
(voice); TTY: 1-800-237-6819; (Mon.-Fri., 8:30am-5pm EST) Provides free loan
described and captioned educational media, clearinghouse of information related
to educational media access and a gateway to internet resources related to
accessibility. Free registration services. Sponsored by US Dept. of Education
and administered by the National Association of the Deaf. Website: http://www.cfv.org E-mail: info@cvf.org
Dial‑A‑Hearing Screening
Test 1‑800‑222‑3277 (Mon.‑Fri., 9am‑5pm EST)
Offers over the phone hearing screening for anyone (age 14+). Provides hearing
information and referral services. E-mail:
dahst@aol.com
Division
of Deaf and Hard of Hearing (
HEAR Now 1‑800‑648‑4327
(Mon.‑Fri., 8am‑5pm) Helps financially needy individuals obtain
hearing aids. Collects used hearing aids for recycling information and
referrals. Automated telephone line, leave message and call will be returned
within two days. Website: http://www.sotherworldmayhear.org
E-mail: nonprofit@starkey.com
Hearing Aid 1‑800‑521‑5247
or 734‑522‑7200 (Mon.‑Fri., 8am‑5pm EST) Provides
general literature on hearing aids and
hearing loss. Referrals to hearing instrument specialists. Leave name
and address and information will be mailed. Sponsored by Int'l Hearing Society.
Website: http://www.ihsinfo.org E-mail: amarkey@ihsinfo.org
Hearing
Aid Assistance to the Aged and Disabled (HAAAD) (
John Tracy Clinic for Preschool Deaf
Children 1‑800‑522‑4582 (Mon.‑Fri., 8am‑4pm PST) Information
and support for parents and preschool deaf children. Free correspondence course
for parents. Website: http://www.jtc.org
National Cued Speech Association 1‑800‑459‑3529
or 301-915-8009 (voice/TDD) Encourages and supports the use of cued speech for
communication, language development and literacy. Networking, literature,
advocacy, information and referrals, phone support, conferences and family
camps. Website: http://www.cuedspeech.org E-mail: info@cuedspeech.org
National Institute on Deafness
and Other Communication Disorders 1‑800‑241‑1044;
TTY: 1‑800‑241‑1055 Referrals to national agencies on
hearing, speech, language, smell, taste, voice and balance disorders. Publishes
fact sheets, brochures, information packets and newsletters. Website: http://www.nidcd.nih.gov E-mail: nidcdinfo@nidcd.nih.gov
DENTAL
Dental Care for Handicapped 1‑888‑471‑6334
(Mon.-Fri., 8am-5pm MST) Information on free dental care for qualified elderly,
disabled or chronically ill patients. Services include dentures, crowns or other
significant dental work. Website: http://www.nfdh.org
Depression
National Institute of Mental Health
Information Line (Bilingual) 1‑800‑421‑4211
(publications) Phone system that takes orders for free brochures on depression,
anxiety, etc. Website: http://www.nimh.nih.gov
Speak
Up When You're Down (
DIABETES
National Diabetes Education Program (Bilingual)
1‑800‑438‑5383 or 1‑800‑860‑8747
(Mon.-Fri., 8:30am-5pm EST) Provides educational information on diabetes.
Publishes "Do Your Level Best" kit and diabetes kit to public and
health care professionals. Sponsored by National Inst. of Diabetics, Digestive
and Kidney Diseases and Ctr. for
Diabetes Control and Prevention.
National Institute of Diabetes
and Digestive and Kidney Diseases 1‑800‑891‑5390
(kidney); 1‑800‑860‑8747 (diabetes); 1‑800‑891‑5389
(digestive diseases)(Mon.-Fri., 8:30am-5pm EST) Provides referrals and
literature on a broad range of subjects concerning diabetes, digestive
disorders, kidney disease, metabolic and endocrine disorders, hematological
diseases and urologic disorders. Website:
http://www.niddk.nih.gov E-mail: nkudic@info.niddk.nih.gov
Disability
Abledata 1‑800‑227‑0216
(Mon.-Fri., 8:30am-5:30pm EST) Provides information, publications and consumer
reviews of all types of assistive technologies for persons with disabilities.
Sponsored by Nat'l Inst. on Disability and
Rehab Research and
Access Board (Bilingual)
1‑800‑872‑2253 or 202‑272‑0080 (voice);
1-800-993-2822 or 202-272-0082 (TTY) Advocates for accessibility. Provides
publications and forms to press charges against agencies that are not
accessible. Website: http://www.access-board.gov E-mail: info@access-board.gov
Canine Companions for Independence 1‑866-224-3647
(Mon.-Fri., 8am-5pm PST) Trains dogs to assist people with physical and
developmental disabilities. Also has opportunities for people interested in
volunteering to raise puppies. Website: http://www.cci.org
Childcare Plus 1‑800‑235‑4122
Information and referrals to families of children (birth to 5) with
disabilities. Inclusion training for professionals. Website: http://www.ccplus.org E-mail:
ccplus@ruralinstitute.umt.edu
Disability Rights
Disabled American Veterans 1‑877‑426‑2838
(8:30am-4:30pm EST) Provides free, professional assistance to veterans and
their families in obtaining benefits and services earned through military
service and provided by the department of Veterans Affairs and other agencies
of the government. Guidelines for developing chapters. Website: http://www.dav.org E-mail:
feedback@davmail.org
Disabled and Alone 1‑800‑995‑0066
or 212‑532‑6740 (Mon.-Fri., 9am-5pm EST) Helps families and caretakers of a loved one
with a disability answer the question, “Who will look after my loved one
when I am gone?” by creating a “life plan” and carrying out
each family’s plan for their disabled loved one, as directed and funded
by the family. Website: http://www.disabledandalone.org E-mail:
info@disabledandalone.org
Division of Disability Services (
Easter Seals National Headquarters
Disability Helpline (Bilingual) 1‑800‑221‑6827
(Mon.‑Fri., 8:30am‑5pm CST) Provides disability resource packets
for children and adults with disabilities. Online directory available. Website: http://www.easterseals.com
Friends'
Health Connection (BILINGUAL) (
Job Accommodation Network 1‑800‑526‑7234
(voice); TTY: 1-877-781-9403 (Mon.‑Fri., 9am-6pm EST) Information on
accommodations for people with disabilities. Sponsored Office of Disability
Employment Policy and Dept. of the Labor. Website:
http://www.jan.wvu.edu E-mail: jan@jan.icdi.wvu.edu
Library of Congress National Library
Blind and Physically Handicapped 1‑800‑424‑8567;
TDD: 202‑707‑0744 (Mon.-Fri., 8:30am-5pm EST) Refers callers to
libraries that have information on books on tapes and in Braille available for
qualified blind or handicapped persons who can't read standard print. Website: http://www.loc.gov/nls
E-mail: nls@loc.gov
Lifeline Programs 1‑800‑792‑9745
(Mon.‑Fri., 8:30am‑5pm) Recorded
information on pharmaceutical and utility benefits for qualified seniors and
the disabled.
