Hi Don, I have again referred someone to read your post... I hope you are well. We don't see you here often enough. best, Lulu
It makes me smile every time I see your online bookstore name !
- Lulu, but no .com
I hope this finds you doing well. I just -re-read your beautiful peice "MS Challenge for LIfe" as my diagnosis has been confirmed within the last week. Your writing gives me strength to begin (or should I say continue with the next chapter of )my journey. You provide a sense of courage and sensability to your disease that I hope to adopt.
Thank you again.
Wishing you sunny, pain-free days ahead,
Just a quick note to say hi! And hope you had a good turkey day. God Bless.
You're in my thoughts all the time, but especially today. hope your doing okay.
Hi Don What is this meninotine (sp?). Is it a seizure medicine also? How good are you with it? Can you see to read, drive, etc? How long have you had a nystagmis? I have since summer '06. Grams363
Have you found anything that works? I just can't take baclefen..makes me too "out there!"
Just wanted to let you know I can relate. If you ever want to talk, you know where to find me.
Hi Don Don't know if you have had anything work yet. I have the same vertical nystagmus problem and have some help with Gabapentin(I take 600 mg's 4 times a day. Still can't drive, but at least I can read the paper!! Grams
Wow, please keep up the good work. Your contribution is appreciated!