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Diabetes - Juvenile Community
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Gastroparesis - R there any supports groups in progress ???
by Kristy Mari, Apr 05, 2005 12:00AM
If there are no GASTROPARESIS Support Groups - HOW can I start one ???
Doctor's Answer
by JDRF-Team-SS, Apr 06, 2005 12:00AM
Hello Kristy Mari,
First I want to apologize for not answering your question yesterday. Also, I need to let you know that I am not a medical professional, but a mother of a boy who is living with type 1. My son was diagnosed 7 yrs. ago at the age of three.
You may have already found this, but below is a link to a yahoo support group.
http://health.groups.yahoo.com/group/gastroparesis/
Another idea is to talk to your Endocrinologist and ask. Possibly they have a bulletin board and you can post a flyer and try to start a support group in your area. It does not hurt to ask. Go for it.
Also, there is a cool website (non-diabteic related) where you can post different types of ads for FREE. You simply click on your city (on the right-hand side of the page) or the city nearest to you and then look to the upper left of the page where it says COMMUNITY and there is a sub-category for GROUPS. Then click post and type away. Craig's List is a very well known website and has many visitors.
Go to:
www.craigslist.org then find your city on the right side.
I wish you the best of luck and hope you find support in your area.
Take care:)
SS
First I want to apologize for not answering your question yesterday. Also, I need to let you know that I am not a medical professional, but a mother of a boy who is living with type 1. My son was diagnosed 7 yrs. ago at the age of three.
You may have already found this, but below is a link to a yahoo support group.
http://health.groups.yahoo.com/group/gastroparesis/
Another idea is to talk to your Endocrinologist and ask. Possibly they have a bulletin board and you can post a flyer and try to start a support group in your area. It does not hurt to ask. Go for it.
Also, there is a cool website (non-diabteic related) where you can post different types of ads for FREE. You simply click on your city (on the right-hand side of the page) or the city nearest to you and then look to the upper left of the page where it says COMMUNITY and there is a sub-category for GROUPS. Then click post and type away. Craig's List is a very well known website and has many visitors.
Go to:
www.craigslist.org then find your city on the right side.
I wish you the best of luck and hope you find support in your area.
Take care:)
SS
Post Comment
http://g-pact.org/newsletter/july04.htm points to --> http://health.groups.yahoo.com/group/pediatricgastrosupport/
(This is primarily aimed at folks dealing with pediatric gastro)
http://www.gpda.net/
(A general gastro organization site)
How To Start a Support Group:
http://diabetes.about.com/cs/supportgroups/a/support_groups.htm - 34k (This sounded promising, but you might need to register; I couldn't see the article; try the archives or webmaster ...)
Contact organizations for info on starting/joining a gastro support group (scroll to the bottom of the page at the site below):
http://www.medformation.com/ac/mm_qdis.nsf/qd/nd0519g.htm
You can go to www.digestivedistress.com
This site has a forum. The president of the US based non-profit is a type I diabetic with gastroparesis. She has a lot of insight and suggestions regarding gastroparesis and its affect on diabetes.
Best regards,
Jeanne
the president of the Gastroparesis and Dysmotilities association is a type I diabetic with gastroparesis. There site has a forum for posting questions.
Try: www.digestivedistress.com
They also have educational pamphlets on their site related to diabetes and gastroparesis
No registration is required and info is free for the asking
best regards
jeanne