National Accessible Apartment
Clearinghouse 1‑800‑421‑1221 Maintains a database
of over 46,000 accessible apartments nationwide. Helps people with disabilities
find accessible apartments. Owners and managers may also use this service to
register their accessible units. Website:
http://www.accessibleapartments.org
E-mail: clearinghouse@naahq.org
National Council on Independent Living 1‑877‑525‑3400
or 202-207-0334; TTY: 202-207-0340 Provides information and referrals to
independent living centers. Website: http://www.ncil.org E-mail:
ncil@ncil.org
National Dissemination Center for
Children with Disabilities (Bilingual) 1‑800‑695‑0285
(voice/TT) or 202‑884‑8200 (voice/TTY) (Mon.‑Fri., 9am‑5pm
EST) Provides information on disabilities
with a special focus on children (birth to age 22). Services include
information, referrals, technical assistance to parents, educators, caregivers
and advocates. Referrals to support groups. Publications available for a small
fee. E-mail: nichcy@aed.org
National Institute for Rehab
Engineering 1‑800‑736‑2216 or 973-853-6585
Provides information, advice and referrals to people with all types of
disabilities about assistive technology equipment. Aim is to help people with
disabilities to be more independent and self‑sufficient. E-mail: nire@warwick.net
NJ
Protection and Advocacy, Inc. (
NJ
WINS (Work Incentive Programs) (New Jersey) 1‑877‑659‑4672 or 1‑888‑322‑1918
Enables social security administration beneficiaries with disabilities make
informed choices about work and assist them in exploring work incentives that
are available. Website: http://www.njwins.org
Northeast
ADA Center (BILINGUAL) 1‑800‑949‑4232
(voice, TDD and Spanish) Provides
free technical assistance to employers, individuals with disabilities, state
and local government agencies and others in the implementation of the Americans
with Disabilities Act. They also provide free training workshops and awareness
programs. Website: http://www.northeastada.org
Project
Child Find (
Special Needs Advocate for Parents
(SNAP) 1-800-872-5827 Support for parents of special needs children. Referrals
to educational advocates, support groups, attorneys and other resources.
Medical insurance problem solving. Assistance with estate planning. Newsletter,
speakers’ bureau and interactive bulletin boards. E-mail: info@ucp.org
Technical Assistance Alliance for
Parents Centers 1-888-248-0822; TTY: 952-838-0190 (Mon.-Fri., 8am-5:30pm
CST) Support and education for families of children with any disability.
Advocates for the Individuals with Disabilities Education Act. Literature,
training sessions, information and referrals. Website: http://www.talliance.org
E-mail: alliance@taalliance.org
Through the Looking Glass 1‑800‑644‑2666
(Mon.‑Fri., 8:30‑5pm) or 510‑848‑1112; TTY: 1‑800‑804‑1616 Phone
support, newsletter, information and referrals for disabled parents or parents
of disabled children. Website: http://www.lookingglass.org E-mail: tlg@lookingglass.org
Discrimination
Equal
Employment
Office for Civil Rights 1‑800‑368‑1019
(Mon.‑Fri., 8:30am‑5:30pm EST) Refers people who feel they have
been discriminated against. Sponsored by the Dept. of Health and Human
Services. Website: http://www.hhs.gov.ocr
Domestic Violence
National Domestic Abuse Helpline for Men and Women 1‑888-743-5754 Provides crisis intervention and
support services to men and women who are dealing with domestic violence. Website: http://www.dahmw.org
National Domestic Violence Hotline 1‑800‑799‑7233;
TTD: 1‑800‑787‑3224 (24 hr.) Information and referrals for
victims of domestic violence. Website: http://www.ndvh.org
NJ
Domestic Violence Hotline (
DOWN SYNDROME
National Down Syndrome Society 1‑800‑221‑4602
or 212‑460‑9330 (Mon.‑Fri., 9am‑5pm EST) Free packets
to new parents, information on education, support groups, medical research,
newsletter, phone support, information on conferences. Website: http://www.ndss.org E-mail: info@ndss.org
Drug Abuse
Addiction and the Family 1-800-488-3784
Provides general information on drug abuse and treatment. Brochures and
referrals to crisis counseling. Publications. Affiliated with
Addictions Hotline of NJ 1-800-238-2333
(voice/TDD) (24 hr.) Crisis counseling, information and referrals for all kinds
of drug and alcohol related issues (both prescription and illegal drugs).
Sponsored by NJ Division of Narcotics and Drug Abuse, Office on Prevention.
Community
Recovery (
Drug Policy Information Clearinghouse 1‑800‑666‑3332
(Mon.‑Fri., 10am‑6pm EST) Sends out information on drug abuse and
publications on national drug policies. Website:
http://www.whitehousedrugpolicy.gov
National Association for Children of
Alcoholics 1‑888‑554‑2627 (8:30am-5pm EST)
Advocates for children and families affected by alcoholism and other drug
dependencies. Helps children hurt by parental alcohol and drug abuse.
Newsletter, advocacy, policy making, literature, videos, educational materials.
Website: http://www.nacoa.org
E-mail: nacoa@nacoa.org
National Clearinghouse for Alcohol and
Drug Information (Bilingual) 1‑800‑729‑6686
or 301‑468‑2600; Spanish: 1‑877‑767‑8432;
TDD/TTY: 1‑800‑487‑4889 Information on alcohol, tobacco and
drug abuse and prevention. Referrals to treatment centers, research, groups,
drugs in the work place, community programs, AIDS and drug abuse. Website: http://www.ncadi-samhsa.gov E-mail:
ncadi-info@samhsa.hhs.gov
National Helpline (Bilingual)
1‑800‑662‑4357 or 1‑800‑729‑6686 (24 hr.)
Referrals to substance abuse treatment centers. Sponsored by
National Council on Alcoholism and
Drug Dependence 1‑800‑622‑2255 Provides information
on counseling and treatment services for alcohol or drug abuse. Prevention and
education programs. Newsletter. E-mail: national@mcadd.org Website:
http://www.ncadd.org
National Inhalant Prevention Center 1‑800‑269‑4237
Provides information and referrals to persons concerned about inhalants. Literature,
training and technical assistance. Conducts national inhalant and poisons
awareness week. Quarterly newsletter. Website:
http://www.inhalants.org E-mail: nipc@io.com
National PRIDE Youth Programs 1‑800‑668‑9277
(Mon.-Fri., 8:30am-4pm EST) Trains youth volunteers on how to conduct drug
prevention education. Website: http://www.prideyouthprograms.org
E-mail: info@prideyouthprograms.org
DWARFISM
Little People's Research Fund 1‑800‑232‑5773
or 410‑747‑1100 (Mon.‑Fri., 9am‑5pm EST) Networks
parents together. Referrals (primarily research) and literature on dwarfism.
