Jul 13
I am so glad I found this web site so I can communicate with you guys.I have been diagnosed with pots. Buffy
Jul 01
You deserve a big bear hug! How are you doing this week? Just wanted to say hi.
Blessings,
Tara :)
Jun 16
Hi! How are you feeling today? Have you managed to adjust to the heat a little more? Still downing the salts and fluids here! :) I hadn't used salt in years, so it's taking some time to get used to. I have a follow-up with my electrophysiologist tomorrow. Hopefully will get some questions answered. Have a great night!
Jun 15
Thanks for the kind welcome! And thanks too for the reply on the Dysautonomia page. I hope you are making some progress battling the heat! Take care...
Greg
Jun 12
Just a quick note to say hi! they not given me anything yet which is why i am happy they finally diagnosed me so that i can start some treatment. i cant take a lot of the drugs mentioned in the portal as i am chemically sensetive
Jun 10
You're in my thoughts all the time, but especially today. hope you feel better soon.
Jun 08
Thank you am a little bit better today i managed to take daughter to her birthday party still felt really dizzyt. i got to go to hospital on tuesday for yet another tilt test then i see the consultant on the 19th so hopefully they can start some kind of treatment. i feel like a real moaner today. im just really fed up. fed up of being tired ,sick dizzy. fed up it getting in way i dreading going back to university i dont think i am going to manage it i cant even climb the stairs in the house without needing to sit down. hope you re well. take care lisa
Jun 07
Hiya - Wow that must be a hard illness to have - my hats off to you :)
My blood pressure is only normally a problem when I have been pregnant - then I get dizzy spells from it being so low - but as long as I dont get up too quick I am fine most of the time - but this last month or so it ha been a lot higher - still in the medical range of normal but high for me...
Hope you have a wonderful weekend
Helen
x
Jun 05
M.E. (myalgic encephalomyelitis) is a chronic illness that affects many body systems and their functions. The formal term used currently by the medical profession is Chronic Fatigue Syndrome (CFS). The changes seem particularly to affect the nervous system and immune system, but they also affect other body systems. The illness can cause profound exhaustion, muscle pain, problems with mental function such as memory loss and poor concentration, malaise and other symptoms.
Jun 02
Thank you for your post. I'll discuss it with my doc. I'm getting an MRI done next week to rule out other things..
I wish u a lot of strength
Jun 01
I feel ok as long as I take drugs.. How are you? My doctor search will probably take a while considering I went to the best place in florida. I just hope one day I will find out what is doing this. I have a apt. with the infectios disease dr. on Thursday since I work with animals I'm going to see if he may have any ideas. I also go to my primary care to see if she has any new insite on what this could be. I know theres just gotta be one thing causeing everything. Just know one has found it yet
May 27
Things are good. Hoping all is well with you also. Wish we could think of a way to pump up the dysautonomia forum a bit. I know it would have been a huge help to have people to talk to when I first started to pass out, etc.
Take care