Isn't sleeping a joke.. It's the worst part of my day... If I'm lucky the headache pain won't get worse during the night but lately my problem is my right arm goes numb at least 3 or 4 times and wakes me due to the pain. I have to admit the anti siezure meds help alot I can't imagine what I would feel like if I didn't have them.. I'm glad the kids are doing ok.. I emailed Steve on this forum but never heard back. I assumed he was ok or we would have heard... Sorry you're peeing on yourself but I guess it's better than being peed on by someone else...lol just kidding
I go the the NS friday to see what she has to say. This time I'm not going to be so emotional and if she gets rude again I'm walking out. Anyway the Chiari has been giving me troubles and when it really acts up I wished somebody would do something to get rid of the pain. Then when I have days like today I think surgery isn't necessary.. I'm glad the holidays are over.Do you get to hear from the kids??? email me back.... love ya and miss you
Hi Sandy.. Haven't heard from you in a long time.. getting worried... Did you get in touch with Dr Oros office yet? I'll call you later.. Love you..... Lor
I'm glad you're ok even if the headaches are worse. I think the intensity of the headaches is coming from the stress worrying about all of this and if you are like me the almost thousands of hours on the computer doing research. Maybe post a question to the forum about the dye thing... The doc has okayd me to stop all meds to see what is going on with me..I want to see if what I'm experiencing is from the meds or if the chiari symptoms are getting worse
Hi sissy haven't heard from you are you OK? I miss you when you don't write AND I get concerned... LOVE YOU!!!!
Just a quick note to say hi!....thank u for the kind words on the CL post.....and Steve is such a genuinely sweet young man...u should be proud....I pray he comes home soon!
Just a quick note to say hi!....wondering how u r doing...did u get more details on ur dx?
keep us posted!!
say hi to Steve for me!
Just a quick note to say hi!...yes I remember ur son , Steve.....I am glad I was able to help...did u get ur dx?......this forum is great!! u r right we all need support and by giving we also receive!
Thanks it's really nice to know I'm not alone.. most days I can't help feeling that way. The hardest part right now is the realization that the things that gave me pain my whole life (that I normalized) nobody else felt. Now I feel my whole life has been taken away from me... and what it normal really like???
Welcome to our Chiari community! :) "selma"