Networks parents together. Website: http://www.iprf.org
Dyslexia / Learning Disabilities
International Dyslexia Association 1‑800‑222‑3123
or 410‑296‑0232 (Mon.‑Fri., 8:30am‑4:30pm EST) Provides
information and referrals for persons with dyslexia. Website: http://www.interdys.org E-mail: info@interdys.org
National Center for Learning
Disabilities 1‑888‑575‑7373 Provides information
and referrals for learning disabled adults and children. Website: http://www.ld.org
Recording
For The Blind and Dyslexic (
Eating Disorders
National Eating Disorders Association 1‑800‑931‑2237
(8:30am-4:30pm, Mon.-Fri., PST) Provides information on local professional
services and support groups nationwide for persons with eating disorders. Free literature,
training, conferences. Website: http://www.myneda.org E-mail:
info@nationaleatingdisorders.org
Education
Goodwill Industries 1‑800‑741‑0186
Provides employment and training services for people with disabilities and
other disadvantaging conditions (welfare dependency, illiteracy, criminal
history, homeless). Website: http://www.goodwill.org
HESAA
Hotline, The (
National Job Corps Information Line (Bilingual)
1‑877‑872‑5627 (24 hr.) Referrals to job corps training for
persons 16‑24. Helps persons to earn high school equivalency diplomas. Website: http://www.dol.gov
Energy / Utilities
Energy Efficiency and Renewable Energy
Clearinghouse 1‑877‑337‑3463 (Mon.‑Fri., 9am‑5:30pm)
Free information on energy efficiency and
renewable energy. Answers technical questions. Provides referral to
other organizations. Sponsored by Dept. of Energy. Website: http://www.eere.energy.gov
Lifeline
Utility Assistance Program (
NJ
Weatherization and Home Energy Assistance Program (
ENVIRONMENTAL
American Public Information on
Environment 1‑800‑320‑2743 (Mon.‑Fri.,
8:30am‑5pm CST) Information, education and aid to families with environmental
concerns. Website: http://www.americanpie.org E-mail: info@americanpie.org
Center for Disease Control and
Prevention Helpline 1-800-232-4636; TTY: 1-888-232-6348 Provides information
on emergency preparedness and response including bioterrorism, chemical
emergencies, radiation emergencies, mass casualties, natural disasters, severe
weather, recent outbreaks and incidence. Website: http://www.cdc.gov
EPA (Environmental Protection Agency) 1‑800‑426‑4791
(Mon.-Fri., 10am-4pm EST) Provides information on safe drinking water and
policy regulations on a variety of environmental concerns. Website: http://www.epa.gov/safewater
E-mail: sdwa@epa.gov
Indoor Air Quality Info Clearinghouse 1‑800‑438‑4318
(Mon.‑Fri., 9am‑5pm EST) Provides information and referral on
indoor air quality, pollutants and sources, health effects, control methods,
commercial building operations and maintenance. Sponsored by the EPA. Website: http://www.epa.gov/iaq/ E-mail: iaqinfo@aol.com
EPILEPSY
Epilepsy Information Service 1‑800‑642‑0500
Answers general questions on epilepsy. Free literature. Conducts workshops,
conferences. Website: http://www.wfubmc.edu
EYE CARE
Eye Care
FACIAL DISFIGUREMENT
Children's Craniofacial Association 1‑800‑535‑3643
(Mon.-Fri., 8:30am-4:30pm) Provides information and support for children with
craniofacial disfigurement and their families. Makes referrals to doctors and
support groups. Disseminates educational
booklets. Information on free medical clinics,
FACES: The National Craniofacial
Association 1‑800‑332‑2373 (Mon.‑Fri. 9am‑5pm
EST) Dedicated to assisting children and adults with craniofacial disorders
resulting from disease, accident or birth. Financial assistance, referrals to
support groups, newsletter, information and
referrals to services and medical professionals. Website: http://www.faces‑cranio.org
E-mail: faces@mindspring.com
FOOD HANDLING / FOOD CO-OP
Center for Food Safety and Applied
Nutrition 1‑888‑723‑3366 (Mon.‑Fri., 10am‑4pm
EST); TTY: 1-800-877-8339 Provides
information on food safety, cosmetics and colors, seafood and women’s
nutritional health. Sponsored by FDA. Website:
http://www.cfsan.fda.gov
Feeding America 1-800-771-2302
Provides hunger relief through a network of over 200 food banks and food-rescue
programs. Website: http://www.feedingamerica.org
Meat and Poultry Hotline (BILINGUAL) 1‑800‑535‑4555
OR 1-888-674-6854 (Mon.‑Fri., 10am‑4pm EST) Answers safe handling
questions. Information on food handling. Helps persons understand labels on
meat and poultry. Will answer questions about safe handling procedures.
Sponsored by US Dept of Agriculture. Website:
http://www.fsis.usda.gov E-mail: mphotline.fsis@usda.gov
Safe Tables
Our Priority (S.T.O.P.) 1‑800‑863‑7867 Support,
education and advocacy for victims and families of victims of food borne
infectious diseases, (E-coli,
salmonella listeria, shigella,
vibrio vulnificus and many
others). Phone and online networking, newsletter and annual
meeting. Website: http://www.safetables.org E-mail: director@safetables.org
FOOT CARE
Gambling
Council
on Compulsive Gambling of
National Council on Problem Gambling 1‑800‑522‑4700
Information, referrals to support groups and counseling for compulsive
gamblers. Website: http://www.ncpgambling.org E-mail: ncpg@ncpggambling.com
GASTROINTESTINAL
DISORDERS
National Institute of Diabetes and
Digestive and Kidney Diseases 1-800-891-5390 (kidney);
1-800-860-8747 (diabetes); 1-800-891-5359 (digestive diseases) (Mon.-Fri.,
8:30am-5pm EST) Provides referrals and literature on a broad range of subjects
concerning diabetes, digestive disorders, kidney disease, metabolic and
endocrine disorders, hematologic diseases and urologic disorders. Website: http://www.niddk.nih.gov E-mail: nkudic@info.niddk.nih.gov
GRANTS /
FUNDING
Foundation Center Customer Service 1-800-424-9836
Provides information on grant providers and funders. Grant writing for
non-profit projects. Offers course on proposal writing. Free library. Website: http://www.foundationcenter.org
Health
American Board of Medical Specialties 1-866-275-2267
or 847-491-9091 Will tell you if your physician is board certified. Website: http://www.abms.org
American Dietetic Association (Bilingual)
1‑877-877-1600 Information on diet. Referrals to dietitians. Brochures
sometimes available. Sponsored by
American Health Assistance Foundation 1‑800‑437‑2423
(Mon.‑Fri., 9am‑5pm EST) Provides educational information and funds
research for Alzheimer's disease, glaucoma, heart disease and macular
degeneration. Website: http://www.ahaf.org
American Running Association 1‑800‑776‑2732
or 301‑913‑9517 (Mon.‑Fri., 9am‑5pm) Information on
aerobic sports. Referrals to sports medicine clinics, podiatrists and
orthopedists. Website: http://www.americanrunning.org E-mail:
run@americanrunning.org
CDC Traveler’s Health Helpline 1-877-394-8747
Provides information for persons traveling overseas. Includes vaccinations, diseases,
safe food and water, traveling with children, persons with special needs, etc.
Website: http://www.cdc.gov/travel
Center for Human Genetics at Duke
University Medical Center 1‑800‑283‑4316 (Mon.-Fri., 8am-5pm
EST) Provides information on disorders currently under study by the Center for
Human Genetics. These include: Alzheimer's, ALS, autism, Bethlehem myopathy, Chiari malformation,
CMT, cardiovascular disease, facioscapulohumeral
muscular dystrophies, focal segmental glomerulosclerosis,
spastic paraparesis, glaucoma, benign intraepithelial
dyskeratosis, hypophosphatemic
rickets, limb‑girdle muscular dystrophy, MS, neural tube defects,
osteoarthritis, Parkinson's and tuberous sclerosis. See website for complete
list. Website: http://www.chg.duke.edu
Centers for Disease Control and
Prevention 1‑800‑232-4636 Provides information over
the phone on specific diseases. Website: http://www.cdc.gov E-mail: inquiry@cdc.gov
DES Action USA 1-800-337-9288
Information for women who were prescribed DES during pregnancy and their
children. Referrals and education for the public and health workers. Quarterly
newsletter.
