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today was our appointment for my daughter with the geneticist and cardiologist at the children's hospital.  She was diagnosed with EDS type 3 and POTS...exactly what I thought she had.  It was nice to be around doctors that actually knew what EDS was:) 11/12 - 3
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selmaS So glad u got a DX, that is the first step to treatment and ur DD in feeling better : )
11/12
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Sexybare I agree with selma, but so sorry to hear she has eds also.    Hugs, Dana
11/12
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RheaAnn I'm glad you have answers but I'm sorry to hear the diagnose. I hope treatments can begin so she feels better!
11/12

Recent Status Updates

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Good morning to the oldies and welcome to the newbies! 09/13 - 1
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selmaS Back at u Mel <3
09/13
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Are you grateful for how far you have come or are you grieving the part of the journey that is not as you planned? Often our perception is what makes the difference.  I am grateful! :) 02/13 - 1
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selmaS I am glad u r...so am I : )
02/13
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my daughter has broke (moved on to semi finals) in every debate/forensic competition she has been in and this is her first year!  I am one proud Mom:) 12/12 - 2
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Sexybare Awww how exciting. Congrats to her and best of luck :)
12/12
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tdaniel770 Congratulations!!!
12/12
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got chiari purple gel nails today:) I needed a treat! 12/12 - 0
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Happy Thanksgiving! 11/12 - 0
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