Just a quick note to say hi! how are you doing? sam x

Just wanted to say hello. I stumbled upon your profile and truly felt for you as I read over how frustrated you have become while trying to find a dx and treatment for your symptoms. I will be praying for you that you may get a great doctor and some answers soon :-)

Just a quick note to say hi! lol i hear that alot or" at least its nothing serious!! "how do they know that as they cant find out what it is!!! still they just try to help i guess sometimes i wish they would just say this is tough and give me a hug or something,anyway enough moaning lol

Just a quick note to say hi! Hi,feeling abit down today just frustrated with it all and the not knowing what i have plus peoples reactions to my illness and there silly remarks drives me mad.End of school stuff always puts pressure on too.How are you hun? sam

Just a quick note to say hi! lyme sounds like it could be the answer and if you have been tested and it positive i think you should be given a longer dose or maybe there has been some permanant damage or something i dont know enough about lyme to be honest.Let us know what the dr says when you see him.

Just a quick note to say hi!only just picked the message up today i'm hopeless at checking my note bits lol hope you are ok? and you will get answers soon.keep in touch. sam

You're welcome. I agree with your statement about finding  a new neuro. It actually took 5 before I received my diagnosis. My local , general neurologist, kept sending me to different neuros until we had an answer. Although , he called it almost 4 years ago when I fell, hit my head and need 7 staples to close the wound. My PCP sent me to his office as soon as he closed the wound and the neuro said "This is MS".  His gut just knew it  but I didn't have enough lesions at the time. So the lesson is keep plugging away. The diagnosing neuro is NOT a lesion counter and went on the physical exam. We found him at an academic teaching hospital.

Good luck! Best wishes as you travel this aggravating road to a diagnosis.

Ren

Hi there, just want to say that you need to hang in there, stay positive. All of the testing and Dr.'s appt can really drag you down especially when you have a family to take care of. Speaking from my experience and still being in limbo un-dx it's very hard to live every day with all the symptoms and not think that theirs something wrong. It's best to manage as best as you can and stay on top of your appt's and get rest when you can.
Take care,

Hi,
Do your MRI reports actually state that are NO hyperintensities? Have you have brain , cervical and thoracic MRIs? BTW, 5% of people with MS have no visible lesions on MRI especially with the lower intensity machines. What strength was your test on 1.5 Telsa? Was MS protocol used to do the MRI? This takes smaller slices of the brain and can identify smaller lesions. I would not give up, especially with the docs thinking MS and the mimics ruled out. You need to find a neuro who does not count lesions (hard to find) but I found mine at an academic center hospital.

Good luck with things. I hope you feel better. Keep me updated. Feel free to ask me or anybody on the forum as many questions as you need to.

Ren.

Hope you feel better soon!  My MRIs showed punctuate hyperintensties that were attributed to my high BP and and migraines since I was 47 when they began considering MS. I now have only 2 lesions which are considered classic lesions and that was only in the last 6 month. It is important you find a neuro that is NOT a lesion counter; meaning you have to have a certain number of lesions for dx. Mine current neuro is not and said no lesion in the brain is normal. There should be no lesions. Do you have a copy of the radiology report? You need one. Mine orginially said no lesions but the report noted small hyperintensites which later we deemed to be MS. Hang in there. Hugs, Ren