FDA Office on Orphan Product
Development 1‑800‑300‑7469 Provides referrals for
persons who need a rare orphan drug. Website:
http://www.fda.gov/orphan
Health
Information (
March of Dimes 1‑888‑663‑4637
Dedicated to decreasing the incidence of birth defects, infant mortality, low
birth weight and lack of prenatal care. Provides information, referrals and
literature. Website: http://www.marchofdimes.com
Medicare + Choice Helpline Assistant (Bilingual)
1-800-633‑4227
Provides information on Medicare, Medigap and health
plan options. Publications, audiotapes. Sponsored by federal government. Website: http://www.medicare.gov
National Center on Complementary
and Alternative Medicine 1‑888‑644‑6226
or 301‑519‑3153; TDD/TTY: 1‑866‑464‑3615
(Mon.-Fri., 8:30am-5pm EST) Provides information on clinical trials and current
research projects conducted on alternative medicine. Website: http://www.nccam.nih.gov E-mail: info@nccam.nih.gov
National Immunizations Information
Hotline (Bilingual) 1‑800‑232‑4636; TTY: 1‑800‑232-6348
Information and referrals on immunizations for infants, adults and health care
professionals. Website: http://www.cdc.gov/nip E-mail:
nipinfo@cdc.gov
National Institute for Occupational
Safety and Health 1‑800‑232-4636 or 513‑533‑8326
Information on all aspects of occupational health and safety. Website: http://www.cdc.gov/niosh E-mail: eidtechinfo@cdc.gov
(for publications)
National Library of Medicine 1‑888‑346‑3656
(Mon.-Fri., 8:30am-8pm; Sat., 9am-5pm EST) Provides information and referrals
to help callers research health questions. Website:
http://www.nlm.nih.gov E-mail: custserv@nlm.nih.gov
National Women's Health Information
Center (BILINGUAL) 1‑800‑994‑9662;
TDD/TTY: 1‑888‑220‑5546 (Mon.‑Fri., 9am‑6pm)
Provides information and referrals for all women's health questions and any
questions on breast feeding. Website: http://www.womenshealth.gov
National Women's Health Resource
Center (BILINGUAL) 1‑877‑986‑9472
Provides information on women's health issues. Dedicated to helping women make
informed decisions about their health. Website:
http://www.healthywomen.org E-mail:
info@healthwomen.org
NJ
Family Healthline (
NORD (National Organization for Rare
Disorders) 1‑800‑999‑6673 or 203‑744‑0100
(in
"Su Familia"
Health Helpline (Bilingual) 1‑866‑783‑2645
(Mon.-Fri., 9am‑5pm EST) Provides confidential health information to
Hispanic patients and their families. Provides bilingual fact sheets for a wide
variety of health topics. Sponsored by the Nat'l
To Your Health (
UAB Eat Right 1‑800‑231‑3438
(Mon.‑Fri., 9am‑5pm EST) Information on nutrition and related topics (weight loss and cholesterol). Sponsored by Nutrition Info. Svcs.
Visiting Nurse Association of America 1‑888‑866‑8773
or 617‑737‑3200 Referrals to local Visiting Nurse Associations. Website: http://www.vnaa.org
E-mail: vnaa@vnaa.org
HEART
American
Health Assistance Foundation 1-800-437-2423 (Mon.-Fri., 9am-5pm
EST) Provides educational information and funds research for Alzheimer’s
disease, glaucoma and macular degeneration. Website: http://www.ahaf.org
American Heart Association 1‑800‑242‑8721
(24 hr.) Information on heart health and support groups. Website: http://www.americanheart.org
Cardiac Arrhythmias Research and
Education Foundation, Inc. 1‑800‑404‑9500 (Mon.‑Fri.,
9am‑5pm CST) Support, education and registry for individuals and families
affected by long QT syndrome and other genetic arrhythmias. Helps to create
community forums for mutual support. Website:
http://www.longqt.org E-mail: care@longqt.org
Texas Heart Institute Heart
Information Service 1‑800‑292‑2221 (8am-4pm CST) Answers
cardiovascular questions via phone, mail or e‑mail. Literature on
aneurisms, cholesterol and heart transplants, stroke patients, women and heart
disease. Information on support groups. Website:
http://www.texasheartinstitute.org
E-mail: his@heart.thi.tmc.edu
HOMOSEXUALITY
Gay and Lesbian National Hotline 1‑888‑843‑4564
(Mon.‑Fri., 4pm‑midnight; Sat., noon‑5pm EST) Provides
information and referrals for gays, lesbians, transgendered and persons with
questions about their sexuality. Information, referrals and peer counseling. Website: http://www.glnh.org
E-mail: info@glbtnationalhelpcenter.org
HOSPICE
Children's Hospice International 1‑800‑242‑4453
(Mon.‑Fri., 9am‑5pm EST); or 703‑684‑0330 (volunteer
information) Refers patients to hospices and
specialists in their areas. Bibliography, manuals. Website: http://www.chionline.org E-mail: info@chionline.com
Hospice Education Institute 1‑800‑331‑1620
(Mon.-Fri., 9am-4:30pm EST) Provides information and referrals regarding
hospice care. Website: http://www.hospiceworld.org E-mail: hospiceall@aol.com
Hospice Foundation of America 1‑800‑854‑3402
(9am-5pm EST) Provides education and information on hospice care. Sponsors
research. Offers teleconference series "Living with Grief" for
bereaved families. Audiotapes for clergy. Website:
http://www.hospicefoundation.org
National Hospice and Palliative Care Organization 1‑800‑658‑8898;
(SPANISH) 1-877-658-8896 (Mon.-Fri.,
9am-5pm EST) Information for hospice care for terminally ill persons. Referrals
to hospice programs nationwide. Website: http://www.nhpco.org E-mail:
caringinfo@nhpco.org
HOSPITAL
Believe in
Tomorrow Children’s Foundation 1-800-933-5470 (Mon.-Fri., 8:30am-5pm
EST) Provides retreat housing services to critically ill children and their
families. Offers “Hands on Adventures” program for critically ill
children. Hospital housing is available for patients at Johns Hopkins
Children’s Center. Website: http://www.believeintomorrow.org
Hill
National Association of Hospital
Hospitality Houses 1‑800‑542‑9730 (Mon.-Fri., 9am-5pm
EST) Makes referrals to hospital hospitality housing that provide lodging for
families of hospital patients and/or hospital outpatients. Website: http://www.nahhh.org
Shriner's Hospital 1‑800‑237‑5055
(Mon.‑Fri., 8am‑5pm EST) Information on free hospital care available
to children under the age of 18 needing treatment for burns, spinal cord
injury, cleft palate or orthopedic care. Website:
http://www.shrinershq.org
Housing
Community Connections 1‑800‑998‑9999;
Federal Relay Service 1‑800‑483‑2209 Provides information
about housing and community development, homeless prevention, first‑time
homebuyer programs, veterans and low-income housing and HUD. Website: http://www.com.org
Hope Now Alliance (BILINGUAL) 1-888-995-4673 Provides free
housing counseling in order to give struggling homeowners relief from
overwhelming mortgage payments. Private partnership organized by the federal
government to help homeowners who are struggling to pay the mortgage find the
right solution in order to avoid losing their homes.
Housing
and Mortgage Finance Agency (
National Accessible Apartment
Clearinghouse 1‑800‑421‑1221 Maintains a database
of over 46,000 accessible apartments nationwide. Helps people with disabilities
find accessible apartments. Owners and managers may also use this service to
register their accessible units. Website:
http://www.naahq.org
New Jersey Foreclosure Mediation
Hotline 1-888-989-5277 (Mon.-Fri., 8am-6pm) Program that provides information
to qualified homeowners facing foreclosure with free help from housing
counselors, attorneys and a neutral mediator to help resolve their home loan
delinquency. Homeowners must meet program criteria for assistance.
NJ Tenants Foreclosure Rights 1-888-576-5529
(Legal Services of New Jersey) Helpline for renters affected by the foreclosure
of their home. Ensures tenants’ rights to stay in their home during a
foreclosure and after the resale of the property are protected.
IMMUNE
DEFICIENCY
Jeffrey Modell
Foundation 1‑866-463-6474 (24 hr.) Provides information on
specific primary immune deficiency diseases. Referrals to major medical
centers, psychiatric and social support services. Information on insurance
reimbursement.
