Return to Summary page
Friends | Journals | Notes | Photos | Posts | Trackers
Post It
Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Just wanted to let you know I can relate. If you ever want to talk, you know where to find me.
Andi_L
Aug 18
Hey, just wanted to say thanks for the post. I feel so alone sometimes, and there is no one around me that is going through this. I think sometimes people think I'm making things up. Thank you.
Report this
Joni686
Jul 16
No I haven't been tested for those things although I have read about them and wondered about mercury etc. I am going to put them in my notes to ask the doctor the next time I go. Thanks You're in my prayers especially while your father is ill. Please let me know how you and he and your son are as soon as you get back online. Joni
Report this
Joni686
Jul 16
I am praying for you and you father and whole family right now. We will catch up when you get back. Be well. Please let me know how you and your dad both are when you get back online. I will be praying. Friends, Joni
Report this
Joni686
Jul 12
Oh and to add to the last note. I also slipped and fell and pulled or tore a tendon in my left ankle. Nice....... huh? I had an x-ray Friday because my insurance won't pay for an MRI unless an x-ray is done first. Next week I will probably have to get an MRI on my ankle as well. Uggg ! I need to go relax and find my happy place to get through all this. ;) Take care...
Report this
Joni686
Jul 12
I'm so sorry you have not been feeling well. I will say a prayer for you and your son. I have not gotten the blood test beack for Sjogrens yet but think it will probably come back next week sometime. In the past it has come back negative but that was before my salavary gland swelled up etc. etc. You know how fast things can change. You wake up one morning and you have a new symptom. It's very frustrating. The doctor has given me Plaqunel about a week ago but I haven't started it yet because I now have a nerve in my back that is messing with my bladder - long story. I don't know what they will do next week, probably another MRI. Well, I am going to go relax. Have a great weekend. I am here if you need to talk. Joni
Report this
Joni686
Jul 07
Hey zmombomb, I have been told I probably have lupus but maybe sjogrens. I have been dealing with all of this since last July. I think it really started in June last year when I slept for 3 days and couldn't hardly wake up but anyway I finally found a good Rheumy (only took me a year to find a decent one) and she is doing all kinds of new tests. I recently had an episode with my salavary gland swelling up my right side of my face. It was so painful. I have dry mouth and dry eyes. Does that sound like Sjogrens to you? We sound slike the same age and almost in the same boat. God Bless.
Report this
LZFreedom
Jun 30
Thank you for your autoimmune post! I'm going to see if I can find some information about the Raw Diet... Native American culture teaches that a Raw Vegetable/no cooked foods diet for 5 days or so will boost your energy, and clean up your system. We call it Elk Medicine, and it really works well for me. I've not given up processed foods; I have lunch meat once in awhile... and come to think of it, my hands/fingers have been aching since my first sandwich a week ago... goes to show you! Thank you again for sharing!
Report this
Fedup4doctors
Apr 21
Thanks for your input on the 18th of April ! Take care!
Report this