MedHelp - Medical Information, Forums and Communities

05/10

Hi from Molly's Fund Fighting Lupus! I just wanted to let you know that we have a live online support group coming up next Thursday- it's a great way to chat with other people with lupus. You can sign up at mollysfund.org - I hope you can join us!

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drifter0213

05/10

Thank you ! -scotty

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favored07

05/10

You are in my thoughts and prayers.

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TrudieC

05/10

I read your journal and wanted to say I'm so sorry you are suffering so much. I have fibro and developing Lupus and so far except for blurry vision I'm doing OK on the meds. I just finished reading the Lupus Recovery Diet. If you google it you can buy it and download it - not expensive. What they wrote made a lot of sense and is backed up by scientific data. If things get worse for me I may give it a try, at the very least it calms everything down if you try it for a little bit.

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moxie_mom

05/10

Missy, I wish you the best of luck! I know that there are a lot of girls that are having hair loss too, so I'm not sure if bc pills will stop it...I'm afraid that it may make other symptoms worse, so please just be careful. Please contact the moderator of truthaboutgardasil.org and report your story. We are trying to get an accurate injury report because the makers of Gardasil are trying to minimize the true numbers, because there are so many doctors that refuse to link the symptoms to the vaccine. Most girls are just told that they need a pshyciatrist. I will keep you in my prayers, sweetie! I'm here if you ever need me. Laurie

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moxie_mom

05/10

Oh Missy, I'm so sorry!!!! Yes, Lupus would definitely make you more suseptable to the side effects! This is what me and the other moms are fighting the FDA about, because no tests were done with women with damaged immune systems. Please keep me posted on your condition. There is also a site on facebook just for the Gardasil girls. You may want to join. It's a great place to vent and find support. I will find the link and send it to you. my personal email is lareeesmith at yahoo *******. I think they delete emails that are complete, so you can figure this out. Also, if you want to talk, my number is 865-654-7664

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halbashes

05/10

Welcome to the Dysautonomia Community! :)

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