IMMIGRATION
IMPOTENCE
Impotence Information Center 1‑800‑843‑4315
Provides free information about the causes and treatments of impotence. This
includes brochures and a list of local physicians who treat impotence. Website: http://www.americanmedicalsystems.com
INCONTINENCE
Incontinence Information Center 1‑800‑843‑4315 Provides free information about the causes
and treatments of incontinence. This information consists of brochures and a
list of physicians who treat incontinence within the caller's geographic area. Website: http://www.americanmedicalsystems.com
Insurance
Insurance Information Institute 1‑800‑331‑9146
(9am-4:45pm EST) Provides information on home and auto insurance. Also provides
hints and literature on preventing theft and accidents. Has information on
organizations which have information on health and life insurance. Website: http://www.iii.org
KIDNEY DISEASE
American Kidney Fund (Bilingual)
1‑800‑638‑8299 (Mon.‑Thurs., 9am-5pm; Fri., 9am‑3pm
EST) Provides information, referrals and financial assistance to kidney
patients. Website: http://www.kidneyfund.org
Kidney and Urology Foundation of
America (Bilingual) 1‑800‑633‑6628 (Mon.-Fri.,
9am-5pm EST) Dedicated to helping persons afflicted with any debilitating
kidney, urologic or related diseases. Offers education, information, health
fairs, grants, patient scholarships, physician referrals, fellowship and
Pediatric Enrichment program. Website: http://www.kidneyurology.org
E-mail: info@kidneyurology.org
National Kidney Foundation (Bilingual)
1‑800‑622‑9010 (Mon.‑Fri., 8:30am‑5:30pm EST) Provides
education and research information on kidney disease. Referrals to local
affiliates. Website: http://www.kidney.org
Legislation
League
of Women Voters (
Legislative
Information and
Project Vote Smart 1‑888‑868‑3762
Non‑partisan information about all elected officials and candidates for
federal, state and local gubernatorial offices. Website: http://www.vote‑smart.org
U.S. Government Federal Information
Center (Bilingual) 1‑800‑688‑9889 (voice)
Information about federal government programs and agencies including patents,
taxes, jobs, social security, rules and regulations, passports, visas, dept. of
states and veteran affairs. Website: http://www.usa.gov
LEPROSY
American Leprosy Missions 1‑800‑543‑3135
(Mon.‑Fri., 8am‑5pm EST) Provides information on projects and programs that fight leprosy in 23 countries. Website: http://www.leprosy.org
E-mail: amlep@leprosy.org
Life‑Threatening IllNESS
Caring
Connections 1-800-658-8898 (Mon.-Fri., 8am-noon EST) Provides
information on projects and programs that fight leprosy in 23 countries.
Website: http://www.caringinfo.org
E-mail: consumers@nhpco.org
Catastrophic
Illness in Children Relief Fund (
Friends
of Karen (NJ, NY, CT) 1‑800‑637‑2774 (Mon.‑Fri, 9am‑5pm)
Dedicated to helping families with children affected by life‑threatening
illnesses. Provides emotional and financial assistance in the NY metropolitan area.
Information packets available. Website: http://www.friendsofkaren.org
Literacy
Literacy
Volunteers of New Jersey, Inc. (
National Literacy Hotline (BILINGUAL) 1-800-228-8813 (24 hr.)
Information and referrals to local literacy programs. Referrals for both
volunteers and people needing literacy services. Website: http://www.nifl.gov
LUNG DISEASE
Allergy and Asthma Network ‑
Mothers of Asthmatics (Bilingual) 1‑800‑878‑4403
Provides emotional support and patient education resources for persons with
asthma and allergies. Newsletter. Website:
http://www.aanma.org E-mail:
info@aanma.org
National Jewish Lung Line 1‑800‑222‑5864
(Mon.‑Fri., 8:30-4:30pm MST) Information and referrals. Registered nurses answer questions
on all types of lung diseases. Referrals to doctors. Free literature. Website: http://www.njc.org
E-mail: lungline@njc.org
Office on Smoking and Health 1‑800‑232-4636
(24 hr.) Provides information on the affects of tobacco on health, how to stop
smoking, second hand smoke and other current topics relating to tobacco.
Sponsored by Federal Government. Website:
http://www.cdc.gov/tobacco E-mail: cdcinfo@cdc.gov
Lyme Disease
Lyme
Disease (
National Lyme Disease Foundation 1‑800‑886‑5963
(need a touch tone phone) Provides information and referrals for Lyme disease.
Education, literature, advocacy.
MARRIAGE
Retrouvaille 1-800-470-2230 (leave message with
your town and state, a return call may take several days) For couples who have
a seriously troubled marriage. Couples spend one weekend together working to
save their relationship. Program is volunteer-run by couples whose marriages
were saved by their having participated in a Retrouvaille
weekend. The program may have a Catholic priest involved as a resource person
for some sessions, it is open to couples of any and no faith. The weekend
experience is followed by several weekly support group meetings. Suggested
donation is $350, but Retrouvaille never turns anyone
away.
MARROW
TRANSPLANT
Caitlin Raymond International Bone
Marrow Registry 1‑800‑726‑2824 or 508‑334‑8969
(Mon.-Fri., 8:30am-5pm EST) Comprehensive international resource for patients and
physicians conducting a search for unrelated bone marrow or cord blood donor. Website: http://www.crir.org
E-mail: info@crir.org
National BMT LINK 1‑800‑546‑5268
(Mon.-Fri., 8:30am-4:30pm EST) Provides information and referral for bone
marrow and stem cell transplants for patients, family and professionals.
Referrals to support groups. Peer‑support, online phone support groups,
information on becoming a donor and educational booklets. Website: http://www.nbmtlink.org
National Marrow Donor Program 1‑800‑627‑7692,
1‑800‑654‑1247 or 1‑800‑526‑7809 (Mon.‑Fri.,
8am‑6pm CST) Provides information on bone marrow and stem cell
transplants and information on becoming a marrow donor. Maintains computerized
databank of available tissue‑typed marrow donors nationwide. Provides
patient advocacy to assist patients through the donor search and transplant
process. Website: http://www.marrow.org
Mental Health
Compeer 1‑800‑836‑0475
(Mon.-Fri., 8:30am-5pm) Provides volunteer "friends" for children and
adults who receive mental health treatment. Website:
http://www.compeer.org E-mail: info@compeer.org
Family
Support Resources (
Girl’s and Boy’s Town
National Hotline (BILINGUAL) 1-800-448-3000;
TDD: 1-800-448-1833 (24 hr.) Provides crisis intervention, information and
referrals for general population. Free and confidential. Short-term crisis
intervention. Works with children and families. Website: http://www.girlsandboystown.org
Mental Health
National Alliance for Research on
Schizophrenia and Depression 1‑800‑829‑8289
Provides information on schizophrenia, depression and bipolar disorder. Has
information on research being conducted on these disorders. Newsletter,
literature, brochures. Website: http://www.narsad.org
National Institute of Mental Health
Information Center 1‑866-615-6464 or 301‑443‑4513
(Mon.-Fri., 8:30am-5pm EST) Provides information and literature on anxiety,
phobias, obsessive‑compulsive and depression. Leave name and mailing
address and they will mail literature to you. Website: http://www.nimh.nih.gov
NJ
Mental Health Cares Helpline (
NJ Psychiatric Association (
NJ
Psychological Association (
State
Division of Mental Health Helpline (
Value
Options (
MENTAL
RETARDATION – DEVELOPMENTAL DISABILITIES
American Association on Mental
Retardation 1‑800‑424‑3688 (Mon‑Fri, 9am‑5pm
EST) Provides general information on mental retardation. Website: http://www.aamr.org E-mail: anam@aamr.org
Clearinghouse on Aging and
Developmental Disabilities 1-800-996-2245; TTY: 312-413-0453 Aim is to
promote independence, productivity, inclusion and self-determination of older
adults with mental retardation. Provides training, technical assistance and
materials to patients, families and professionals.
