selmaS((hugs))) goodness u have a lot going on....I wish I could offer insight but I really do not know what to say but in time u will feel better....have u tried a cervical collar ?
SexybareAll my drs say not to use cervical collar because it doesn't help stregthen muscles, but I have muscle damage so I'm gonna give it a try, especially for the car. I just wish someone can tell me which symptoms go
SexybareWith which dxs?! I'm goin to contact dr oro and see what he says. I had the radio frequency and it did nothing. So maybe he'll have something to help?! I don't give up, just take a break every now and then.
selmaSAre u doing exercises for the muscles in ur neck to help strengthen them? It is important. In the car I used a neck pillow and a big fluffy bed pillow and I would tilt my seat back enuff that with the big pillow I was still upright , the head bobbles less
SexybareI'm just having issues with my shoulderblade in constant pain/swelling all the way over into collarbone area, non stop. Believe its from eds. Then I have constant pain in c2 area. I still have muscle damage and sunken in scar whichhurts constantly, but no
SexybareBut not as bad as first surgery. I get headaches everyday and my head is just so heavy and I'm still getting vertigo and near synecope episodes. Nothin the drs give me works nor none of the radio frequency procedures. NL doesn't suggest anything will work
SexybareDue to my scar tissue and eds. Now I'm getting lupus symptoms flaring and I'm so tired of drs not giving me answers, I JUST WANT ANSWERS. I'm sorry, just venting and complaining.
SexybareNot to mention my autonomic dysdunction has been really bad since last surgery. I just feel hopeless at the moment. But I'm workin on accepting this all, boy is that hhard. Lol