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we made it to Springfield and found the chiari walk site:) Sep 21 - 1
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selmaS Yea !!! have a great time, but don't over do it <3
Sep 21

Recent Status Updates

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Are you grateful for how far you have come or are you grieving the part of the journey that is not as you planned? Often our perception is what makes the difference.  I am grateful! :) Feb 20 - 1
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selmaS I am glad u r...so am I : )
Feb 20
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my daughter has broke (moved on to semi finals) in every debate/forensic competition she has been in and this is her first year!  I am one proud Mom:) Dec 08 - 2
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Sexybare Awww how exciting. Congrats to her and best of luck :)
Dec 08
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tdaniel770 Congratulations!!!
Dec 09
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got chiari purple gel nails today:) I needed a treat! Dec 07 - 0
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today was our appointment for my daughter with the geneticist and cardiologist at the children's hospital.  She was diagnosed with EDS type 3 and POTS...exactly what I thought she had.  It was nice to be around doctors that actually knew what EDS was:) Nov 30 - 3
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selmaS So glad u got a DX, that is the first step to treatment and ur DD in feeling better : )
Nov 30
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Sexybare I agree with selma, but so sorry to hear she has eds also.    Hugs, Dana
Nov 30
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RheaAnn I'm glad you have answers but I'm sorry to hear the diagnose. I hope treatments can begin so she feels better!
Nov 30
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Happy Thanksgiving! Nov 22 - 0
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