METABOLIC
DISORDERS
National Institute of Diabetes and
Digestive and Kidney Diseases 1‑800‑891‑5390
(kidney); 1‑800‑860‑8747 (diabetes); 1‑800‑891‑5389
(digestive diseases) Provides referrals and literature on a broad range of
subjects concerning diabetes, digestive disorders, kidney disease, metabolic
and endocrine disorders, hematological diseases, urologic disorders. Website: http://www.niddk.nih.gov E-mail:
nkudic@info.niddk.nih.gov
NIH Osteoporosis and Related Bone Diseases Resource Center (Multilingual)
1‑800‑624‑2663 or 202‑223‑0344 (Mon.-Fri.,
8:30am-5pm EST); TDD: 202‑466‑4315 Provides written information to
patients, professionals and the public with resources and information on
metabolic bone diseases such as osteoporosis, Paget's disease, osteogenesis imperfecta and
primary hyperparathyroidism. Annotated bibliography on current research to
professionals. Website: http://www.osteo.org E-mail:
osteoinfo@osteo.org
World Life Foundation 1‑800‑289‑5433
Provides support, research, information and referrals for persons interested in
rare metabolic disorders. Provides air transportation for ambulatory patients
who need non‑emergency treatment.
Military / Veterans
Army
Community Service/Family Support (
Army
Wounded Soldier and Family Hotline 1-800-984-8523
(Mon.-Fri., 7am-7pm EST) Offers wounded and injured soldiers and family members
a way to seek help to resolve medical issues and to provide an information
channel of soldier medically related issues directly to senior Army leadership
so they can improve how Army serves the medical needs of soldiers and their
families.
Community
Recovery (
Department of Veterans Affairs 1‑800‑827‑1000
(Mon.‑Fri., 8‑4pm EST) Provides comprehensive information on
available programs and services for veterans including pensions, vocational
rehab, survivor's benefits, presidential memorial certificates, education
programs, home loan programs for dependents. Special programs for disabled,
homeless, minority and women veterans. Website:
http://www.va.gov/ or http://www.va.gov/womenvet
Disabled American Veterans 1‑877‑426‑2838
(8:30am-4:30pm EST) Provides free, professional assistance to veterans and
their families in obtaining benefits and services earned through military
service and provided by the department of Veteran Affairs and other agencies of
the government. Guidelines for developing chapters. Website: http://www.dav.org E-mail: feedback@davmail.org
Disabled Veterans Assistance Line 1‑800‑378‑4559
ext. 2 Provides assistance and referrals
for returning disabled service members, recently medically retired service
members and spouses of disabled service members. Supports veterans of Operation
Iraqi Freedom, Operation Enduring Freedom, as well as all disabled veterans of
other conflicts, campaigns or wars and disabled children.
National Veterans Service Fund, Inc. 1‑800‑521‑0198
(Mon.‑Fri., 9am‑4pm, EST) Provides social
services for
Paralyzed Vets of
VA Special Issues Helpline 1‑800‑749‑8387
(8am-4pm CST) Refers Gulf war veterans and veterans affected by Agent Orange
with medical problems to local Gulf war and agent orange coordinators at local
VA medical centers. Other special issues addressed.
Veterans Affairs Suicide Hotline
1-800-273-8255 (when connected, press 1) (24 hr.) Suicide prevention help for
veterans with emotional crisis. Staffed by mental health professionals working
with local VA mental health providers to help callers.
Veterans
Counseling Hotline (
Veterans of the Vietnam War, Inc. 1‑800‑843‑8626
(Mon.‑Fri., 8‑4pm) or 570‑603‑9740 (general
information) Veterans in Conflict with the Law Program: 1‑800‑843‑8626.
Membership organization open to all veterans and their supporters. Educates
public about post‑traumatic stress disorder, veteran health issues, Agent
Orange and POW/MIA issues. Maintains a Find‑a‑Vet locator service.
Publishes newsletter. Works with homeless veterans and incarcerated vets. Website: http://www.vvnw.org
E-mail: vvnwnatl@epix.net
MISSING
CHILDREN
Child Find of America Hotline 1‑800‑426‑5678
(Mon.‑Fri., 9am‑5pm EST) Helps parents to locate children. Helps lost
children who need assistance. Also offers support services. All services are
free. Website: http://www.childfindofamerica.org E-mail: information@childfindofamerica.org
Vanished Children
MULTIPLE
SCLEROSIS
Multiple Sclerosis Foundation 1‑800‑441‑7055
or 1-888‑673‑6287 (Mon.‑Fri., 9am‑7pm EST) Support
services for those diagnosed with multiple sclerosis. Grants for research,
information and referrals on traditional and alternative treatments. Online
doctors forum. Newsletter. Phone support. Website:
http://www.msfocus.org E-mail: support@msfocus.org
MUSCULAR
DYSTROPHY
Muscular Dystrophy Family Foundation,
Inc. 1‑800‑544‑1213 (Mon.‑Fri., 8:30am‑3:30pm)
Provides services, resources, home medical equipment and adaptive devices to
help people with muscular dystrophy and their families. Provides comprehensive
direct services. Website: http://www.mdff.org E-mail:
mdff@mdff.org
NEPHROGENIC
DIABETES INSIPIDUS
Nephrogenic Diabetes Insipidus
Foundation 1-888-376-6343 Provides information and support to
persons affected by nephrogenic diabetes insipidus. Website: http://www.ndif.org
E-mail: info@ndif.org
NEUROLOGICAL
IMPAIRMENT
National Institute of Neurological
Disorders 1‑800‑352‑9424 (Mon.‑Fri., 8:30‑5pm EST)
Provides information on neurological disorders and stroke. Sponsored by NIH. Website: http://www.ninds.nih.gov
Nicotine Helpline
NJ
Quitline (
Office on Smoking and Health
1-800-232-4636 (24 hr.) Provides information on the affects of tobacco on
health, how to stop smoking, second hand smoke and other current topics relating
to tobacco. Sponsored by Federal Government. Website: http://www.cdc.gov/tobacco
E-mail: tobaccoinfo@cdc.gov
Organ Donation
Children's Organ Transplant
Association 1‑800‑366‑2682 (Mon.‑Fri., 8am‑5pm
EST) Provides public education on organ transplants. Assists families in fund‑raising
for transplant and transplant‑related expenses. Assistance for all
children and adults with cystic fibrosis who are
Living Bank ‑ National Organ and
Transplant Registry (Bilingual) 1‑800‑528‑2971
Provides donor cards, educational materials and referrals to medical schools
for persons wishing to donate their bodies after death. Website: http://www.livingbank.org
E-mail: info@livingbank.org
National Foundation for Transplants 1‑800‑489‑3863
(Mon.‑Fri., 8:30am‑4:30pm CST) Provides support services, financial
assistance and advocacy to adult and child organ and bone marrow transplant
candidates and recipients. Assists in fund‑raising activities. Website: http://www.transplants.org E-mail: jhill@transplants.org
National Minority Organ Tissue
Transplant Education Program 1-800-393-2839 Provides educational
information on preventative measures and organ transplants. Referrals to
physicians. Website: http://www.nationalmottep.org
OSTEOPOROSIS
NIH Osteoporosis and Related Bone Diseases Resource Center (Multilingual)
1‑800‑624‑2663 or 202‑223‑0344 (Mon.-Fri.,
8:30am-5pm EST); TDD: 202‑466‑4315 Provides written information to
patients, professionals and the public with resources and information on
metabolic bone diseases such as osteoporosis, Paget's disease, osteogenesis imperfecta and
primary hyperparathyroidism. Annotated bibliography on current research to
professionals. Website: http://www.niams.nih.gov/bone
E-mail: niamsboneinfo@mail.nih.gov
Osteoporosis Helpline 1‑888‑934‑2663
Provides general information and fact sheets on the symptoms, causes and
treatment of osteoporosis. Offers referrals to osteoporosis specialists. E-mail: toneyourbones@uab.edu
PAGET’S
NIH Osteoporosis and Related Bone Diseases Resource Center (Multilingual)
1‑800‑624‑2663 or 202‑223‑0344 (Mon.-Fri.,
8:30am-5pm EST); TDD: 202‑466‑4315 Provides written information to
patients, professionals and the public with resources and information on
metabolic bone diseases such as
osteoporosis, Paget's disease,
osteogenesis imperfecta and
primary hyperparathyroidism. Annotated bibliography on current research
to professionals. Website: http://www.osteo.org E-mail:
osteoinfo@osteo.org
Paget's Foundation 1‑800‑237‑2438
or 212‑509‑5335 (Mon.‑Fri., 9am‑5pm EST) Information,
brochures, patient's guide, doctor referrals, professional packets and
newsletter on Paget's disease of the bone, as well as primary hyperparathyroidism.
Website: http://www.paget.org E-mail:
pagetfdn@aol.com
Parenting
Healthy
Families (
Kinship
Navigator Program (BILINGUAL) (
PARKINSON’S
National Parkinson's Foundation 1‑800‑327‑4545
(Mon.‑Fri., 9am‑5pm EST) Professional will answer any question on
Parkinson disease. Website: http://www.parkinson.org E-mail: mailbox@parkinson.org
Parkinson's Disease Foundation, Inc. 1‑800‑457‑6676
Provides Parkinson's disease research, patient education and advocacy for
increased federal funding for individuals with Parkinson's, their families and
caregivers. Website: http://www.pdf.org E-mail:
info@pdf.org
PESTICIDES
Pet Loss Support
PetFriends (
Pet Loss Support Hotline 1‑800‑565‑1526
(Mon.-Fri., 6:30-9:30pm PST) Offers a non‑judgmental outlet for people to
express their feelings and concerns when faced with difficult times regarding
their pets. Staffed by veterinary students with grief training.
Poison
New
Jersey Poison Control Centers (
Police Officers HELPLINE
Cop‑to‑Cop
(
Prescriptions, Low Cost
PAAD
(Pharmaceutical Assistance) (
Partnership for Prescription
Assistance 1-888-477-2669 Mails a directory of various
pharmaceutical assistance programs for persons who cannot afford prescriptions
on their own. Website: http://www.pparx.org
Rx4NJ
(A Partnership for Prescription Assistance) (
Senior Gold Prescription Discount
Program (
Pregnancy / Childbirth
Antiepileptic Drug Pregnancy Registry (Multilingual)
1‑888‑233‑2334 (9am‑5:00pm EST) Registry of women who
are taking antiepileptic drugs and who are pregnant. Helps to determine which
medications are associated with increased risks. Physicians are encouraged to
refer women. Website: http://www.aedpregnancyregistry.org
Family
Helpline (MULTILINGUAL)
(
National Abortion Federation 1‑800‑772‑9100
(Mon.‑Fri., 8am‑9pm; Sat.‑Sun., 9am‑5pm EST)
Information and referrals regarding abortions. Financial aid. Website: http://www.prochoice.org
National Hispanic Prenatal Helpline (Bilingual)
1‑800‑504‑7081 (Mon.-Fri., 9am‑6pm EST) Provides health
information on pregnancy, referral to healthcare centers and doctors. Sponsored
by the Nat'l
National Life Center, Inc. 1‑800‑848‑5683
(24 hr.) Provides counseling and information for pregnant women. Referrals to
testing sites, baby clothes and formula. Website:
http://www.nationallifecenter.com
E-mail: nlc1stway@snip.net
OTIS (Organization of Teratology
Information Services) (Multilingual) 1‑866‑626‑6847
(Mon.‑Fri., 8:30am‑4pm PST) Provides local referrals to agencies
that provide information concerning prenatal drug, medication, chemical and
other potentially harmful exposures. Literature. Website: http://www.otispregnancy.org/ E-mail:
otispregnancy@pharmacy.arizona.edu
Planned Parenthood (Bilingual)
1‑800‑230‑7526 Referrals to neighborhood planned parenthood
clinics nationwide. Website: http://www.plannedparenthood.org
Pregnancy Hotline 1‑800‑238‑4269
(24 hr.) Information and counseling to pregnant women. Referrals to free
pregnancy test facilities, foster and adoption centers. Sponsored by Bethany
Christian Services. Website: http://www.bethany.org
Pregnancy
Hotline (
Safe Place for Newborns/Newborn
Lifeline Network 1‑877‑440‑2229 (24 hr.) Provides
referrals to locations where mothers can safely and anonymously take their
babies to be placed for adoption. Website:
http://www.safeplacefornewsborns.com E-mail:
safeplace@safeplacefornewborns.com
PROSTATE
Prostatitis Foundation 1‑888‑891‑4200
Provides support and education to men with prostatitis.
Encourages research funding. Information and referrals. Newsletter $1. Website: http://www.prostatitis.org
PROSTITUTION
HIPS Hotline 1‑800‑676‑4477
Provides crisis peer counseling and support for persons involved in or affected
by, the sex industry. Counseling and information provided for sex workers and
their families in a non‑judgmental, supportive atmosphere. Website: http://www.hips.org
Psychiatrist/Psychologist
NJ
Psychological Association (
RADIATION
Center for Disease Control and
Prevention Helpline 1-800-232-4636; TTY: 1-888-232-6348 Provides information
on emergency preparedness and response including bioterriorism,
chemical emergencies, radiation emergencies, mass casualties, natural
disasters, severe weather, recent outbreaks and incidence. Website: http://www.cdc.gov
Rape / INCEST
/ SEXUAL ABUSE
National Sexual Violence Resource
Center 1-877-739-3895 Provides information and referrals relating to all
aspects of sexual violence to persons and agencies. Resources include
statistics, research, legal, statutes and prevention. Not for crisis
situations. Website: http://www.nsvrc.org
National Teen Dating Abuse Helpline 1-866-331-9474
(24 hr.); TTY: 1-866-331-8453 Provides support, crisis intervention,
problem-solving techniques and referrals for victims of dating abuse ages
13-18, their families and advocates. Limited information and referrals for
batterers is available as well.
RAINN (Rape,
Abuse and Incest National Network) 1‑800‑656‑4673 (24
hr.) Provides support and confidential crisis counseling
for victims of sexual assault. Callers are automatically routed to the
crisis center nearest to them. Website: http://www.rainn.org E-mail:
info@rainn.org
REHABILITATION
American Medical Rehabilitation
Providers Association 1‑800‑368‑3513 or 1‑888‑346‑4624
Refers callers to rehabilitation hospitals or centers.
Center for Assistive Technologies 1‑800‑726‑9119
(voice/TTY) Provides information on products, technology, resources and
services for persons with disabilities. Website:
http://www.assistivetech.net E-mail:
catea@coa.gavtech.edu
REYE’S
SYNDROME
National Reye's Syndrome 1‑800‑233‑7393
(Mon.‑Fri., 9am‑5pm EST) Guidance to families affected by Reye's
syndrome. Helps increase public awareness. Fundraising. Website: http://www.reyessyndrome.org E-mail:
nrsf@reyessyndrome.org
ROSACEA
National Rosacea
Society 1‑888‑662‑5874 Information and educational materials
on rosacea. A chronic, acne‑like condition of
the facial skin. Website: http://www.rosacea.org
RUNAWAYS
National Runaway Switchboard 1-800-786-2929
(24 hr.) Provides crisis intervention, information and referrals for runaways re:
shelter, counseling, food pantries and transportation. Suicide and crisis counseling. Greyhound bus tickets
available for qualifying kids. Parents are welcome to call for assistance. Website: http://www.1800runaway.org E-mail:
info@1800runaway.org
RURAL ISSUES
SCLERODERMA
Scleroderma Research Foundation 1‑800‑441‑2873
(Mon.-Fri., 9:30am-5:30pm PST) Provides referrals to doctors and clinics
nationwide that treat scleroderma. Conducts research into the cause and cure of
scleroderma. Website: http://www.srfcure.org
SELF ABUSE
SAFE (Self‑Abuse Finally Ends)
Alternative Info Line 1‑800‑366‑8288 (Mon.-Fri., 8am-4pm CST)
Provides recorded information on dealing with self‑abuse and self‑mutilation
and treatment options. Website: http://www.selfinjury.com
SEXUALLY
TRANSMITTED DISEASES
American
Social Health Association (BILINGUAL) 1-800-227-8922
or 919-361-8488 (Mon.-Fri., 9am-6pm EST) Provides information, materials and
referrals concerning sexually transmitted infections. Specialists will answer
questions via phone or e-mail on transmission, risk reduction, prevention, testing
and treatment. Website: http://www.ashastd.org
or http://www.iwannaknow.org (for
teens)
CDC National Prevention Information
Network (Bilingual) 1‑800‑458‑5231
(Mon.‑Fri., 9am‑8pm EST); TTY: 1‑800‑243‑7012 or
919-361-4892 Provides information on resources and support groups, educational
materials and business and labor responses to AIDS, sexually transmitted
diseases and tuberculosis, via touch tone phone. Many different services,
publications offered. Website: http://www.cdcnpin.org E-mail:
info@cdcnpin.org
CDC National STD/AIDS Hotline (BILINGUAL)
1-800-232-4636
(24 hr.) TTY: 1‑800‑232-6342 (24 hr.) Education and research about
AIDS, HIV and sexually transmitted diseases. Website: http://www.cdc.gov E-mail:
cdcinfo@cdc.gov
Social Security
National Organization of Social
Security Claimant's Reps 1‑800‑431‑2804 (Mon.-Fri.,
9am-5:30pm EST) Provides referrals to social security lawyers who assist
claimants in getting social security. Website: http://www.nosscr.org
NJ
WINS (Work Incentive Programs) (New Jersey) 1‑877‑659‑4672 or 1‑888‑322‑1918
Enables social security administration beneficiaries with disabilities to make
informed choices about work and assist them in exploring work incentives that
are available. Website: http://www.njwins.org
Social Security 1‑800‑772‑1213;
TTY: 1-800-325-0778 (Mon.-Fri., 7am-7pm EST) Provides information on all
aspects of social security, supplemental security income and Medicare. Can speak
with a person or use touch‑tone phone to hear messages Website: http://www.socialsecurity.gov
Spinal Cord Injury
Christopher
and
Foundation for Spinal Cord Injury
Prevention, Care and Cure 1‑800‑342‑0330 Dedicated to the
prevention, care and cure of spinal cord injuries through public awareness,
education and funding research. Free counseling for victims and their families.
Networking of patients and families. Website:
http://www.fscip.org E-mail:
info@fscip.org
National Spinal Cord Injury Hotline (Bilingual) 1‑800‑962‑9629
(Mon.‑Fri., 9am‑5pm EST)
Information, referral and peer support for spinal cord injured persons
and their families. Website: http://www.spinalcord.org E-mail:
scihotline@aol.com
Paralyzed Vets of America 1‑800‑424‑8200;
TTY/TTD: 202‑872‑1300 (Mon.-Fri., 8:30am-5pm EST) Information,
referral and advocacy for disabilities, paralyzed vets. Website: http://www.pva.org
STUTTERING
Stuttering Foundation of America 1‑800‑992‑9392
or 1‑800‑967‑7700 (9am-5pm EST) Information and referrals for
stutterers and those who treat stutterers. Phone support, conferences.
Maintains a nationwide referral list of speech pathologist that specialize in
stuttering. Website: http://www.stutteringhelp.org E-mail:
info@stutteringhelp.org
SUDDEN INFANT
DEATH SYNDROME
American SIDS Institute 1‑800‑232‑7437
(24 hr.) Dedicated to the prevention of sudden infant death syndrome. Promotes
infant health through research. Education and support for families. Website: http://www.sids.org E-mail:
prevent@sids.org
First Candle/SIDS
SUICIDE
PREVENTION
Suicide Prevention Helpline (Bilingual) 1‑800‑784‑2433 or 1‑800‑273‑8255;
TTY: 1-800-799-4889 National suicide
prevention line that routes callers to a local or regional suicide crisis
hotline. Website: http://www.suicidology.org E-mail:
info@suicidology.org
SURGERY
American Society of Plastic Surgeons 1‑800‑635‑0635
Referrals to plastic surgeons. Information on particular plastic surgeons as to
their particular qualifications. Website:
http://www.plasticsurgery.org
TaxES
IRS Federal Tax Information 1‑800‑829‑1040
(24 hr.) Provides information regarding federal tax questions, problems and
refund information (30 day waiting period for written requests.) Website: http://www.irs.gov
NJ
Tax Talk (New Jersey) 1‑800‑323‑4400 or 609‑292‑6400
(Mon.-Fri., 8:30am-4:30pm) Provides status of refunds and at certain times of
the year status of Homestead Rebate applications, order forms and publication
or listen to recorded tax topics. Website: http://www.state.nj.us/treasury/taxation
Transportation
ACCESS
LINK (
Air Ambulance Central 1‑800‑843‑8418
(24 hr.) Will fly patients from anywhere for needed medical services. E-mail: airmedusa@aol.com
Air Charity Network 1-877-621-7177
Provides referrals to 1200 volunteer pilots who will fly needy patients for
medical care. Website: http://www.aircharitynetwork.org
American Red Cross 1-800-733-2767
(Mon.-Fri., 8am-5pm EST) Provides disaster relief, emergency, health, safety
and community services. Website: http://www.redcross.org
Miracle Flights for Kids 1‑800‑359‑1711
(Mon.‑Thurs., 7:30am‑6pm PST) Arranges airplane travel for children
and adults with healthcare problems. Need doctor’s note and 16 days
notice. Website: http://www.miracleflights.org
World Life Foundation 1‑800‑289‑5433
Provides support, research, information and referrals for persons interested in
rare metabolic disorders. Provides air transportation for ambulatory patients
who need non‑emergency treatment.
TRAUMA
American Red Cross 1‑866‑438‑4636
(24 hr.) Provides disaster relief, emergency, health, safety and community
services. Website: http://www.redcross.org
American Trauma Society 1‑800‑556‑7890 or 301‑574-4300 (Mon.‑Fri., 8:30am‑4:30pm EST) Provides referrals and educational materials on the prevention of physical traumas. Website: http://www.amtrauma.org